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Children's Heart Foundation
Annual Report 2009-2010
Address: Flat A, 5th Floor, 122 Pokfulam Road, Hong Kong Tel : 2553 0331 Fax : 2553 4886 E-mail : [email protected] Website : www.childheart.org.hk
Children’s Heart Foundation
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Table of Contents
Contents Page
Introduction on the Foundation P.2
Services P.3 – P.5
Organizational Structure P.6 – P.8
Message of the Chairlady P.9 – P.12
Notice of Annual General Meeting P.13
Major Members’ Activities 2009/2010 P.14 – P.17
Major Fundraising Activities 2009/2010 P.18 – P.20
Major Medical Exchange Programme 2009/2010 P.21
Statistics P.22 – P.27
Report of Executive Committee P.28 – P.29
Report of the Honorary Auditor P.30 – P.31
Income and Expenditure Statement P.32
Balance Sheet P.33
Statement of Changes in Fund P.34
Cash Flow Statement P.35
Notes on the Financial Statements P.36 – P.47
Children’s Heart Foundation
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Introduction The Children’s Heart Foundation (CHF) was originally formed as a mutual support group for parents with children suffering from congenital heart disease with the support of doctors, nurses and medical social workers at the Cardiac Paediatric Unit of the Grantham Hospital. The parents realized that sharing experiences and information was a great benefit to all concerned. In 1994, the CHF was founded as a registered charitable organization devoted to supporting children suffering from heart disease and their families. Over the 15 years, the Foundation has grown from a small group of volunteers to an organization which has a team of full-time staff and subcommittees specializing in different issues related to children heart disease. Depending entirely on public support and donation, the volunteers and supports are the backbone of the Foundation for continuous success of CHF.
Objectives 1. To raise public awareness about congenital heart disease. 2. To provide financial and psychological support to families with children
suffering from congenital heart disease. 3. To support the development of technology and methods to detect and
treat congenital heart disease.
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Services
1. Financial Support for Families Government subsidies do not cover special catheters, pacemakers, etc and the patients need to afford those expensive treatments and medical equipments by their own means. The CHF has provided support to hundreds of less well-off families through its Medical Financial Support Scheme to ensure children receive appropriate treatment. 2. Purchase of Medical Equipment New technology and medical breakthroughs are an essential part of improving treatment. The CHF helps upgrade existing facilities and services by purchasing the latest high-tech equipment, supplementing the services provided by the public hospitals. 3. Counseling Services All parents expect their baby to be born healthy. When they are told their child has a heart problem, the first reaction is fear; fear of the unknown and fear about the future. Mum and dad are full of questions - What’s wrong with my baby? What will happen next? Why did this happen? What treatment does the child need? The CHF provides counseling and support services for parents who need help. 4. House of The Heart When a child is admitted to hospital for heart surgery or treatment, parents face enormous difficulties and endure great stress. While parents try to look after their hospitalized child as best they can, they also need a place to rest. The House of the Heart (HOH), located just a few minutes walk from Queen Mary Hospital, allows parents to get a good night’s sleep and spend more time with their children. They can freshen up during the day, take a shower or just take time out to relax. It also reduces the amount of time parents spend travelling to and from the hospital.
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Services
5. Educational Programmes Most people have never heard of congenital heart disease, despite it being one of the most common congenital problems among children. Through various educational programmes and exhibitions, the CHF promotes public awareness about heart health and raises support in the community for these special children. The CHF also organises special talks so parents can learn more about caring for children with heart disease, nutritional issues and child development. 6. Parents Support Group There are many different types of problems associated with congenital heart disease and the CHF’s parents support group meets regularly to provide a channel to discuss issues of concern. Caring for these special children can be difficult and stressful, so talking to people who have the relevant experience, knowledge and understanding can give parents a sense of belonging. Parents often feel helpless, so it is a real comfort to be able to share their anxiety with others who have been through a similar experience. The CHF works to promote self help and mutual support between these families. Parents can share their experiences at the wards, in the support group meetings and during other activities. This is an effective way of enhancing communications between parents at a very difficult time. 7. Ward Visits Hospitalisation is always stressful and painful for both the children and their families. Unfortunately, spending time in hospital is a common occurrence for children with heart disease. Ward visits by professional teams and trained volunteers are essential as they stimulate the children’s development and facilitate positive thinking among parents. Volunteers help with artwork, reading and storytelling, while parent volunteers share their personal experiences, giving other parents the confidence to face the challenges ahead.
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Services
8. Developmental Programmes Because of their physical limitations, some children with heart disease encounter learning problems which affect their education, social lives and psychological development. The CHF organises a variety of programmes like the children’s choir, art workshops and leadership training programmes. As they have a lot in common, the children feel comfortable taking part in these activities together. The CHF also organises outdoor and indoor activities such as camping to strengthen the parent-child relationship and boost self confidence. 9. Medical Development And Exchange The CHF brings overseas surgeons and cardiologists to Hong Kong to share their experience with local medical staff. This is of vital importance as it helps staff keep up with all the latest advances in treatment and medical technology. The CHF also sponsors medical staff to receive further training and attend local and overseas seminars and conferences. Through Queen Mary Hospital, the CHF now provides funding so medical staff from mainland China can receive training in Hong Kong. 10. Research
The CHF provides funding for research into congenital heart disease.
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Organizational Structure 1
Executive Committee Members 2009-2010 Hon. Patron : The Hon. Selina CHOW, JP
Hon. Advisors : Mr. Duncan W. PESCOD, JP
: Dr. Lawrence LAI, JP
Hon. Legal Advisor : Mr. Andy KUNG
Chairlady : Ms. Jenny Y.F. CHENG
Vice Chairman : Dr. Adolphus K.T. CHAU
: Ms. Christine W.C. HO
Secretary : Ms. Angela M.Y. LAU
Treasurer : Ms. Monica K.T. WOO
Members : Ms. W.K. AU
: Mrs. Yasmin MAHBOOBANI
: Dr. K.T. WONG
: Dr. T.C. YUNG
: Ms. Christine M.W. YIP
: Dr. David ZWEIG
Hon. Auditor : KPMG
Executive
Committee
Honorary Patron
Honorary Advisors
Honorary Legal
Advisor
Medical Assessment
Sub-committee
Administration & Finance
Sub-committee
Patient, Parent & Volunteer
Support Sub-committee
Fundraising
Sub-committee
Publicity & Publications
Sub-committee
Medical Development &
Exchange Sub-committee
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Organizational Structure 2
Administration and Finance Sub-committee 2009-2010
Fundraising Sub-committee 2009-2010
Co-Chairperson : Dr. David ZWEIG
: Mrs. Yasmin MAHBOOBANI
Member
: Ms. Christie M.S. WO
: Ms. Anna H.M. YAU
Publicity and Publications Sub-committee 2009-2010
Chairperson : Dr. K.T. WONG
Member : Mr. Charles Y. K. LEE
: Mr. Jonathan MARSH
: Ms. Christine M.W. YIP
Medical Assessment Sub-committee 2009-2010
Consultant : Dr. Adolphus K.T. CHAU
: Dr. T.C. YUNG
Chairperson : Ms. Angela M.Y. LAU
Member : Ms. Christine W.C. HO
Chairperson : Ms. Christine M.W. YIP
Member
: Ms. W. K. AU
: Ms. Christine W.C. HO
: Mr. K.S. LEUNG
: Mr. Jack Y.H. LO
: Ms. Monica K.T. WOO
: Mr. Charles K.B. YEE
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Organizational Structure 3
Patient, Parent and Volunteer Support Sub-committee 2009-2010
Chairperson : Ms. Christine W.C. HO
Member
: Ms. W. K. AU
: Ms. Rachel S.P. CHEUNG
: Ms. Helen L.S. HO
: Mr. Nelson C.C. HO
: Ms. K.K. KOON
: Ms. Cinda H.L LAI
: Ms. Connie Y.L. LAU
: Mr. Charles Y. K. LEE
: Mr. K.S. LEUNG
: Mr. Raymond H.C. LEUNG
: Mr. Jack Y.H. LO
: Ms. Lolitter S.K. NG
: Ms. Gigi F.C. SO
: Ms. Sony H.N. SO
: Ms. Suyi F.Y. SO
: Mr. Ken M.K. WONG
: Ms. Monica K.T. WOO
: Mr. Charles K.B. YEE
: Ms. Christine M.W. YIP
: Mr. Henry L.Y. YUEN
Medical Development and Exchange Sub-committee 2009-2010
Chairperson : Dr. Adolphus K.T. CHAU
Member : Ms. W. K. AU
: Ms. Christine W.C. HO
: Ms. Angela M.Y. LAU
: Dr. T.C. YUNG
: Dr. David ZWEIG
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Message of Chairlady
Going from strength to strength
It has been an enormous pleasure to be the Chairperson of the Children’s Heart
Foundation on the occasion of its 15th anniversary. It is a very special year, marked by a
remarkable variety of programmes and celebrations. I am delighted to report that the
CHF is in position of great strength and can look forward to a wonderful future.
I would like to start by reviewing our series of celebrations. Our 15th anniversary gala
dinner held on 29 September 2010 at the Aberdeen Marina Club was a great success.
We were honoured to have Ms. Sandra Lee, the Permanent Sectary of Food and
Health Bureau, as the Guest of Honour. She joined our Honorary Patron, Mrs. Selina
Chow, a founding member of the CHF, Dr. Maurice Leung, the Hospital Chief Executive
of Queen Mary Hospital, Dr. C. C. Luk, and number of other prominent members of the
community. The CHF children’s choir, a Shanghai Tang fashion show, salsa dancing
and live music made it an occasion to remember. We raised over HK$350,000 on the
night.
We have also published a special booklet to celebrate our anniversary. It looks at the
development of the Foundation and includes a collection of moving, inspirational stories
about our children, parents and volunteers. I must thank Mr. Jon Marsh, Mr. Charles
Lee, the editorial group and all the volunteers who contributed to the production of the
booklet. Please make sure you read a copy of this excellent publication.
As well as celebrating the anniversary with CHF donors and supporters, we have of
course also shared the occasion with our members, children and families through a
number of anniversary programmes, including the fun day at Disneyland and a 15th
anniversary camp.
It’s been a busy time for the CHF. We have introduced new services for our parents and
children, including a talk on developmental needs from a psychological point of view,
adventure based camping for young adults, ward visit training workshops, a bakery
workshop, parent-child relationship camping and a variety of different outings.
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Message of Chairlady
Going from strength to strength
Together with the children’ choir, summer camps, heart health talks and other
tailor-made programmes, we are making great efforts to enhance the development of
children and empower our parents to face the challenges of their daily lives.
It is particularly encouraging to report that the exhibition on children’s heart health on
October 23-24 at the Fashion World in Wonderful Worlds of was a great success. About
3,000 people viewed the exhibition and almost 1,000 people participated in the free
medical health check service. We were delighted to have Ms. Toby Leung, Mr. Kanin
Ngo, Ms. Joyce Tang and Ms. Vangie Tang there as exhibition ambassadors and we
would particularly like to thank Ms. Yoyo Mung for her generous support over the year. I
am pleased to share with you that more exhibitions on heart health will be held in the
coming months to educate the public and promote public awareness about children
heart disease.
In line with our mission, the CHF continues to dedicate considerable efforts to medical
services. Following the relocation of the Department of Pediatric Cardiology, we are
delighted to have established a partnership with the Queen Mary Hospital (QMH) in
providing financial support for patients and sponsoring medical equipment for children
with heart disease. The Medical Financial Support Scheme (MFSS) was officially
implemented at QMH in August 2009. The CHF has recently confirmed it will extend the
sponsorship coverage to drug treatment for congenital heart disease to ensure children
receive the appropriate treatment, at the same time easing the financial burden on their
parents. You will no doubt be aware that over the years the CHF has spent a substantial
amount of money on purchasing specialist equipment, including Holter Monitoring
Systems and 24-Ambulatory Electrocardiographic Monitors.
As part of its medical advocacy work, the CHF is pleased to have sponsored leading
surgeon Dr. Victor Tsang to operate on two complicated cases in Hong Kong early this
year. The CHF has also sponsored the training of local medical staff. One of our most
important sponsorship projects is the three-year research study by Dr. Flora Tsang on
the subject of “The impact of volume overload on right ventricular dead cell”. We look
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Message of Chairlady
Going from strength to strength
forward to seeing the important findings from this research that will help diagnose and
treat congenital heart disease.
Thousands of children and their families have benefited from the CHF’s charitable
services. This would have not been possible without the staunch support of our
corporate sponsors, including Quality Health Care Medical Services, Mattel,
Charmonde Watches, Hasbro Far East, the Ohel Leah Synagogue Charity, Yip’s
Chemical Holdings and Swire Resources, to name a few.
In particular, I would like to thank the Nu Skin Enterprises Inc. for their loyal support
since 2003. The Children’s Heart Programme has enabled between seven and 10
children to benefited from homograft treatment each year. I would also like to extend
my sincere heartfelt thanks to Standard Chartered Bank, our very first corporate
sponsor who helped establish the Children’s Heart Foundation. I thank them for their
continued support through various programmes like the bulk mailing campaign, the
SCB flea market donation and credit card bonus point donations. We appreciate the
loyal support of these corporations, who are an important part of our support network.
As you may be aware, the CHF has had a representative on the steering committee of
the Centre of Excellence in Pediatric (CEP) project since 2008. Over the last year, the
CHF has worked hard to reflect the needs of parents and children. Our eventual goal is
to be able to arrange for a social worker and play therapist to help the children in
hospital.
I have not been able to cover all the projects and events of the last year. Nor have I
been able to mention all those who have supported us – there are simply too many of
you. I must, however, express my appreciation and admiration for all your efforts.
Through your support, we have been able to make a difference to the lives of children
suffering from a wide range of congenital heart diseases. Thank you!
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Message of Chairlady Going from strength to strength
As one of the founding members of the Foundation, I never dreamed that one day I
would be the chair. It is indeed a privilege as we have always had strong leadership to
take us forward. Thanks to the contribution of former chairs the foundation has gone
from strength to strength, while always looking for new ways to strengthen our
programmes.
I must admit that the Executive Committee 2009/2010 has put in triple efforts in filling
the gaps and consolidate the status of the Foundation. Those would never be easy
tasks especially for myself, who is just an ordinary parent of two children suffering from
congenital heart disease. I am passionate about making a contribution to helping others
in the same position. Let me say that I would not have been able to achieve anything
without the support of the Executive Committee. First, we are delighted that Yasmin
and David will continue as the chairs of the fund-raising subcommittee. The CHF is
pleased to have Ms. Angela Lau contributing her talent, valuable ideas and experience
to the work of the CHF. Together, they are as important as the petrol that gives energy
to the engine of a car.
Equally important, we are glad to have the support of the medical professionals who
provide advice and suggestions, helping the advocacy work of the CHF. All the
programmes, events and projects that we carry out depend on the contributions from a
wide variety of people. Many of them, especially our parents, patients and the
volunteers, work tirelessly to make our events successful and ask nothing in return.
Their selfless dedication, hard work and commitment to the children are truly
inspirational.
Given the complicated situation of my son’s heart problem, I care about even the
smallest development related to the treatment of heart disease and any progress that
can benefit our special children. My heart is committed to every child with heart disease
and their families, no matter what their country of origin or background.
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Message of Chairlady Going from strength to strength
Looking ahead, I am confident that the CHF is well placed to continue to expand its
range of activities in a measured and steady manner. I am very proud to share that our
next mission is to set up our Parents Resource Centre, a convenient place for parents
and patients to meet and obtain help and support.
Finally, I want to thank all the members of the Executive Committee, our parents,
children and other supporters for their efforts over the year. If I have not covered
everyone who has been involved, forgive me. All I can say is that while you may be
unsung, your efforts are most definitely recognised and greatly appreciated.
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Members’ Activities 2009/2010
Year 2009
Month Events
Feb Eugene Group-Children’s Educational Exhibition
Feb Talk: More on Congenital Heart Disease
Feb One World, One Heart-
Card Design Competition and Presentation
Mar New Year Gathering 09 Healthy Heart
Mar Afternoon Tea Gathering
Mar “Friends of CHF” Volunteer Launching Ceremony
Apr Toy Bank Children’s Fun Day
Apr Happy Easter Cheers
May Children Charities Carnival 2009
May Training Workshops for CARETEAM and Play with Love Team
May 15th Anniversary-Fun Day at Disneyland
May Be a little Cook
Jun-Jul Workshop: Know about the Service Target
Jul Wonderful Healthy Family Day
Jul-Aug Super Kids-Multiple Intelligence Development Group
Jul-Dec CHF Children Choir
Aug Summer Camp: Appreciation Makes Life Easy
Sept Promotional Talk on CHF
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Members’ Activities 2009/2010
Year 2009
Month Events
Sept Annual General Meeting 2008/2009
Sept Mattel’s Ocean Park Visit
Sept Mattel’s Cooking Fun
Oct Mattel’s Sharing Party
Oct Cook For You
Dec Camp: Let's work for future together
Dec Christmas Party 2009
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Members’ Activities 2009/2010
Year 2010
Month Events
Jan Friends of CHF : Presentation Ceremony and Gathering
Feb New Year Gathering
Mar Caring Company Exhibition
Mar Toy Bank Children Fun Day By HK Productivity Council
Apr Talk: Basic First Aid and CPR for children
Apr Healthy Life Camp
Apr Visit to Noah's Ark
Apr We Can: Visit to Yakult Factory
May Peegaboo Group-Baby, Children & Family Expo
May Disneyland
May Adventure Camp for F.1-F.4
June Training Workshop for ward visit
June Leadership Training Adventure Camp
June Meet in Disneyland
July Nu Skin -the Works of Dessert
July Bakery Fun
July Summer Camp
July Overnight Adventure Camp
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Members’ Activities 2009/2010
Year 2010
Month Events
Aug We Can: Making Pizza
Aug Ocean Park: Ocean Explorer
Oct Visit to Cathay Pacific City
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Fundraising Events 2009/2010 Year 2009
Month Events
Jan NE Mountain Marathon 2009
Apr Bulk Mailing Campaign 2009-
Hong Kong And China Gas Company Limited
May Bulk Mailing Campaign 2009-
DBS Bank(Hong Kong) Limited
Apr Disneyland EARS Contribution
May Children Charities Carnival 2009
Jul Goldmans Sachs Donation Scheme
Jul Bulk Mailing Campaign 2009-
Standard Chartered Bank (Hong Kong) Limited
Aug Charmonde Donation Scheme
Aug Christie Wu Birthday Donation
Oct Richard Cordon Birthday Donation
Nov Heart-to-Heart Charity Walk 2009
Nov Bulking Mailing Campaign with Standard Chartered
Bank (HK) Ltd.
Dec St. Thomas Catholic Kindergarten Christmas
Bazaar
Dec Charity Sale of Greeting Cards
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Fundraising Events 2009/2010 Year 2009
Month Events
Jan-Dec Standard Chartered Bank-
Credit Card Bonus Point donation program
Jan-Dec Corporate Donation Project 2009
Jan-Dec SCB Flea Market Donation
Jan-Dec Bulking Mailing Campaign with HK and China Gas
Company Ltd.
Jan-Dec Bulking Mailing Campaign with DBS Bank
Jan-Dec Placing CHF Donation Box
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Fundraising Events 2009/2010
Year 2010
Month Events
Jan North East Mountain Marathon 2010
Mar South Island School
The Innovation Fashion Show
May Learning Plus 10th Anniversary Charity Party
Sept CHF 15th Anniversary Gala Dinner
Jan-Dec Corporate Donation Project 2010
Jan-Dec SCB Flea Market Donation
Jan-Dec Placing CHF Donation Box
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Medical Training and Development Programme
2009/2010 Year 2009
Date Programme’s Projects
Jul 2009 CHF Medical Training Project 2009-Cardiac Nursing Course (Pre-specialty level)
Year 2010
Date Programme’s Projects
Mar 2010 Medical Exchange Programme-Dr. Victor Tsang Visit
April 2010 Sponsorship on a Medical Research: The Impact of Volume Overload on Right Ventricular Cell Death.
May 2010 Medical Exchange Programme-Dr. Victor Tsang Visit
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Statistics Report – 1
Expenditure on Sponsorship for Medical Financial Support Scheme 1995-2009
Remarks: 1) Relocation of Hospital decreased the number of operations. 2) The numbers of operations and funding varies according to the cases and
operation.
金額 Amount
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Statistic Report – 2
Spending on Medical Financial Support Scheme Remarks: 1) Most the beneficiaries shall pass the mean test conducted by the medical social
workers. 2) The Nitric Oxide treatment was initiated by the CHF. The year of evidence proved
the effectiveness of the treatment that the Government took up the responsibility from the CHF in 2007.
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Statistic Report – 3
Distribution of Sponsorship on Medical Aspects in 2009
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Statistic Report - 4
Number of Guest Nights & Cumulative Guest Nights of House of the Heart
2001 2002 2003 2004 2005 2006 2007 2008 2009
使用人次 775 1,036 723 860 1,119 1,105 858 899 1,729
Number of Guest Nights
慮積使用人次
775 1,811 2,534 3,394 4,513 5,618 6,476 7375 9104 Cumulative Number of Guest
Nights
人數 No. Of Guest Night
年份 Year
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Statistic Report - 5
Income and Expenditure of House of the Heart
2001 2002 2003 2004 2005 2006 2007 2008 2009
全年支出
Yearly Expenditure $269,106 $214,716 $212,840 $216,473 $218,938 $292,647 $178,250 $286,762 $402,720
全年收入
Yearly Income $39,660 $59,398 $42,100 $54,580 $69,980 $71,830 $54,800 $62,250 $119,230
金額 Amount
年份 Year
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Statistic Report - 6
Expenditure on Educational Programme & Members’ Activities
金額 Amount
年份 Year