CEREBRAL PALSY AWARENESS WORKSHOP HELD ON 2nd MARCH 2016 AT NICE VIEW MEDICAL CLINIC

The cerebral palsy awareness workshop was held on 2nd march 2016. This event was used as a benchmark for raising awareness on the magnitude of cerebral palsy cases within Msambweni, Matuga and LungaLungasub counties as well as mobilize the community on the current interventions available i.e. occupational therapy, orthopedic technology, hand therapy, nutritional counseling, school placement and vocational habilitation. During the event we received 18 pieces of occupational therapy equipment that will be distributed to our outreach rehabilitation clinics in LungaLunga, Shimoni and Kikoneni. We fabricated60 hand rehabilitation splints for 40 patients

OUR OBJECTIVES WERE:

1. Provide therapeutic interventions for children

suffering from various disabling conditions

2. Embrace teamwork and consultation while tackling issues related to disability

3. Understanding various pediatric neurodevelopmental disorders in children

4. Tackling emotional and psychological issues affecting mothers and other caretakers of children living with disability

5. Training mothers and other care takers on both instrumental and basic activities of daily living i.e. feeding, toileting, grooming, mobility and communication

6. Integration of the disabled child within the community and school

SERIES OF ACTIVITIES

1. Introduction on cerebral palsy, its causes, prevention, complications and treatment modalities available

2. Hand therapy assessments and fabrication of functional hand splints

3. Nutritional counseling and assessments, Plumpy’Nuts were provided to malnourished children

4. Educational assessment and referral to either mainstream schools or special schools.

Families waiting for treatment

Baset Titanium volunteers setting up equipment

5. Presentation from orthopedic technology department on the importance of assistive devices 6. Handing over of the 18 occupational therapy equipments from base titanium base team7. Parents’ group discussions and sharing of experiences

REPORTING SHEET

ACTIVITY REPORT (NUMBERS)

1. Evaluations 77 evaluations done: 73 cerebral palsy, 1 hydrocephalus, 1 multiple congenital deformities, 1 delayed developmental milestones and 1 myasthenia gravis.

2. Presentation- Introduction to cerebral palsy/ complications and

management- School assessment and placement- Hand therapist assessment- Nutritional counseling and assessment- Demonstrations on the use of occupational therapy

equipment- Presentation by Christine from base titanium on

their continued support- Orthopedic technology presentation on the

importance of assistive devices

3. Splinting 50 children assessed for splinting45 patients recommended for splint prescription 40 patients benefitted from splints fabricated usingorfit

4. Education school assessment 20 children with CP assessed for school placement, 12 referred to normal schools while 8 were referred to special school

5. Parent training 90 care takers trained on splint fitting, feeding and toileting

6. Nutritionist 47 assessed and counseled Plumpy’Nuts provided to 35 kids 12 referrals toMCRH for further treatment

7. Hand therapist

50 assessments 45 patients for hand splinting 40 benefitted from functional splints (60 splints fabricated)5 patients missed out

8. Orthopedic assessments 30 assessments14 patients needed KAFOS9 Patients needed AFOS5 patients for thoraco-lumbar corsets 2 patients for arch support

A therapist demonstrating to patients on how to use the standing aid

Pictorial

Pictorial

Appreciation

We want to appreciate our sponsors for making this exercise a success:

- Nice View medical clinic provided lunch, beverages, conference hall and printing services.- Base Titanium provided us with facilitators’ allowances, fare for parents and caretakers and 18

occupational therapy equipment.

Patients with custom made hand splints produced during the workshop

Patients with cerebral palsy who received custom made splints for their contracted hands. The parents were also trained in the use of those splints and of course on how to do exercises to increase the mobility of their children at home.

- Our appreciation also goes to Dr. Stan, who found a sponsor, the Henri Servais Foundation, to provide us with splinting material (2 sheets of 3.2 mm Orfit, 1 sheet of 2.4 mm Orfit, a roll of Velcro hook and loop.

- We also appreciate Base Titanium for giving us 1 sheet 3.2 mm to compliment what we had. Through this we were able tofabricate over 60 splints for 40 patients.

RECOMMENDATIONS

1. More workshops should be rolled out in all sub counties within Kwale county to increase awareness and defeat retrogressive practices and notions on disabilities

2. Its convenient to pay parents cash instead of using the mobile money transfer for the fare re- imbursements

3. Having a public address system will increase effectiveness and reduce boredom 4. Having charts and projectors will make it easier for parents to learn5. We need more establishment of special school which should factor in occupational

therapist, physiotherapists, orthopedic technologists and special education experts6. Establishment of vocational habilitation centers within Kwale County to increase

accessibility.7. Provision of hand therapy services should be given a priority 8. Formation of support groups should be encouraged among parents and care takers of

children with cerebral palsy.9.List of patients and care takers who turned up for the workshop

CHILD CARE TAKER RESIDENCE DIAGNOSISGRACE KIOKO ESTER KATENGE MAGODI CPRACHAEL NYAMAI SARAH MLEGWA KIKONENI CPHAMISSHUNGI MWANAMKASI TIWI CPASHANASSORO ASHA HUSSEIN MUNJE CPPETER NZIOKI MARY KUNIVA KINONDO CPBENJAMIN KIMEU REBECCA MAGODI MYSTEMIAGARIGABRIEL MUSYOKI JOSEPHINE MBATHA KIKONENI CPAMINAHAMIS BI ZUME OMAR FIKIRINI CPJAMES MULI ROSE SILA MAFISINI CPMTENDEMKALA IRINE KATANA VANGA CPKASSIMSHEE KHADIJA KASSIM VANGA CPKAVULI AGNES MARRAMULWA ESHU CPSAUDABAHATI PESAMWINYI SHIMONI CPALI KASSIM MWANAMKASI ALI SHIMONI CPMOHAMED MALIK FATUMA MALIK SHIMONI CPABDALLASALIM MWANASHA ALI MATUGA DSALI SALIM BINTI MOHAMED MATUGA CPHUSSEIN KIMETE NASRA HUSSEIN SHIMONI CPOMAR ABDALLA ALI MWACHAMANGA KITEJE CP

PAUL MWATELE NGUNACHITI MWANGULU CPREHEMAJUMA MWANAULUJUMA KIKONENI CP

REHEMAHAMIS KIKONENISIAJABUMAKAME MWANAISHA OMAR ZIGIRA HYDROCEPHALYVINCEPAUL KEZZIAWAITHERA UKUNDA DMSMWANAISHAHAMZA ALI SALIM TIWI CP

FATUMASALIM TIWINYAMAICHIRO CHIZICHIRORO DZOMBO CPALI ABDALLA FATUMA RASHID MILALANI DSBILALI OMAR OMAR KSSIM MUNJE CPLATIFAJUMA MWANAISHA OMAR UKUNDA CP

SAUMU OMAR UKUNDATHUWAIBABAKARI FALIME SULEIMAN UKUNDA CPMWANAISHAJUMA JUMAABDALLA UKUNDA CPSALIMJAMALI MWANAJUMASALIM KINGWEDE CPJUMASHEE FATUMAABDALLA LIKONI CPISSAIDD MWENESIDARUSI FUNZI CPMWANAMKUURIZIKI RIZIKI ALI MSAMBWENI CPMWANAKOMBOMOHD

MEJUMAAJUMA MAKONGENI CP

OMAR SHABAN MWANASILI OMAR MAKONGENI CPSALIMBAKARI SALIMBAKARI SHIMONI CPHASSAN AMADI AMINACHINDORO KIGOMBERO CPSWALEHNGARA CHALAMEMKULA TWAKA CPCHARIFUJEFFA MWANAKOMBOBECHARO KIGOMBERO CPMWENDEMWEDWA MAKOBE 0790764118 CPBAHATIHAWADHI MEMAABDALLA SHIMONI CPMUTUANGUNGU ESTHER WANZA MANYATTA CPRIZIKISALIM MEJUMAA OMAR TIWI CPHAMISMWALIMU FATUMADZAME BOMANI CPPROSPER KIVATI NAOMI KIVATI MWANANYAMALA CPMULAHATSALIM ASHA OMAR MAJORENI MULTIPLE

CONGENITAL DEFORMITIES

MESALIMU RAMA MWANAKOMBO ALI UKUNDA CPJUMAJUMA ASHAJUMA UKUNDA CPSAID ANGORE MWANAMIS OMAR LUNGALUNGA CPVICK DANIEL SHELALA UKUNDA CPMARIUM OMAR MERASHIDSALIM MAGANYAKULO CPZAKARIASAIDI MWANASHAALFANI TIWI CPBARAKA YUSUF YUSUF BAYA VINGUJINI CP

ELIZABETH KWIYA VINGUJINIBERITA JANE WAWUDA UKUNDA CPESBORNKINUTHIA JACINTA WANJIKU UKUNDA CPLEON BABU SAUMUABDALLA KONA YA SHIMONI CPFATIAIDD MISHIABDALLA SHIMONI CP

MWAMBUA JAMES ANNA MUENI MAFISINI CPANNA MUENI MAFISINI

ANNE ANNA MUENI MAFISINI CPDAUDISALIM MWANARUSISALIM KOMBANIHAMADHAMIS HALIMA JUMA UKUNDA CPNOHAMALKI ALMAS BAKARI UKUNDA CPJAMAL SUBIRA HALIMA HASSAN FINGIRIKA CPREHEMA RAMA MWANAMISKHALIFA FINGIRIKA CPPHILPMUNGAI LEAH STEVEN RAMISI CPGEORGE ABURA ELIZABETH MSOKE UKUNDA CPHAFSAMOHD MWAKAMWASERE KOMBANI CP

PREPARED BY: GEOFFREY MOMANYI MORIASI, OCCUPATIONAL THERAPIST MSAMBWENI REFERRAL HOSPITAL gmoriasi@gmail.com +254-724770337