byte big data community workshop

BYTE:BYTEBigDataCommunityWorkshop

LorenzoBigagli,NationalResearchCouncilofItaly

Martí Cuquet,UniversityofInnsbruck

1December2016,Valencia,Spain

Big data roadmap and cross-disciplinary community for addressing societal Externalities

@BYTE_EU www.byte-project.eu

Workshopagenda11:00– 12:15 STRENGTHENINGTHEBYTEBIGDATACOMMUNITY

PresentationoftheBBDCGroupworkonitsfuture

12:15– 13:30 CONTRIBUTINGTOTHEBDVA

PresentationsontheBBDCfocusareasfor2016:• Smartcities(AnnaMelchor,InnDEA,València)• Health(Aggelos Liapis,AthensUniversity,BYTEAB)• Environment(GiovanniRumandWenbo Chu,GEOSecretariat)

Small groupsdiscussiontointegrateBYTEfindings

13:30– 13:45 CLOSINGREMARKS


Visionandmission

Civil societyas important as industry,academia andpolicymakersintheEUstrategy forbigdata


BigDataValuecPPP

CSOsNGOs

NPOs

EUBigDataStrategy:fillingthegap

BDVA

TF9Societal

TF5Legal

TF3Community

BigDataCommunity


Objectives◦ EngageNGOs,NPOs,CSOs,thirdsector,localgovernments,tech-transferorganizations

◦ ContinueBYTEresearchonsocietalexternalitiesofbigdata,andhowtomakethebestofthem

◦ InputandfeedbacktoBDVA,membershipandrelatednetworks


Activities◦ Research/consultationtoidentifysector-specificandgeneralguidelinesaboutcurrentbigdataissues,goodpracticeandtouchpointswithstandardsandmethodologies◦ 3focusareasperyear◦ Inputandvalidation◦ SRIAsocietalimplications◦ ECworkprogramme


BDVASRIA


BigDataPPPinH2020ICT-14-2016-2017:BigDataPPP:cross-sectorialandcross-lingualdataintegrationandexperimentationICT-15-2016-2017:BigDataPPP:LargeScalePilotactionsinsectorsbestbenefittingfromdata-driveninnovationICT-16-2017:BigdataPPP:researchaddressingmaintechnologychallengesofthedataeconomyICT-17-2016-2017:BigdataPPP:Support,industrialskills,benchmarkingandevaluationICT-18-2016:BigdataPPP:privacy-preservingbigdatatechnologies


Membership◦ Opentoindividualsandorganisations

◦ 4 envisionedmembershipcategories◦ interestedparty◦ associatemember◦ fullmember◦ ambassador


Interestedparty

Description

••Contactlist••Identifykeyissues••Identifysectorsofinterest

••Participateindiscussionswithpeers

Opportunities

••Stayinformedandinteract

••Participateinconsultations

Engagement

••Low-level– reactive••Occasionalteleconference/meeting


AssociatememberDescription

••Contactlist••Identifykeyissues••Identifysectorsofinterest

••Participateindiscussionswithpeers

••Regularlycontributetofocusareas

••ReviewBBDCoutcomes

Opportunities



••Participateinresearchandinnovationprojects

Engagement

••Regularteleconferences••Occasionalmeetingorannualworkshop


FullmemberDescription

••Contactlist••Identifykeyissues••Identifysectorsofinterest••Participateindiscussionswithpeers

••Regularlycontributetofocusareas

••ReviewBBDCoutcomes••CommitresourcestoBBDCactivities

Opportunities



••Participatewithpriorityorlead researchandinnovationprojects

••SupportortakepartinBBDCmanagement

Engagement

••Regularteleconferences••Occasionalmeetingorannualworkshop

••Letterofintent(120h/year– 0.75PM)

••Participationinannualrelevantmeeting

••PotentialBDVAmembership


AmbassadorsLocalcontacts,partnersandinstitutions

Contactwithlocalinitiatives

Obtainlocalinputforthecommunity

Disseminateresultsandrepresentthecommunitylocally

Organisejointco-brandedevents


GroupworkRoam andbrainstorm around 3focuspoints◦ Strategy andsustainability◦ Mission,objectives,activities◦ Advertisingandexpanding thecommunity◦ Venues,contacts,related networks◦ You name it!◦ Communityname andidentity after theendofBYTE


Funding opportunitiesCooperation agreement withanother community(e.g.BDVA)

Corporate/Government sponsorshipEUfunding (e.g.H2020)Funding fromMember States

Annual membership fee andmember contributionsCrowdfundingConferencefees

Standardization BodiesBusinessAreas (e.g.JointIndustry ProgramsforBigDatainAutomotive,Defense,Oil &Gas,Energy,Transport andother sectors)Servicefees


You name it!BigDataSocialClub

BigDatafor[social]good

BigDataCrew

BigDataFellowship

EUBigDataClearingHouse (EUBiDCH)– Neutral 3rdparty

EUBigDataTrust(EUBiDT)

EUBigDataAdvisory (EUBDA)

EUBigDataSociety

EUBigDataAgency


ContributingtotheBDVA◦ Focusareasfor2016◦ Smartcities(AnnaMelchor,SmartCityValencia)◦ Health(Aggelos Liapis,AthensUniversity,BYTEAB)◦ Environment(Wenbo ChuandGiovanniRum,GEOSecretariat)

◦ SmallgroupsdiscussiontointegrateBYTEfindings

SmartcitiesThiscasestudyhasfocusedonthecreationofvaluefrompotentiallymassiveamountsofurbandatathatemergesthroughthedigitalisedinteractionofacity’susers,i.e.ofcitizensandbusinesses,withtheurbaninfrastructure.Theeconomiesofdigital,especiallybigdata,favourmonopolisticstructures,whichmayposeathreattothemanySMEsincities.However,opensourceandopenplatforms,opendata,andevenopenalgorithmscrystalliseasashortcutand“technology-drivenformofliberalisation”accompanyingthebigdatamovementincities,whichhasthepotentialtoleveltheplayingfieldandevenspurmorecreativityandinnovation.Nonetheless,monetisationofbigdataremainsamovingtarget.Investmentsbytheprivatesectorneedtobesecuredbyreductionorcompensationoffutureuncertainties,otherwisethecurrentstateoflackofinvestmentswillremain.Similarly,withtheincreasingpotentialofmachinesthatlearn,oldjobsconsistingofsimpletasks arealsoatrisk.Newskillsarerequiredandwillcreatenewjobs,butnumbersaremostlikelynotequal.

Asforthesocialandethicalexternalities,thepotentialofbigdatatobeusedforsocialgoodisimmense,especiallyinthedigitalisingcity.However,therelianceondata-drivenservicesneedsadebateonhowwecanassureenoughequalitywhentherearesomanydifferentreasonswhynotallcitizenswillreapvaluefromdatainequalamounts.Thismaybeduetothedigitaldividewehavebeenawareofforawhilenow,ortoentirelynewchallengesthroughrecenttechnologicalbreakthroughssuchasdeeplearning,whichenablemachinestolearnandtakeoversimpletasks,suchascountingcarsorrecognisingletters.Moreover,trustincomputingmethodsforbigdatamaybehardertoestablishiftheirrationalecannotbeeasilyexplained.Furthermore,businesses,criticalinfrastructures,andlivesmayrelyonbigdataalgorithms.

Sincenewsourcesofdatacreatenewwaysthatdatacanbemisused(includingsensitivepersonaldata),thiscasestudyquestionsthesuitabilityofthecurrentlegalframeworkbasedondataownership.Indeed,theshifttowardsbigdatamayimplythatdataaswellasalgorithmstominethedataarerequiredcommoditiestocreatevaluethroughuserexperienceandservices.

Finally,politicalexternalitiesincludelosingcontroltobigdataactorsoutsideEurope.Indeed,bigdatabusinessescanimprovetheEuropeaneconomy,butrequireaunifiedEuropeandataeconomywithaccordinglyunifiedpolicies.

HealthThiscasestudyhasfocusedontheuseofgeneticdatabyapublichealthdatadrivenresearchorganisation.Overall,thiscasestudyhighlightsanumberofpositivesocietalexternalitiesthatflowfromgeneticresearchandraregeneidentification,whichisfacilitatedthroughtheutilisationofbighealthdata.Concerningeconomicalexternalities,oneimportantresultiscostsavingforhealthcareorganisationsthataregainedthrough moreaccurateandtimelydiagnosesandefficienttreatments.Thisisparticularlyimportantwhendealingwithraregeneticdisordersthatmaynototherwiseattracttheattentionthatdisordersandhealthissuesaffectingthewiderpopulationdo.Inaddition,theutilisationofbigdatainhealthcareproducesanothereconomicexternalityinthatitpotentiallygeneratesrevenueespeciallythroughthedevelopmentofmarketabletreatmentsandtherapies,andtheinnovationofhealthdatatechnologiesandtools.Nevertheless,researchinitiatives,suchastheinstituteofthecasestudy,arenaturallysubjectto financialrestrictionsandcostsavingsmeasuresimplementedbygovernments.

Onthesocietalandethicalside,theidentificationofraregeneticdisordersprovidestreatmentopportunitiesforthepatient, as wellasmoreeffectivediagnostictestingforfuturepatientsandagreaterunderstandingofraregeneticdisordersgenerally.Inaddition,analyses of geneticdataenablestreatingclinicianstoprovidearangeofotherhealthcareservicesforfamilymembers,includinggeneticcounselling.Beyondtheinitial purposeforthedatacollection,thereislimitedornoreuseofgeneticdataduetolegalandethicalissues.However,datareusemaybecomeastrongerfocus in thefutureforthepurposeofproducingadditionalbenefitsforpatientsandsociety.Therewilllikelybeanincreaseinfocusonresearchforthepurpose of developingpersonalisedmedicinetreatments,whichfocusesonimprovedtreatmentbasedonpatientdrugmetabolism.Whilstthepositivesocialimpacts of reusinggeneticdataareobvious,ethicalconsiderationswillremainattheforefrontofanypoliciessupportingtherepurposingofgeneticdata,especiallyasitissensitivepersonaldata.Therearepotentialnegativeimpactslinkedtotheutilisationofbigdatainhealthcaresuchasover-medicalisationofan otherwisehealthypopulation;discriminationbasedonthestratificationongenotypeorinrelationtohealthinsurancepolicies;andincidentalfindingsdiscoveredwhendataisanalysed.Forexample,cancergenesmaybediscoveredalongsidetheidentificationofraregenesorothergeneticmutations.

Sincehealthdataisbyitsverynaturesensitivedata,thiscasestudyhighlightslegalrisksassociatedwithdataprotectionanddatasecurity.Inparticular,anonymisation isalegalrequirementthatischallengingtoachievewithgeneticdata.Theissueofdataprotectionandinformationprivacy callsforthedevelopmentofadequateprotectionsthatbalancetherighttopersonaldataprotectionwhilstfosteringinnovationinthedigitaleconomy.Althoughdatasecuritypreservationmeasuresensurecompliancewithstandarddataprotectionrequirements,theycanalsohinderfurtherresearch,whichinturn,couldleadtonewdevelopmentsandtreatments.Lastly,threatstointellectualpropertyrightscanariseinrelationtosubsequentusesofbighealthdata,suchasinrelationgenepatenting(andlicensing)ofnewdrugtherapies,orifitweretobeincludedinworksprotectedbycopyright.

Concerningpoliticalexternalities,theavailabilityofbigamountsofdatawillenablepoliticianstohavemoreinformationaboutdifferentsituationsinthehealthsectorandthusabetterunderstandingthatmayleadtoimprovetheirdecision-makingandincreasestheinvestmentsinhealthcare.

EnvironmentThiscasestudyhasbeenconductedinthecontextofanearthobservationdataportal(GEOSS),aglobal-scaleinitiativeforbetterunderstandingandcontrollingtheenvironment,tobenefitSocietythroughbetter-informeddecision-making.Onthepositiveside,theuseofbigdataiscreditedwithhavingstrongimplicationsontheeconomicgrowth,e.g.seadataforfishingnationsandweatherdatafortourism,forthemeredirecteffectsontheITsectorsuchasopportunitiesforinfrastructure/hardware/datacentres,andrent-sharingpossibilitiesforcomputing.However,bigdatacouldaswellbeseenasathreatbytraditionalservices,forexampleintheweatherforecastingsector.

Ouranalysisofsocialandethicalexternalitiesshowstheeffectivenessofdata-intensiveapproachesinimprovingthegovernanceofenvironmentalchallenges,supportingsafeandenvironment-friendlyoperations.Thishasimplicationsontherobustnessoftheenvironmenttorecoverafterstressingevents(resilience),especiallyinurbancontext,aswellasontheactualqualityoflifeandhumanhealth.Ontheotherhand,big-brother-effectandmanipulation,realorperceived,canbeproblematic.Infact,ashumansocietyisanintegralpartoftheenvironment,especiallyinurbancontext,thefearofdataabuse,privacyviolationandthelike,mayhamperparticipationandengagement.Moresubtly,alsoexcessivetrustindata-intensiveapplicationshasbeenhighlightedasapossiblenegativeimplication,inthatitwouldencouragethefalsebelievethatthedynamicsoftheenvironmentcanbecapturedquantitatively,overlookingqualitativeaspectsthat,instead,remainfundamentaltocomprehendit.

Withrespecttolegalexternalities,thegrowingrelianceondataintheenvironmentsectoriscertainlyhighlightingmanyshortcomingsofthecurrentlegalframeworks,e.g.onIPR,privacy,andauthorisationtousethedata.Potentialproblemsare moreprominentwhenconsideringdifferentlegislationssuchastheprincipleoffullandopenexchangeofdatathatissimplyinconsistentwithsomeofthecurrentnationalpolicies.Legalsupportforcitizensindata-relatedissuesisarguablygoingtobecomeapublicservice,inthefuture.Besides,incompatibilitiesinthelegalframeworksindifferentcountriesareseenasinhibitorsthatneedtobeadapted,inordertoremovelegalbarriers.

Finally,politicalexternalitiesincludeincreasedtransparencyandaccountability,sincechoiceswillhavetobebasedonmeasurableandobservableindicators.However,thereisariskofdependingonexternalsources,particularlyprovidedbybigplayers.Inthisregard,theenvironmentcommunityisconcernedabouttheimpositionofcommercialproductsasdefactostandards,causinganimplicitvendorlock-infortheirmaintenanceandevolution.TheuseofGEOSSmapdataisapotentialsourceofpoliticaltensions,e.g.withregardstodisputedorotherwisesensitiveareas.AsEuropeleadstheinnovationinthespatialsector,theshifttoamoreintensiveuseofdataintheenvironmentsectormayputEuropeinaprimaryroleonthepoliticalscene.


Staytunedhttp://byte-project.eu/byte-community


BBDCcontacts◦ LorenzoBigagli ([email protected]),JarlMagnusson([email protected])◦ Coordinationandgeneralorganisation

◦ EdwardCurry([email protected]),Umair ulAssan ([email protected])◦ Impactanddevelopment

◦ Martí Cuquet ([email protected]),Csilla Gödri ([email protected])◦ Communicationandoutreach

◦ RachelFinn([email protected])◦ Institutionalliaisons(EC,BDVA,etc.)


Seeyousoon…◦ ParallelsessiononSocial&Legalaspects

◦ 14:45,thissameroom◦ BYTEFinalConference

◦ 9February2017,London(TBD)

… andthank you forjoining!

byte big data community workshop

Technology