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NHS Improving Quality and NHS England Welcome Commitment for Carers Thursday 5 December

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NHS Improving Quality and NHS England

Welcome

Commitment for Carers

Thursday 5 December

No Fire Alarm scheduled todayIf Alarm rings please make your way safely to the EXIT, a member of the hotel staff will direct you to the meeting point

FREE WiFi is available to all delegatesConference name: NHS2Password 123KLJJoin us live on Twitter#NHSThinkCarer

http://www.nhsiq.nhs.uk/improvement-programmes/experience-of-care/commitment-for-carers.aspx All refreshments during the day will be served in the foyer outside Booker & Turner Suites

Hearing Loop available

Photographs will be taken during the meeting

Philippa Russell,

Chair,

Standing Commission on Carers

E-mail: [email protected]

Better Outcomes for Carers and those they support - Developing Commitment to Carers across the NHS and Social Care

‘Recognised, valued and supported’ – WELCOME to an ambitious day committed to improving outcomes for carers. Our aims are:- To improve understanding of the health service

responsibilities towards carers as set out in the Mandate and the Carers Strategy Refresh.

To recognise and value carers’ voices and expertise.

To determine the health service’s role in supporting carers.

Identifying the barriers which prevent optimum support for carers.

Reaching a consensus on next steps to improve carers’ experience and support and agreeing commitments to achieve these goals..

‘Caring is not a career choice – we are here because we care but it’s hard sometimes. Remember there is usually a family behind the patient! Use us, respect us or lose us!’ [Family Carer, 2013]

Understanding 2lst Century carers - WHO cares? [Office for National Statistics, 2012, Carers UK, 2013]

5.4 million carers in England 500,000 dementia carers [9 million expected by 2037]

Greatest rise in those providing 20 hours or more a week (now 2.1 million people]

Numbers of carers providing 50 hours or more care a week [now 1,360,000 people].

74% of carers report impact on their own physical health, 94% on their mental health.

‘Putting people first’: Understanding the real (often hidden and diverse) lives of carers

Developing commitments to carers: the background to this event

A survey of carers’ own views on their relationships with the health services.

Blogs and a webinar – and tweeting!

Raising the profile of carers as partners across the health services – and some key messages about what carers want.

Between October and November 2013 NHS Improving Quality ran a survey of carers in the U.K.

CARERS RESPONDED AND TOOK THE SURVEY

1

4 142

44

85 215 carers undertaking the survey were aged 30 to 65

Average carer looks after

3001.4 people

Majority of carers made aware of survey from: 1. Support groups (65) 2. Twitter (56) 3. Charities (54)

The majority of carers looked after:

1. Children (97) 2. Parents (94) 3. Spouses (79)

“Help me help the people I care for”carers feel they have had no help sign-posting them to relevant information and advice

95 that did have help mainly got it from charities and / or support groups

198

Out-of-Hours

Doctors/Paramedics

GPDistrict Nurses

Social Worker

Malcolm &Barbara

Consultant Continence Adviser

Speech & Language Adviser

Dietician

CommunityDentist

OccupationalTherapist

Equipment Service

PhysiotherapistAlternating

Mattress technician

Wheelchair Service

Oxygen serviceDirect

PaymentsTeam; Rowan

Org.

Alzheimer’sSoc outreach

worker

Care team2 live-in carers (alternating weekly)Replacement carer[Some night nursing – Health]Emergency carers & Barbara

Managing the Web of Care

(Last 7 yrs)

DementiaAdvisoryNurse?

Family Carers – no longer a ‘secret army’ but expert partners within a new NHS and social care system!

‘Resilience – a new metric for primary care and indeed the new NHS? There is more to medicine than medication. Let’s design and incentivise the promotion of individual carer, family, patient and whole family resilience for better health.’

[Dr Trevor Thompson (University of Bristol), Society for Academic Primary CareConference, 2012]

NHS England Savoy conference

Domain 2• “Enhancing the quality of life for people

with long-term conditions.

Dr Martin McShaneDirector – Domain 2 12

Challenges

13

What the people we serve want wants….

Person centred coordinated care“My care is planned with people who work together to understand me and my carer(s), put me in control, co-ordinate and deliver services to achieve my best outcomes”

Communication

Information

Decision-making

Care planning

Transitions

My goals/outcomes

Emergencies

14

What’s the job?

Safe

What do we mean by high quality care?

GoodPatient

Experience Clinically Effective

Our Mission is: High Quality Care for All- now and for

future generations

How will we measure success?

Reducing premature

mortality

Treating people in a safe environment &

protecting them from avoidable harm

Ensuring people

have a positive experience of

treatment and care

Enhancing quality of life

for people with long term conditions

Helping people to

recover from episodes

of ill Health or following injuryWhat will

my care look and feel like?

I will feelin control of

managing my own condition(s)

I will feel supported

to keep healthy and spot any problems

at an early stage

My care and treatment

will be organised around me as

a person

I will feel my safety is everyone’s paramount concern, but if things

do go wrong people will be

honest with

me

My preferences

will be listened to and the feedback I provide will be acted

upon

I will always

be treated with compassion, dignity and

respect

I will get the best possible treatment in the most

appropriate setting and be fully supported to

recover

Long Term Conditions

Community

Carers

Professions

Person16

17

Organisational & clinical processes

Plan

Study

DoAct

Engaged, informed

individuals & carers

Commissioning

Person-centred,

coordinated care

Health & care

professionals

committed to

partnership working

Culture devours strategy…

Needs (met or unmet)

Mindsets and beliefs

Values

Individual behaviours

What we seeand attemptto address

What we don’t

see and don’t

know how to

address

SOURCE: Scott Keller and Colin Price, ‘Performance and Health: An evidence-based approach to transformingyour organisation’, 2010.

Spend time on the professions,

politics and public

Final thought

The good physician treats the disease; the great physician treats the patient who has the disease.

William Osler 19

20

Who are the carers?

NHS Improving Quality and NHS England

Tea & Coffee

Back in 15 minutes

NHS Improving Quality and NHS England

Group Activity 1

What are we currently doing to support carers?

NHS Improving Quality and NHS England

Group Activity 2What are the barriers to improving:

(a) Health services supporting the carer as an individual?

(b) Health services supporting the individual to care for another/multiple people?

NHS Improving Quality and NHS England

Lunch

13.15 – 14.15

NHS Improving Quality and NHS England

Group Activity 3

What are the priorities for NHS England/healthcare?

NHS Improving Quality and NHS England

Tea & Coffee

Back in 15 minutes

NHS Improving Quality and NHS England

Thank You for your contribution and participation today

Have a safe journey Home