Registered Charity No. 1003314

Little Bridge HouseRedlands Road, Fremington, Barnstaple, Devon, EX31 2PZ Tel: 01271 325270

Charlton Farm,Charlton Drive, Wraxall, NorthSomerset, BS48 1PE Tel: 01275 866600

Little HarbourPorthpean Road, Porthpean, St Austell, Cornwall, PL26 6AZ Tel: 01726 871800

Autumn newsletter2013

www.chsw.org.uk

You can see this newsletter online too at www.chsw.org.uk/email-newsletter2

Eddie’s WelcomeWe were very privileged to welcome HRH The Duchess of Cornwall to Little Harbour, a joyous and uniquely uplifting experience for everyone present. It was a wholly memorable and truly outstanding visit, which brought joy and recognition of the work of Children’s Hospice South West in Cornwall and throughout the South West.

Notwithstanding the huge success of the visit, it is a real regret that we were not able to invite more of our supporters. As the visit was a private event, the numbers of guests had to be small. I hope this limitation has not caused undue offence, if so, I do apologise.

Her Royal Highness also expressed a wish to visit Little Bridge House and Charlton Farm and needless to say it would be a real pleasure to welcome her!

Whilst the Royal visit is a key focus, there is much to celebrate and share from Little Bridge House, Charlton Farm and our supporters in this newsletter.

Thank you for your ongoing support, which is a lifeline to those in such difficult circumstances.

With best wishes,

Eddie FarwellCo-Founder & Chief Executive

Front cover picture: Alex and his family unveiling the plaque with

Her Royal Highness.

Page 4 picture: Thomas meets Her Royal Highness.

Edd

ie’s W

elc

ome

/ Christm

as is c

oming

In this edition We are very proud to have welcomed HRH the Duchess of Cornwall on a visit to Little Harbour. Inside you will find photo reviews of the day alongside some of her comments and those of our families.

For more draw tickets call 01271 325270

Pass it on!When you’ve finished reading this share it with your family and friends.

Christmas is coming

3

P 8/9: In celebration of our Royal visit

P 6/7: A special day for Little Harbour

P 10/11: Stories from Little Bridge House

P 12/13: Charlton Farm family story

P 14/15: Reasons to say ‘thank you’

P 16: Upcoming events

P 17: Your local CHSW shop is...

P 4/5: Making a Royal impression

P 18/19: The challenge begins

Eddie’s WelcomeIt’s never too early to plan for Christmas and we can help – why not purchase your cards from our enclosed brochure, there’s a design to suit all tastes. How about buying a calendar or diary for a friend or family member? Doing so will help keep our doors open for the families that need us most.

Could you be a winner and make a difference?Thank you for purchasing or selling the enclosed Christmas Draw tickets, and helping to support the children and families who use our hospices.

4 See how your donations make a difference, visit us on an open day www.chsw.org.uk/open-days

Little Harbour makes an impression on our Royal Visitor

Wha

t our Royal visitor ha

d to sa

y ab

out Little H

arb

our

Support us ??????5Making the most of short and precious lives across the South West

“Can I just say a few words, really to congratulate you, Eddie and all of the team whose work has made this very, very special place.

As you know I am patron of Helen and Douglas House so I know a bit about children’s hospices but the thing that always amazes me about them is when you arrive.

Before I visited one before I always thought they might be sad places but it’s completely the opposite they are uplifting and very, very special and I think this one is one of the most exceptional places I have ever seen.

Congratulations to everybody.”

- HRH Duchess of Cornwall

A special day for our families at Little Harbour

6 Visit us on an open day at Little Harbour 01726 871800

Our families were thrilled to meet Her Royal Highness and commented on her depth of understanding and empathy for their situation.

HRH spent time chatting to our families, commenting;

I always thought they might be sad places but

it’s completely the opposite they are uplifting and very, very special and I think this one is one of the most exceptional places I have ever seen.

Top left: Callum was delighted to share his cakes with HRH.

Bottom left: Greggory shared the magic of the sensory room.

Bottom right: Sarah introduced HRH to some Messy Play fun.

Right: The Clemens family presented HRH with a posy.

A sp

ec

ial d

ay for our fa

milie

s at Little

Ha

rbour

Support us ??????7View our other memorable occasions on our Pinterest boards www.pinterest.com/chsw1991

8 Follow us on Facebook www.facebook.com/chsw1991 or Twitter @chsw

In celebration of our Royal visitThe Duchess of Cornwall described Little Harbour as:

“A very, very special place” Here are just a few of the photos taken that capture this joyous occasion.With thanks to: Paul Williams, St Austell Voice; Major Vaughan Magor; Kirsten Prisk Photography.

In ce

leb

ration of our Roya

l visit

Support us ??????9Join or start up a Friends Group www.chsw.org.uk/friends-groups

10

Stories from Little Bridge HouseSurfing with Nick Thorn, cleaning a Shire Horse, Helicopters and Creative Arts are all part of just another week at Little Bridge House where the emphasis is always on enriching the lives of our children.

Flying high with Chivenor air crew

The girls love to dress up

Bath time for Beamish Creating

Butterflies

See how your donations make a difference, visit us on an open day at Little Bridge House 01271 325270

Stories from

Little Brid

ge

House

Support us ??????11Follow us on Facebook www.facebook.com/chsw1991 or Twitter @chsw

Teenage Weekend fun A wide range of exciting activities at accessible family friendly destinations are generously offered by local businesses and enjoyed by our families.

This includes visits to outdoor activity centres where our teenagers are encouraged to have fun and create memorable moments, such as this recent visit to Skern Lodge. Not for the faint hearted!

Charlton Farm family story

12

Jack’s parents Dee and Jamie have always been passionate supporters of CHSW and endeavour to raise funds so other families can receive the same level of care and support. They are doing this through Jackfest.Jack died at the age of 16; his family described his life as full of happiness and joy, despite the difficulties he faced.

Charlton Farm has provided a lifeline for Jack Coogan’s family through many difficult periods. For Jack and countless others it has been a sanctuary to receive one-to-one specialist care in a relaxing, tranquil setting that encourages self-expression and allows children to gain the maximum enjoyment from life.

He was known as a lively character, full of smiles

and loved being around people, sharing laughs and the occasional cheekiness

Making the most of short and precious lives across the South West

Cha

rlton Farm

fam

ily story

Did you know....Our families tell us “The care and love from all of the staff with all the personal touches makes our visits very special. “

Support us ??????

13

Jack was loved

unconditionally by everyone as he warmed the hearts of

all those who met him. He gave tremendous pleasure to all the

people who cared for him during his life.

See how your donations make a difference, visit us on an open day at Charlton Farm 01275 866600

14

From Cornwall to Devon, Somerset and Bristol our supporters, families and their friends continue to be part of a charity that celebrates life and makes the most of every precious moment. We thank you for all your hard work, energy and commitment.

Shoppers go large for CHSW A partnership with Green Lanes Shopping Centre gave our North Devon supporters the chance to play with some big numbers as they cycled more than 874 static miles and built the world’s largest jigsaw. A gigantic £7286 was raised!

Register to help volunteer for an event near you www.chsw.org.uk/events

Reasons to say ‘thank-you’ A wheelie good day out Visitors to the Mid Devon Show were met with an unusual fundraising idea - wheelbarrows full of gifts to purchase. This has raised £1600 and still counting.

Canines on a 9k trek Exeter Quay was filled with waggy tails and pounding paws in our first ever Doggie Trek. Their puppy power raised over £1000.

1,000 miles around Bristol in 10 days Kris and team cycled 100 miles a day to achieve their goal and completed the challenge – gaining tired legs and raising more than £2000 in funds!

Burts Chips Abseil5 members of staff from Burts Chips went over the edge as part of our Bickleigh Viaduct Abseil event, raising over £2000.

Rea

sons to say ‘tha

nk-you’

Support us ??????15For guidance on Gifts in Wills contact 01271 325270

Gifts in WillsOur supporters often mention how being part of the CHSW family enriches their lives. From volunteering in our offices or at events, the ways they help are numerous and vastly beneficial to us.One recently introduced volunteer role is that of Legacy Ambassador.

The Ambassador helps us in our mission to ‘leave a smile for the future’. Wendy Leach is our Ambassador based at Little Harbour and is

on hand to offer guidance on leaving a gift in your Will, a talk,

or a tour of the hospice and show how legacies make such a difference to the work that we do. Legacies are vital to us as they enable us to make plans for the years ahead, something our families are not always able to do. Remembering us in your Will means you will be part of our future. For further information contact our Legacy & Remembrance Officer, Rob Emery, on 01271 325270.

Knitters pull togetherCornish Knitters created colourful wool squares blanketing Lemon Quay, Truro, and raising £1866. Thanks to Nikki Jenkins of Truro Wool who came up with the idea and co-ordinated it all.

A Grand Day out This annual South West tour of Minis has raised a magnificent sum across our hospices over the years. This year ‘s tour raised over £16,000.

It’s a Dog’s Life Roo’s Whippet Tea Party welcomed over 600 dogs to the Port Eliot Dog Festival and made over £4500. Guests came from as far afield as Cheshire to take part.

1016 Could you challenge yourself, for us, this year? www.chsw.org.uk/challenge

Upcoming EventsOctober5th Moonlight Memory Walk , Saltash7th Open Day, Little Harbour6th Royal Parks Half Marathon, London13th Great West Run, Exeter14th Open Day, Little Bridge House16th Firewalk, Marazion20th Portishead Half Marathon21st Open Day, Charlton Farm30th Firewalk, Newquay31st Firewalk, Clarks Village, Street

November2nd Mountain Bike 4 Life3rd Plymouth 10k4th Open Day, Little Harbour8th Firewalk, Barnstaple11th Open Day, Little Bridge House 18th Open Day, Charlton Farm

FIREWALK£20 TO REGISTER and pledged sponsorship of £125

WWW.CHSW.ORG.UK/FIRE

01271 325270

Run, jog or walk

BIDEFORD - 1st December, 1pmST AUSTELL - 1st December, 12pmLAUNCESTON - 15th December, 12pmTAUNTON - 15th December, 12pmBRISTOL - 15th December, 1pm

Be one of hundreds of Santas on our 2K sponsored festive fun runs!

Register online at www.chsw.org.uk/santas 01271 325270 santas@chsw.org.uk

Your local Children’s Hospice shop is…

Remember toWe can claim an additional 25% of what you donate if you Giftaid it. Download a form at www.chsw.org.uk/gift-aid

Find your local shop’s contact details at www.chsw.org.uk/our-shops

3 ways you can help your local shop There are lots of ways to help your local CHSW shop, including:

A bag of donated goods is worth £25 to us.

- That’s enough to pay for medical supplies for a day.

I have been working in the shop for

10 years and still enjoy each day because of the variety it brings.

Working for this local charity is so worthwhile and I appreciate being able to

give something back in a way I relish.

Thanks to all the volunteers and to everyone who donates to

our shops. Please keep supporting us

Clear out your closet and drop off a bag of clothing (we can always recycle it if we can’t sell it)

Request a collection for larger unwanted itemsGive an hour or so a week in your local shop

Jane,Barnstaple Shop Manager

Barnstaple

Bideford

Bristol:Park Street Southville

Little Steps

Honiton

Nailsea

Portishead

St. Austell

Tavistock

Tiverton

Wellington

Exeter:City Shop

Fore Street

Plymouth:City Shop

Mutley Plain

Truro:City Shop

Little Steps

Your local shops

Helston

Totnes

17

Upc

oming

Events / Your loc

al shop

Find your local shop’s contact details at www.chsw.org.uk/our-shops

Donate online or get involved:www.chsw.org.ukFind out how you can be part of this journey to help short & precious lives.

18 Be inspired www.chsw.org.uk/precious-lives-atlantic-challenge

The challenge begins

ATLANTIC C H A L L E N G E

2014

Precious Lives

2 men . 3246 miles . 55 daysgruelling Atlantic Oceanone world recordfor short and precious lives

Daily life can be challenging for the families of life-limited children but we are here to help give them a break. Our 24 hours a day, 365 days a year service enables families to take a well-earned rest, safe in the knowledge that their children are being well looked after by our care teams. The challenges faced by our families are soon to be reflected in the challenge Chris Walters and Elliott Dale are undertaking. In 2014 they will embark on a tough transatlantic rowing challenge, across one of the most unpredictable and dangerous oceans from New York to the Isles of Scilly.

At a time when

we felt completely alone and scared the

hospice helped us through some of our darkest

times; providing support, comfort, reassurance.

- Invaluable.

What our families say about their journey:

A place where a precious child is cared for with as

much love and compassion as a parent could offer.

A date for your diary: 28th Feb 2014,Precious Lives Atlantic Challenge Ball

‘PLAC14 £x’(fill in £1, £2, £5, £10)

to 70070

Text Donate:

Remember to tick the Gift Aid box on the back of this form

The c

halle

nge

be

gins

Support us ??????19

I want Children’s Hospice South West to treat all donations I have made in the previous four years, and all donations I make from the date of this declaration as Gift Aid donations, until I notify you otherwise. I understand that I must pay an amount of United Kingdom income tax and/or capital gains tax (VAT and council tax do not qualify) at least equal to the tax that all charities and CASCs that I donate to will reclaim on my donations in the appropriate tax year (currently 25p for each £1 that you give).

I enclose a cheque/postal order/CAF voucher payable to: Children’s Hospice South West

or please debit my Mastercard Visa Credit Visa Debit Maestro

Name of Card Holder

Card Number Start Date Expiry Date Issue No.

Tel No. (day/eve)

We are now required to ask for your CSC code; this is the last 3 digits on the back of your card: CSC code:

If you would prefer to give this number over the phone please tick here for your security, once payment has been taken we will not retain this code.

Cardholder signature Date................................................................................................................................................................................

If you wish to receive a thank you letter for your donation, please tick here We may wish to contact you in the future. If you do not want to receive any further information, please tick here All the data we hold is gathered and managed in strict accordance with the Data Protection Act (1998). We will not disclose any information supplied by you to any third party organisations. Registered Charity No. 1003314.

Follow us on Facebook www.facebook.com/PreciousLivesAtlanticChallenge2014

I wish to make a one-off donation

Please accept my gift of (Total of above) £ .......................

(Maestro only)

Once you’ve returned this form we will contact you to ask the details of the name(s), colour (Ocean Star) and message (Ocean Companion). Would you prefer to be contacted by email/phone? (Please delete as appropriate)

Return this completed form in the enclosed Freepost envelope. If paying by cheque, we ask that separate cheques are used, i.e. one each for; Raffle tickets; Christmas cards and Precious Lives Atlantic Challenge. Thank you.

Name:

Address:

Postcode:

Tel no.

Email:See

reve

rse

for

deta

ils £(Please tick or fill in another amount)

for £10 OR another amount of Quantity

£(Please tick or fill in another amount)

for £100 OR another amount of Quantity

Registered Charity No. 1003314 Registered in England No. 2620879

Little Bridge HouseRedlands Road, Fremington, Barnstaple, Devon, EX31 2PZ Tel: 01271 325270

Complete the form on the reverse to be part of this incredible journey

Charlton Farm,Charlton Drive, Wraxall, NorthSomerset, BS48 1PE Tel: 01275 866600

Little HarbourPorthpean Road, Porthpean, St Austell, Cornwall, PL26 6AZ Tel: 01726 871800

www.chsw.org.uk

Place an Ocean Star in memory of a loved one, as one of a spray of stars that cover ‘Row4PreciousLives’. For a suggested donation of £10, your pink or blue star will journey with Chris and Elliott across the Atlantic, and will be a permanent part of this incredible world record attempt. A message in memory of your loved one can be placed upon our Ocean Star web page, and we will send you a momento that captures this lovely gesture for you to keep.

Accompany Chris and Elliott on their journey across the Atlantic and form a part of ocean rowing history by becoming their Ocean Companion. For a suggested donation of £100 your name will be written on the inside of ‘Row4PreciousLives’. Your individual message of support will be shared with them on their journey, and will be captured for them on our Ocean Companion web page and in a special commemorative book.

A star on the boat, in memory of your loved oneFor a suggested donation of £10

Your name in the boat travelling the AtlanticFor a suggested donation of £100

ATLANTIC C H A L L E N G E

2014

Precious Lives