ceo sean murray vision: to cure mitochondrial disease and to provide support to patients and their...
TRANSCRIPT
CEOSean Murray
Vision:
To cure mitochondrial disease and to provide support to patients and their families
until a cure is found
Mission:
To fund research into mitochondrial disease
To support sufferers of mitochondrial disease & their families
To educate the general public & the medical profession about mitochondrial disease
research
AMDF PhD Research Scholars
Paula Minal Matt
Ben (this is not really Ben)
Hayley Nicole
Mitochondrial DiseasePatient Registry
amdf.org.au/mitoregistry
support
www.amdf.org.au
education
AMDF Ambassadors
get involved
Sunday 29 June 2014www.stayinbedday.org.au
Sunday 19 October 2014www.bloodylongwalk.com.au
14-20 September 2014
www.gmdaw.org
14-20 September 2014
www.gmdaw.org
Distribute a fact sheetCreate a YouTube videoEmail 10 peopleWrite to your local, state and federal politicianContact your local newspaperContact your local radio stationMake mitochondria shaped biscuitsMake a poster…
Point 1:1 in 200 people (over 110,000 Australians) carry genetic mutations and are at risk of developing mitochondrial disease
Previous Current
1:250
1:200
Point 2:One Australian child born each week will develop a severe or life threatening form of mitochondrial disease
Point 3:There is no cure and few, if any, meaningful treatments for mitochondrial disease. Research is vital.
Faces ofMitochondrial Disease
14-20 September 2014
www.gmdaw.org