ct autism data: identification, services & transition alice...
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CT Autism Data: Identification, Services & Transition
Alice RidgewayPart C CoordinatorCT Birth to Three
1
Connecticut 101Lead Agency du JourOffice of Early Childhood
32 programs at 29 agencies
Currently 3 “types”~General~Autism Specific~Hearing Specialty
CT B23 System and Autism Timeline
1993
1996Change in Lead Agency
2003Began Family
CostParticipation
2011Three
State-wideRFPs
2017-18Converted to
FFS
19981st AutismGuidelines
2007Autism Specific
Programs
20??One
State-wideRFP
2015Change in Lead Agency
ICD10
2002“36.2 Hours”
MediationAgreement
2005Hearing
RequiringABA
Deficits Every Year…
Medicaid-EPSDTBirth to Three
SPA$14M
StatePart C Funds
to OEC$21M
State Match$14M
Part C Grant$4M
Part B Grant$1M
Commercial Insurance
$2M…?
Family CostParticipation Fees
$4M
2014Birth Cohort
1/1/14 12/31/14
Turned 3 by 12/31/17
2014 Birth CohortCensus Estimate
38,761
IFSP ICD = Autism675
1.74% 1:54
Racial /Ethnic Percentages
26% 33% 35%
74% 67% 65%
21% 29% 32%
54%50% 43%
20% 15% 19%
Census IFSPs Autism
Hsp nHsp WHsp WnHsp nWHsp nWnHsp
59%40%
Medicaid Commercial Unk
IFSPs
Insurance Type
58%
42%
Autism
0%
1%
2%
3%
4%
5%
6%
IFSPs Autism
Commercial Insurance Income Levels
Home Language0% 20% 40% 60% 80%
EN
SP
OT
IFSP Autism
Referral Concerns
0
100
200
300
400
500
600
700
Communication
AutismSocial
Yes No
Average Age At Referral
Average Age when 1St IFSPIncludes an Autism ICD
Average Hours pmon 1st “autism” IFSP
Mean = 38.4Median = 36.1
Average Hours pmon Last IFSP
Mean = 40.5Median = 37.2
Average Hours Delivered During First Full Month (after Dx)
Mean = 29.5Median = 27.5
Average Hours Delivered During Last
Month Before Exit
Mean = 35.7Median = 32.3
Community, 2%
Child Care, 5%
93%
Almost All Visit Occur at Home or Child Care
19 of the 675 had EISonly in Child Care ora Community setting
Reasons for Exiting
Withdrawn by Parent Unable to contact Moved Eligible Part B Exit at 3 other
93% at age three
85%Eligible
for Part B
AgeIEP 10/1 3 4 5 6 7 8
2010 223 224 316 452 514 5012011 172 284 332 511 496 5412012 193 231 375 515 557 5442013 204 261 331 536 556 5582014 236 276 370 565 576 5832015 271 307 393 567 616 5982016 295 330 436 596 646 6422017 338 394 465 690 652 676Total 2352 2910 3899 5717 5903 5942
Autism as Primary DisabilityCategory on IEPs
Born 3 4 5 6 7 8 9 not 1° IEPs2008 165 191 230 355 362 366 282 4041 59922009 183 214 264 371 383 280 4038 57332010 219 260 311 425 314 4017 55462011 214 254 318 306 4069 51612012 261 298 242 4476 52772013 278 231 4682 51912014 236 4829 5072
Born 3 4 5 6 7 8 9 not 1° IEPs2008 .4% .5% .6% .9% 1.0% 1.0% 0.7% 10.6% 15.8%2009 .5% .6% .7% 1.0% 1.0% .7% 10.6% 15.1%2010 .6% .7% .8% 1.1% .8% 10.6% 14.6%2011 .6% .7% .8% .8% 10.7% 13.6%2012 .7% .8% .6% 11.8% 13.9%2013 .7% .6% 12.3% 13.7%2014 .6% 12.7% 13.3%
Autism as PrimaryBy Birth Cohort
Percent of 38,000
(ROUGH census)
48% of Children Born in 2014,
Diagnosed with Autism in Part C,
and Exiting as Eligible for Part B (before 10/1/14)
had Autism as the Primary Disability on
their IEP
