Aive Antson

Chief of Board

*1996 – Dr. Oivi Uibo and Külli Mitt invited families who had child of coeliac disease to join and organised meetings and etc

*14.02.1998 – the foundation articles were certified. We are a non-profit organization.

*Since 1998 – member of the Estonian Chamber of Disabled People

*Since 2006 – member of AOECS (Association of European Coeliac Societies)

*The activities are based on the projects financed from the Foundation of Estonian Disabled People.

*6433.00 is budget of this year from Foundation of Estonian Disabled People. It is 21% less than last year.

* 460.00 memberfees.

*The memberships are

• 10.00 for family a year (irrespective of persons amount in family). So they have free participation in summer camp, Christmas party etc

• singlemother and single pensioners pay 7.00

*The Board includes 2 members:

•Aive Antson

•Riin Jõgi

*There are 115 members in our society.

*46 coeliacs, 2 persons with gluten sensitivity and the others are members of families

*We can buy glutenfree products in big stores – Prisma, Selver, Stockmann

*Glutenfree products are about seven times more expensive than other food

*The trademarks are: Dr. Schär, Orgran, Semper etc.

*We had an important event at September. We opened our counseling cabinet in the house of The Estonian Chamber of Disabled People

• It is open on Tuesdays at 18.00 – 20.00

•We promoted it at newspapers

•Our members are counseling new coeliacs

*So far the cabinet has been visited by 15 coeliacs (often they took family members with them)

*More or less they become members with family

*People get information about the cabinet:

• Facebook

•Homepage

• Internet

•Gastroenterologist

•Newspaper

*Main problems/questions:

• Finding product in stores

•What to use or eat

•Hiden gluten in products

• Lactose tolerance

• Information about society work

•Appling member of the society (half of the cabinet visitors became a member)

*Cooperation with medical staff – gluten sensitivity

*Alternative medicine (acupuncture doctors, blood group diet) diagnose gluten intolerance, but doctors say that it is not disease

*The adult coeliac patients do not receive financial support for the purchase gluten-free food products

*Increase of the assortment of gluten-free products in the stores

*Also support adult coeliac patients

*European Licensing System – symbol

*New material for coeliac

*New information

*Financial support system