BEHÇET’S DISEASE PATIENT SUMMIT

Free of charge

Saturday, November 9, 2019 • 9:00 am - 12:30 pm • Renaissance Atlanta Midtown • Atlanta, GA

SATURDAY, NOVEMBER 9Registration will begin at 7:45 am. Please check in, pick up your name badge and enjoy the opportunity to network with members of the Behçet’s Disease community over breakfast.

TIME SESSION SPEAKERS

7:45 – 9:00 am

9:00 – 9:10 am

Registration & Networking Breakfast

12:15 – 12:30 pm Thank You

12:30 – 1:30 pm Networking Lunch

Summit Welcome Catherine FerroneDirector, Patient Advocacy, Inflammation & Immunology at Celgene

9:10 – 9:30 am Understanding Behçet’s Disease Learn about the symptoms, causes and what leads to a diagnosis of Behçet’s Disease.

Dr. Andrew Sulich Shores Rheumatology, PC, Saint Clair Shores, MI

9:30 – 9:40 am A Treatment Option for Patients

9:40 – 9:50 am Break

Dr. Andrew Sulich Shores Rheumatology, PC, Saint Clair Shores, MI

Dr. Andrew Sulich Shores Rheumatology, PC, Saint Clair Shores, MI

10:35 – 10:45 am Break

9:50 – 10:35 am Physician Perspective: Coordinating Behçet's Disease Care A panel of multidisciplinary healthcare professionals will lead a moderated discussion on the following topics:

— How Behçet’s Disease affects the body — How different specialties can work together to find

manageable solutions — Lifestyle changes you can make to help manage manifestations

Moderated by Joyce Kullman Executive Director, Vasculitis Foundation

Dr. Glenn ParrisParris & Associates, Lawrenceville, GA

10:45 – 11:30 am Patient Perspective: Living with Behçet’s Disease In this moderated discussion, two patients living with Behcet's Disease and a caregiver will share their personal experiences on:

— How to manage challenging symptoms — Coping with the disease in daily life— Tips to improve your next doctor’s appointment

(e.g., documenting flare ups) — Hope for living better with a chronic condition

Moderated by Deb Kleber StruzynaPresident, American Behçet’s Disease Association Board

Dr. Robert MichelettiAssistant Professor of Dermatology, Hospital of the University of Pennsylvania

AlisaAtlanta, GA

AshleyPhiladelphia, PA

NickPhiladelphia, PA

11:30 am – 12:15 pm The Power of Your Story Discover the potential benefits of journaling for both personal reflection and as a tool for sharing your experience with others in this session led by The Mighty, a leading online community that supports and empowers people with health challenges and disabilities.

Sarah SchusterEditorial Director, Contributors, The Mighty

Catherine FerroneDirector, Patient Advocacy, Inflammation & Immunology at Celgene

10/19 US-CLG-19-1517

Sponsored by Co-Hosted by Content is intended for U.S. audiences.

10/19 US-CLG-19-1517

@behcets_usa

American Behcet’s Disease Association – ABDA (@ABDA_Behcets)

@VasculitisFound

Vasculitis Foundation (@VasculitisFoundation)

@vasculitisfoundation

@behcets_usa

PHOTO AND VIDEO RELEASEThe American Behçet’s Disease Association and the Vasculitis Foundation, as well as our sponsor Celgene, use electronic and traditional media including, but not limited to photographs, video, audio and testimonials recorded during the summit. All attendees, speakers and guests are advised that during the summit, photographs will be taken as well as audio and video recordings made of various activities and sessions. The educational sessions and panel discussions at today’s patient summit will be live streamed and recorded for future viewing by members of the Behçet’s Disease community who were unable to attend in person.

Each attendee grants these organizations permission to use the images in any media for any noncommercial and/or commercial purpose, and waive any right to inspect or approve any final product utilizing the images.

SOCIAL MEDIAPlease share your experiences using the hashtag #BehcetsDisease so others can follow the conversation – and be sure to visit our photo station.

American Behçet’s Disease Association

Vasculitis Foundation

Sponsored by Co-Hosted by

Content is intended for U.S. audiences.