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Meeting Call-in Number – (888) 921-8686 Meeting ID Number – 103-120-2607 California Children’s Services Program Redesign Redesign Stakeholder Advisory Board Meeting #2 Focus: Formation of Technical Workgroups Friday, January 23, 2015 10:00am – 4:00pm AGENDA California State Lottery – Pavilion 700 North 10th Street, Sacramento, CA 95811 10:00-10:30 Registration, Coffee 10:30-10:50 Welcome and Purpose Statements Overview of Today’s Meeting Focus Dylan Roby or Jessica Padilla, UCLA Goals and Considerations for the Redesign Discussions CCS Data Availability Anastasia Dodson, DHCS Louis Rico, DHCS 10:50-11:10 Vision for the CCS Program, Survey Results, and Technical Workgroup Topics Dylan Roby, UCLA Jess Schumer, UCLA 11:10-12:10 CCS Program Components that are “Working Well” Facilitated discussion about specific aspects of the CCS program that are working well, based on survey results, Stanford data analysis, and RSAB input Moira Inkelas, UCLA Wrap-up Dylan Roby, UCLA

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Page 1: California Children’s Services Program Redesignhealthpolicy.ucla.edu/Documents/Spotlight/Complete RSAB Member...California Children’s Services Program Redesign . ... Santa Cruz

Meeting Call-in Number – (888) 921-8686

Meeting ID Number – 103-120-2607

California Children’s Services Program Redesign

Redesign Stakeholder Advisory Board Meeting #2

Focus: Formation of Technical Workgroups

Friday, January 23, 2015

10:00am – 4:00pm

AGENDA California State Lottery – Pavilion 700 North 10th Street, Sacramento, CA 95811

10:00-10:30 Registration, Coffee

10:30-10:50 Welcome and Purpose Statements

Overview of Today’s Meeting Focus Dylan Roby or Jessica Padilla, UCLA

Goals and Considerations for the Redesign Discussions

CCS Data Availability Anastasia Dodson, DHCS Louis Rico, DHCS

10:50-11:10 Vision for the CCS Program, Survey Results, and Technical Workgroup Topics

Dylan Roby, UCLA Jess Schumer, UCLA

11:10-12:10 CCS Program Components that are “ Working Well”

Facilitated discussion about specific aspects of the CCS program that are working well, based on survey results, Stanford data analysis, and RSAB input

Moira Inkelas, UCLA

Wrap-up Dylan Roby, UCLA

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12:10-12:40 Lunch Break

12:40-1:40 CCS Program Components that “Can Be Improved”

Facilitated discussion about specific aspects of the CCS program that can be improved based on survey results, Stanford data analysis, and RSAB input.

Dylan Roby, UCLA

Wrap-up Dylan Roby, UCLA

1:40-1:50 Break, Light Refreshments

1:50-2:50 Additional information Needed to Make Decisions

Facilitated discussion about what information is needed to make decisions and what

topics should be addressed by workgroups for the CCS Program

Wrap-up

Dylan Roby, UCLA

2:50-3:15 Reflections about the Goals identified for the CCS Program & CCS Population Jess Schumer, UCLA Louis Rico, DHCS

3:15-3:35 RSAB Members Questions and Comments

Moderator: Dylan Roby, UCLA

3:35-3:55 Public Comments

Moderators: Dylan Roby, UCLA and Louis Rico, DHCS

3:55-4:00 Wrap-Up, Closing and Next Steps

Dylan Roby, UCLA

Louis Rico, DHCS

Page 3: California Children’s Services Program Redesignhealthpolicy.ucla.edu/Documents/Spotlight/Complete RSAB Member...California Children’s Services Program Redesign . ... Santa Cruz

State of California—Health and Human Services Agency

Department of Health Care Services

TOBY DOUGLAS DIRECTOR

EDMUND G. BROWN JR. GOVERNOR

Systems of Care Division 1515 K Street, Suite 400, Sacramento, CA 95814

P.O. Box 997413, MS 8100 Sacramento, CA 95899-7413 (916) 327-1400

Internet Address: www.dhcs.ca.gov

Department of Health Care Services California Children’s Services (CCS) Redesign Goals

January 20, 2015 Consistent with the DHCS Stakeholder Engagement Initiative, the CCS stakeholder process is designed to openly engage in communication with stakeholders for the purpose of improving health care delivery and quality of care to CCS eligible children. This process is also intended to embrace the core values embodied by the Triple Aim: better health, better health care, and lower costs. The CCS Redesign goals listed below are provided to the CCS Redesign Stakeholder Advisory Board (RSAB), to restate and clarify the goals of the CCS redesign process.

1. Implement Patient and Family Centered Approach: Provide comprehensive

treatment, and focus on the whole-child rather than only their CCS eligible

conditions.

2. Improve Care Coordination through an Organized Delivery System: Provide

enhanced care coordination among primary, specialty, inpatient, outpatient,

mental health, and behavioral health services through an organized delivery

system that improves the care experience of the patient and family.

3. Maintain Quality: Ensure providers and organized delivery systems meet

quality standards and outcome measures specific to the CCS population.

4. Streamline Care Delivery: Improve the efficiency and effectiveness of the CCS

health care delivery system.

5. Build on Lessons Learned: Consider lessons learned from current pilots and

prior reform efforts, as well as delivery system changes for other Medi-Cal

populations.

6. Cost-Effective: Ensure costs are no more than the projected cost that would

otherwise occur for CCS children, including all state-funded delivery systems.

Consider simplification of the funding structure and value-based payments, to

support a coordinated service delivery approach.

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California Children’s Services

Redesign Stakeholders Advisory Board

David Alexander, MD President & CEO Lucile Packard Foundation for Children’s Health

Maya Altman CEO Health Plan of San Mateo

Nick Anas, MD President Children's Specialty Care Coalition, Pediatrician in Chief, Director Pediatric Intensive Care Unit CHOC Children's Hospital

Dyan Apostolos Assistant Director of Public Health Monterey County Health Department

Edward A. Bloch, MD Medical Director Children’s Medical Services, L! County

Amy Carta Assistant Director Santa Clara Valley Health & Hospital System

Representing: California Association of Public Hospitals and Health Systems

Kris Calvin CEO American Academy of Pediatrics, CA

Athena Chapman Director, Legal and Regulatory Affairs California Association of Health Plans

Richard Chinnock, MD Vice President California Specialty Care Coalition

John Patrick Cleary, MD Vice President / President Elect California Association of Neonatologists

Stuart Cohen, MD Chair, California District American Academy of Pediatrics

Arlene Cullum Director, Women’s !nd Children’s !mbulatory Services Sutter Health

Devon Dabbs Executive Director Children’s Hospice & Palliative Care Coalition of C!

Karen Dahl, MD Vice President of Quality and Safety Valley Children's Hospital

Juno Duenas CMA Representative Family Voices

Chris Dybdahl California Children’s Services Administrator Santa Cruz County

James Gerson, MD Vice President & Senior Medical Director HealthNet

Kelly Hardy Senior Managing Director, Health Policy Children Now

Domonique Hensler Director, Care Redesign Planning for RCHSD & Network Rady Children’s Hospital – San Diego

Jennifer Kent Executive Director Local Health Plans of California

1

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California Children’s Services

Redesign Stakeholders Advisory Board

Tom Klitzner, MD Chair, Cardiac Technical Advisory Committee California Children’s Services, UCL!

Ann Kuhns President & CEO California Children’s Hospital Association

Tony Maynard Board Member / Patient Hemophilia Council of California

Susan Mora CMS Program Chief Riverside County Department of Public Health

Tony Pallitto California Children's Services Administrator Kern County Public Health Services Department

Richard Rabens, MD Medical Director, Medi-Cal and State Programs The Permanente Medical Group / Kaiser Permanente Northern California

Judith Reigel Executive Director County Health Executives Association of California

Katie Schlageter California Children’s Services !dministrator Alameda County

Ed Schor, MD Senior Vice President Lucile Packard Foundation for Children’s Health

Laurie Soman Director Children’s Regional Integrated Service System (CRISS)

David Souleles Deputy Agency Director Orange County Health Care Agency

Abbie Totten Director, Government Programs and Strategic Initiatives Health Net, Inc.

Amy Westling Director of Policy Association of Regional Center Agencies

2

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For General Inquiries: [email protected]

California Children’s Services

Program Redesign Team Dylan H Roby Principal Investigator Assistant Professor, UCLA Fielding School of Public Health, Department of Health Policy and Management Program Director, UCLA Center for Health Policy Research

[email protected] Jessica Padilla Project Manager UCLA Center for Health Policy Research

[email protected] Michaela Ferrari Research Analyst UCLA Center for Health Policy Research

[email protected] Nathan Moriyama Research Assistant UCLA Center for Health Policy Research

[email protected] Neal Halfon Co-Principal Investigator Director, UCLA Center for Healthier Children, Families & Communities Professor of Pediatrics, UCLA School of Medicine

[email protected] Moira Inkelas Investigator Assistant Director, UCLA Center for Healthier Children, Families, & Communities Assistant Director, Child and Family Health Program Associate Professor, UCLA Fielding School of Public Health, Department of Health Policy and Management

[email protected]

Lee M Sanders Expert Consultant Co-Director, Stanford's Center for Policy, Outcomes, and Prevention (CPOP) Associate Professor of Pediatrics, Stanford University School of Medicine Paul H Wise Expert Consultant Co-Director, Stanford's Center for Policy, Outcomes, and Prevention (CPOP) Richard E. Behrman Professor of Child Health and Society and Professor of Pediatrics and Health Policy, Stanford University School of Medicine

Lisa Chamberlain Expert Consultant Associate Director, Stanford's Center for Policy, Outcomes, and Prevention (CPOP) Associate Professor of Pediatrics, Stanford University School of Medicine

Jess Schumer Research Expert and Consultant Pediatrician and Fellow, Health Resources and Services Administration (HRSA) Maternal and Child Health Training Program

Mimi Choi Research Expert and Consultant Pediatrician and Fellow, Health Resources and Services Administration (HRSA) Maternal and Child Health Training Program

Peter Harbage Expert Consultant President, Harbage Consulting Mia Orr Expert Consultant Principal Consultant, Harbage Consulting

Page 7: California Children’s Services Program Redesignhealthpolicy.ucla.edu/Documents/Spotlight/Complete RSAB Member...California Children’s Services Program Redesign . ... Santa Cruz

Key Components of a System for Publicly Financed Care of CSHCN in California

Disagreement

with the content

of this document

is anticipated and

encouraged.

Issue Brief September 2014 KEY COMPONENTS OF A SYSTEM FOR PUBLICLY FINANCED

CARE OF CSHCN1 IN CALIFORNIA by Edward Schor, MD, Lucile Packard Foundation for Children’s Health

The future of the state’s CCS program has spawned numerous but often unfocused discussions. In order

to help organize and focus forthcoming discussions, this paper, a System for Publicly Financed Care of

CSHCN in California, is provided as a proposal to which stakeholders can react.

The paper attempts to present a coherent plan for a system for CSHCN while

identifying the key issues and decisions that might arise as the system is

developed. Some of the items represent current approaches, while others suggest

alternative ones. Some are more easily implemented than others. Disagreement

with the content of this document is anticipated and encouraged, as its purpose is to foster productive

discussion. Discussion should begin with the proposed Principles and Goals, because without clarity and

agreement on those it will be difficult to discuss subsequent items. Once the remaining components have

been agreed upon, responsibilities for processes will need to be determined.

PRINCIPLES AND GOALS

A single health care financing system that promotes integration of services to meet all the child’s

healthcare needs

A statewide, regionalized system of comprehensive care services

Equity of eligibility, access and benefits regardless of child’s residence

Family-centered system with medical homes for all children

Easy to access services and supports

Continuity of care with health care providers

Culturally competent care

Common, transparent performance metrics across the system

Health plans and providers held accountable to meet quality and performance standards

Constantly improve quality of care by all service providers

Begin system change by focusing on coordinating care and services

1 The definition of children with special health care needs (CSHCN) used here is that recommended by the federal Maternal

and Child Health Bureau but may exclude the “at risk” population included in that definition.

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Key Components of a System for Publicly Financed Care of CSHCN in California

www.lpfch-cshcn.org

SYSTEM STRUCTURE

An organized delivery system capable of meeting all of the medical care needs of a child for

whom it has assumed responsibility

A clearly articulated governance model incorporating participating providers and meaningful

consumer participation

Regionalized services

Maximized integration of services and functions

Statewide registry for eligible CSHCN including those receiving care from Regional Centers

Designated special care centers and quaternary centers of excellence

Required inclusion of children’s and university hospitals as part of health plan provider panels

Complex primary care clinics eligible to qualify as special care centers

Uninsured children covered by counties buying Medi-Cal equivalent coverage from managed

care organizations

ADMINISTRATION

Client Eligibility

- Standardized screening for eligibility for enhanced services

- Eligibility process includes consideration of both diagnoses and functional assessment of

acuity and complexity

- Time-limited conditions excluded

- Procedures designed to maximize inclusion of children who would benefit

- Extend eligibility until age 26 years to align with ACA policy

- Neonatal services covered by Medi-Cal except when CCS eligible condition present

- Standardized determination across public programs

Provider Eligibility

- Certification/empanelment authority

Management: State DHCS Responsibilities

- Centralized, standardized eligibility determination, service authorization and utilization

review

- Maintain statewide patient registry

- State and regional systems coordination: Use memoranda of understanding among health

plans, public health, CHDP, Early Start, Regional Centers, Mental Health clinics, Medi-

Cal, home health care and social services

- Collaborate with Medi-Cal Managed Care office to ensure that contracts with health

plans assure the availability of services needed by CSHCN

- Liaison with health plans, professional associations and other statewide service

organizations and agencies serving CSHCN

- Regularly convene provider and consumer advisory committees

- Regularly updated health care needs assessment of the populations to be served

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3

Key Components of a System for Publicly Financed Care of CSHCN in California

Lucile Packard Foundation for Children’s Health

- Proactive state leadership to improve system performance including access, quality and

value

- Standardize care processes, e.g., referral, care planning, discharge procedures, and

transition planning and processes

- Assure provision of technical assistance to counties and provider practices serving

CSHCN

- Monitor performance, measure quality, and issue regular public reports

- Monitor population health of CSHCN

- Site visitation and certification of providers

- Maintain up-to-date registries of providers and of their capacities to accept new patients

and of community services frequently used by CSHCN

- Offer ombudsman/consumer relations services

- Streamline reimbursement process

- Offer billing assistance to providers

- Medical therapy units operated by counties or regionalized

Management: Regional or County Public Health Department Responsibilities

- Monitor access to care

- Need-based care coordination, case management and navigation assistance

- Provide technical assistance to provider practices

- Certification review

- Medical Therapy Unit operation

Financing

- Payment adjusted for risk and need

- Promotes team care and shared management

Policy

- Legislative liaison

- Policy development in collaboration with Medi-Cal Managed Care office

- A single health care financing system that promotes integration of services to meet all the

child’s healthcare needs

PROVIDERS

Networks of providers, including primary and pediatric subspecialty care, oral and mental health

professionals, hospitals and centers of excellence adequate to meet the needs of children in a

timely, efficient and effective manner

Medical home designation based on established criteria whether primary or subspecialty care

provider

Meaningful use qualified electronic health record capability

Provider compensation and performance management systems to reward providers for improved

quality of care

Page 10: California Children’s Services Program Redesignhealthpolicy.ucla.edu/Documents/Spotlight/Complete RSAB Member...California Children’s Services Program Redesign . ... Santa Cruz

Key Components of a System for Publicly Financed Care of CSHCN in California

www.lpfch-cshcn.org

BENEFITS AND SERVICES

EPSDT benefits with special attention to:

- Chronic care management

- Wrap-around service

- Habilitative services

- Primary, secondary and tertiary preventive care

- Durable medical equipment

- Self-management support

- Physical and occupational therapy

- Oral health

- Translation services

- Transportation

- Mental health and behavioral health service parity with physical health services

Enrollment and annual needs assessment for care planning

Care plans for all children

Benefits tied to needs assessment and some provided in a tiered fashion

Neonatal high-risk follow-up based on needs/risk assessment

All children have a medical home

Care coordination as a tiered service provided at the practice and plan levels

Parent-to-parent navigation assistance

Co-management between primary care and specialty care providers

Provider-to-provider consultation

Family support related to care of CSHCN

Coordinated transition planning and services

Home visits as part of care coordination

Health care in homes, child care facilities and schools

Step-down services after hospital discharge

Home and community services

Respite care

Long term care

Palliative care

Coordinate with in-home health services and long-term care services and other service providers

Access to special care centers and centers of excellence

Electronic care management: e-mail, telephone consultation, telehealth

Out-of-plan provider access

QUALITY ASSURANCE

Maintain and expand criteria for empaneled providers and special care centers

Standard performance measures for systems and providers across counties and the state

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5

Key Components of a System for Publicly Financed Care of CSHCN in California

Lucile Packard Foundation for Children’s Health

Application of evidence-based, quality measures specific to children with chronic health

problems

Monitor equity and performance related to access to care, health care utilization, quality of care,

satisfaction and experience with care, health care expenditures, health outcomes and impact on

families

Requirement of ongoing quality improvement activities by health plans and providers including

special care clinics

Assessment of cultural sensitivity of care

Family involvement in program and policy activities related to quality of care

Health plans responsible for enrollee population health measures and quality

INCENTIVES

Provide technical assistance to support practice transformation and quality improvement

Tiered incentive for medical homes depending on capabilities or quality

Financial incentives and technical assistance for EMR adoption

Financial incentives for co-location of medical and behavioral health care services

Financial incentives to licensed providers in health professional shortage areas

ADDENDUM

The plan described above is intended to offer improved care to children with special health care needs,

but it falls short in two important ways. First, it does not directly address the health care of CSHCN who

are privately insured. Second, it does not come close to offering a plan for a unified system to promote

the health and well-being of children. The fragmentation of services, most notably the independent

operation of medical, mental, dental and especially developmental services is highly frustrating for

families. It interferes with the provision of comprehensive, coordinated, high-quality care for special

needs children and hampers opportunities to hold agencies and service providers accountable. The

separate financing inherent in this fragmentation no doubt duplicates administrative costs and some

services and raises the costs underwritten by the state’s taxpayers. It should be an aim of state

government and advocates to work toward the creation of the integration of services for children.

Edward Schor, MD, is senior vice president at the Lucile Packard Foundation for Children’s Health.

ABOUT THE FOUNDATION: The Lucile Packard Foundation for Children’s Health works in alignment with Lucile Packard

Children’s Hospital and the child health programs of Stanford University. The mission of the Foundation is to elevate the priority

of children’s health care through leadership and direct investment. The Foundation is a public charity, founded in 1997. To learn

about the Foundation’s work to improve the system of care for Children with Special Health Care Needs, go to www.lpfch-

cshcn.org. To see data about CSHCN in California, visit http://www.kidsdata.org/topic/14/demographics-of-children-with-

special-needs/summary

CONTACT: 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, [email protected], (650) 497-8365