byu smart & connected 2012

SMART AND CONNECTED HEALTH

Nov 29, 2012

Bradford W. Hesse, PhDChief, Health Communication and Informatics Research Branch

Tuesday, October 29, 2013

President’s Cancer Panel Report (2007-2008)

Work together across National Cancer Program

How do we stand up to cancer? Who will make this happen?


The National Cancer ProgramTuesday, October 29, 2013

Question:

Is there a mechanism for collective action? How can we connect the “National Cancer

Program?”


Betty White, Saturday Night LiveMay 8, 2010


Founded: February 4, 2004

Registered Users: 955,000,000

Distribution: World wide

Reach: 45 % global Internet*

* Total Global Internet Users (December 31, 2011): 2,267,233,742

Founded: January 15, 2001

Registered Users: 35,000,000

Available in: 285 languages



Founded: September 4, 1998

Revenue: $37.905 billion

Distribution: World wide


Founded: February 14, 2005

Entries: 48 hours / minute

8 years / per day

Available in: 54 languages



TIME Endorses Participative Media as the Accomplishment of year (2005)



Characteris*cs of new Web• Pla$orms for Par+cipa+on

• Harnessing “Collec+ve Intelligence”

• Data as the new “Intel Inside”



Characteris*cs of new Web• Pla$orms for Par+cipa+on

• Harnessing “Collec+ve Intelligence”

• Data as the new “Intel Inside”

APPLIED TO HEALTH?Tuesday, October 29, 2013

• Invested $50 million in Parkinson’s research

• Started public blog on LRRK2• Is leveraging the power of “big data” to accelerate the science

• Helped found, with wife Anne Wojcicki, 23andMe

Using the Power of Massive Parallelism:“Citizen Science”


Traditional Model

• Hypothesis

• Studies

• Data aggregation

• Analysis

• Writing

• Submission

• Acceptance (NEJM)

• Publication

Time Elapsed: 6 years


Genetics Initiative

• Tool construction

• Recruitment

• Analysis

• Presentation

Time Elapsed: 8 months


A Fourth Paradigm in Science?A New Era in Health?


President’s Council of Advisors on Science and Technology (PCAST)



Role of Health I. T.

• Improve quality of care for individual patient

• Engage patients in their own care

• Create infrastructure for clinical studies

• Improve population-based knowledge

• Develop new tools for medicine

• Increase administrative efficiency



Designing a Digital Future

• Networking and Information Technology R & D (NITRD) essential for economic competitiveness

• NITRD crucial for achieving national / global priorities -- chief among these is Health

• Advances in NITRD needed to accelerate discovery in other sciences

• NSF and DHHS should work together to fund a new science of Human Computer Interaction with respect to NITRD


Connected People: The National Health Information Infrastructure*

* see Hesse BW. Harnessing the power of an intelligent health environment in cancer control. Stud Health Technol Inform. 2005;118:159-176.


Connected People: Personal, Provider, Population


Source: Hesse BW. Enhancing Consumer Involvement in Health Care. In: Parker JC, Thornson E, eds. Health Communication in the New Media Landscape. New York, NY: Springer Publishing Company; 2008:119-149.


How do we promote personal engagement?



Health Information National Trends Survey (HINTS)

http://hints.cancer.gov/

Source: Hesse, B. W. (2010). Health Communication in a World Gone Flat: Programmatic Overview of HINTS. In L. J. Finney Rutten, B. W. Hesse, R. P. Moser & G. L. Kreps (Eds.), Building the Evidence Base in Cancer Communication. Cresskill, NJ: Hampton Press.


http://hints.cancer.gov



See: Rutten LF, Moser RP, Beckjord EB, Hesse, BW, Croyle RT. Cancer Communication: Health Information National Trends Survey. Washington DC: National Cancer Institute. 2007.

*51.6% looked for self*45.7% looked for others

2003*




*51.6% looked for self*45.7% looked for others

2003* 2005*

*58.4% looked for self*59.4% looked for




Preferred Source:Imagine you had a strong need to get information about cancer. Where would you go first?




Actual Source:The most recent time you wanted information on cancer, where did you go first?



Source:Hesse BW, Moser RP, Rutten LJ. Surveys of physicians and electronic health information. N Engl J Med. Mar 4 2010;362(9):859-860.



Source: Chou WY, Hunt YM, Beckjord EB, Moser RP, Hesse BW. Social media use in the United States: implications for health communication. J Med Internet Res. 2009;11(4):e48.

0%

10%

20%

30%

40%

50%

60%

70%

80%

18-24 25-34 35-44 45-54 55-64 65+

Age

% I

nte

rnet

Use

rs

Online Support Bloggers Social Networking2008*




Self-Determination TheoryAutonomyMasteryConnectedness





Wired Magazine;“The Nike Experiment: How the Shoe Giant

Unleashed the Power of Personal Metrics”





Caring Bridge Creates Communities of Support



Clinical Trial currently underway in Boston, MA

Benefits• “Many eyes” on record to improve quality

• Memory cue for pa+ent aQer exam

• Personal right of pa+entTensions• Is some informa+on “Toxic?”• Will doctors be unnecessarily restricted in what they write?



Health Record as “Wiki”

Benefits• “Many eyes” on record to improve quality

• Memory cue for pa+ent aQer exam

• Personal right of pa+entTensions• Is some informa+on “Toxic?”• Will doctors be unnecessarily restricted in what they write?



Source: www.HealthIT.govTuesday, October 29, 2013

http://www.HealthIT.gov

http://www.HealthIT.gov


Comprehensive Health Enhancement Support

System (CHESS)

Clinician Report



* Hesse BW. Public Health Informatics. In: Gibbons MC, editor. eHealth Solutions for Healthcare Disparities. New York, NY: Springer; 2007. p. 109-129.



* Hesse BW, Suls JM. Informatics-enabled behavioral medicine in oncology. Cancer J. Jul-Aug 2011;17(4):222-230.

Intel: “Aging in Place” ARRA Grant: U MD



Access to Personal Data a Civil Right?



Data “Mash Ups”

Behavioral Data

Mortality Data

Source: Rutten LF, Hesse BW, Moser RP, Kreps GL, eds. Building the Evidence Base in Cancer Communication. Cresskill, NJ: Hampton Press; 2010. Kreps GL, ed. Health Communication.



Source: Forman MR, Greene SM, Avis NE, et al. Bioinformatics: Tools to accelerate population science and disease control research. Am J Prev Med. Jun 2010;38(6):646-651.



Opening Data to Innovators


Smart and Connected Health

Source: Hesse, B. W., Hansen, D., Finholt, T., Munson, S., Kellogg, W., & Thomas, J. C. (2010). Social Participation in Health 2.0. IEEE Computer, 43(11), 45-52.


Thank you!


byu smart & connected 2012

Health & Medicine

new science

citizen science

national cancer program

total global internet

national global priorities

presidents council of

accomplishment of year

languages reach