catherine hartmann secretary general of the european copd coalition- 8th european patients'...
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Catherine Hartmann
Secretary General of the European COPD Coalition
Member of the European Chronic Disease Alliance8th EU Patients Rights Day 12-13 May
Chronic diseases’ networks added value in policy making Different successful models to networking
The European Chronic Disease Alliance (ECDA)
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The European Chronic Disease Alliance (ECDA)
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ECDA – a key stakeholder that brings value
Cancer
CVDs
Allergies
COPD & asthma
Kidneydiseases
DiabetesHCPS
Patients
Care takers
Liverdiseases
Researchers
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ECDA’s structure• Association de fait• Full and Associate members• Unanimously adopted decisions• Professional secretariat
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Why use advocacy?
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The burden of chronic diseases
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Benefits of Stakeholders involvement in response to Chronic Diseases• For the EU policymakers
• For the EU stakeholders
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What ECDA does
Drafting white papers and statements, providing input to consultations, sending letters, taking part in an EU Funded project, press articles – advocacy tools are numerous
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What ECDA does - 2 Meeting with key EU officials- and in particular, directors & heads of unit at the DG SANCO:
DG SANCO representatives
EU Commissioner for health, Tonio Borg
EU health award, Gastein 2010
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ECDA Call for Action
Urgent political action is needed to reduce the human, social and economic burden of chronic diseases.
We, as ECDA, representing millions of patients and over 100,000 health professionals call for:
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EU framework on Chronic Diseases
EU a
dded
-val
ue
in collaboration with relevant stakeholders
by 2017Intervene on health
determinants
Incorporate targets
Invest in prevention
Strengthen cooperation
Encourage citizens to make healthy choices
Ensure availability of
comparable data
Enhance cooperation on
research
Strengthen monitoring and
evaluation
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To recap – a Key Political Momentum for CDsECDA five key Recommendations1. The EU must adopt a comprehensive framework on chronic diseases that
leverages EU and MS regulatory competences and resources in all policies.2. The EU must support MS in adapting health care systems to respond to the
growing burden of chronic diseases, ageing population and increasing prevalence of co-morbidities.
3. The EU should introduce population-wide measures to reduce the key risk factors.
4. Successful and proven harm reduction policies should also remain in place in the MS and be properly resourced.
5. Monitoring and evaluating actions for chronic diseases should encompass establishing EU-wide surveillance and screening programmes (EU registries).
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Thank youECDA
Rue du Luxembourg 22-24 I 1000 Brussels | BelgiumPhone: +32 2 213 13 12
E-mail: [email protected]