On October 3rd Blue Peter featured Joy and I on their programme to highlight the befriending service The Butterfly Trust offer to support those with Cystic Fibrosis and other respiratory conditions. Filming took place over a weekend a few weeks earlier with Joy being filmed at home with her family showing her daily routine, followed by filming at Edinburgh Zoo with myself. Joy was surprised with a visit from Blue Peter presenter Barney who also joined us at the Zoo. He spent time chatting and getting to know us, and The Butterfly Trust, and interviewed Joy. We had a brilliant time filming and loved seeing ourselves on tv too! It was great to be given the opportunity to share and promote the work of The Butterfly Trust.

Emma, Volunteer Befriender

Issue 14

Emma, Joy and Barnie at Ednburgh Zoo

butterflytrust.org.ukRegistered Scottish Charity No SC 033174

Dear FriendsIt has been a good and very productive summer and autumn in The Butterfly Trust. The work we have done has been more varied than ever before and the demand for our help continues to grow with an increase of 24% in the last financial year.

We continue to monitor closely the developments regarding the planned welfare reforms relevant to our client group and shape our response programme accordingly. Our managers have been attending external training and we have begun our process of up skilling our support workers. Our planned extended recruitment programme to ensure we can respond effectively to the changed system is in infancy stage at present and will gather momentum in 2012 in preparation for changes to be introduced in 2013.

From the Trust's inception much emphasis has been on the value of a skilled volunteer resource as an ideal model for delivering prompt, professional services in response to a fluctuating and unpredictable demand. These volunteers are one of our most valuable resources contributing in areas that range from befriending to fundraising and from transport to massage therapy. We have appointed a new Volunteer Co-ordinator to supervised and support our growing team over the coming year.

Directors Dialogue

We are looking for your help to raise awareness of The Butterfly Trust and Cystic Fibrosis. Can you think of ways that you can let people know about who we are and how we make a difference to the lives of people with Cystic Fibrosis in Scotland. Please help us and spread the word!

Spread the word

Latest news

Support Services

Enclosed is a leaflet that gives a flavour of the comprehensive range of services available to people living with Cystic Fibrosis in Scotland. These services are free of charge and are all strictly confidential. If you need support in anyway, even if it’s not in our leaflet, do not hesitate to call us, we are here to help!

Why volunteer?

Volunteering is a great opportunity to learn new skills or donate skills you already have. Volunteering can be very rewarding and maybe you or someone you know would make a great volunteer for The Butterfly Trust. We have opportunities all over Scotland in a wide range of roles. Visit our website and check out the 'Volunteering Opportunities' page for more information or e-mail laura@butterflytrust.org.uk.

Introducing Laura

We are delighted to welcome Laura to our team. Laura will be working closely with our outreach team of 69 volunteers throughout Scotland ensuring that we are able to respond swiftly and effectively when we are asked for help.Laura’s first task was to organise an induction for 16 new volunteers who are all skilled people with experience that will be hugely beneficial to our support service.

Inspiring stories

Kirsteen

Kirsteen was off doing her school work experience at the local primary school as a classroom assistant and thoroughly enjoyed helping to educate the youngsters. She said “My work experience as a classroom assistant was really good. I was given different tasks and enjoyed completing them.” Kirsteen has Cystic Fibrosis but she does not let that prevent her from leading a full and productive life. Well done Kirsteen!

Hollie

Hollie has been spending time at her local art gallery for school work experience. Hollie is a keen photographer and the gallery has agreed to hang one of her photographs. Here in the photo they are discussing her photograph and where to hang it in the gallery. Well done Hollie for this great a achievement and good luck with a future career in photography.

Esme

Esme, looking lovely in her butterfly costume, thanked us for making her family holiday possible. Her mum said “After a long winter of hospitalisations we really needed some time together to just have fun!” Esme loved the Owls at the World Owl Centre and enjoyed the train ride with her brother Finlay.

Community Support

West Highland Way

Ben Ledley

Pauline, Scott, Mandy, Ali, Chris and John all walked the 96 miles of the West Highland Way to raise funds. Thanks to them and support driver Paul!

George Hudson and fellow Rotarians raised funds for The Butterfly Trust with their sponsored walk up Ben Ledley. Thank you George!

Perth Fun-day

Stacey, here with Billy, organised a fantastic fun-day for the kids of Perth to raise funds to support people living with Cystic Fibrosis in Scotland. Great day Stacey!

Community Support 2

Disco

Lawrie and Keir had a fundraising disco in Musselburgh in memory of Lawrie’s sister and Keir’s girlfriend Hayley. Well done and good luck with the next event!

We would like you to help us celebrate our 10th birthday by having your own Butterfly Birthday Bash Fundraiser. For more info contact Jamie. jamie@butterflytrust.org.uk

10th Birthday

Team Glasgow

Team Glasgow is made up of three ladies from the West of Scotland all with Cystic Fibrosis and who have all had transplants. They have got together to raise money for three CF and transplant related charities including The Butterfly Trust. They do some wonderful work all year round, all voluntary, with their latest event being a halloween party to raise funds for us.

Community Support 3

Stacey, Sam and Sami organised a fantastic Halloween Disco in Edinburgh to raise funds for The Butterfly Trust. I hear it was a great night. Well done girls!

Bands from Edinburgh and Glasgow coming together to create a fantastic night of music at the Voodoo Rooms in Edinburgh. Saturday 17 March.

The Walk for Scotland in June was a success with over 60 people walking with our t-shirts so why not join us for next year’s walk on Sunday 24 June 2012.

Halloween Disco

Your Personal Details

Your Bank Details

Instructions for your Bank

Signature Date

I pay UK income tax and would like THE BUTTERFLY TRUST to reclaim the tax on my gifts

Please pay to THE BUTTERFLY TRUST the sum of: £

Amount in words (pounds)

Every month with effect from until further notice/ /

Account Type: Trustees Account

Account No: 00584054Bankers Sort Code: 80-02-78

Bankers: Halifax Bank of Scotland

Bank Branch

Sort CodeAccount No

First Name Surname Address

Postcode Tel Number

Please take this form to your bank and return a copy to;Fundraising Team, The Butterfly Trust, Swanston Steading, 109/3b Swanston Road, Edinburgh, EH10 7DS

Standing Order Form

We would like to thank everyone who has made a donation or fundraised for The Butterfly Trustin the past year. Without your support it wouldn’t be possible to provide these services

0131 445 5590

Our Vision

Our vision is that people affected by Cystic Fibrosis have the opportunityfor personal choice and access to support that enables them to fulfilpotential and realise aspirations.

Swanston Steading, 109/3 Swanston Road, Edinburgh, EH10 7DS