atsi professionals booklet
TRANSCRIPT
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Cancer Education Program 2011
ATSI Professionals
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• Aboriginal Health Workers
• Aboriginal Interpreters
• Aboriginal Liaison Officers
• Aboriginal Health Promotion Officers
• Healthy Lifestyle Officers
• Family Support Workers
• Oral Health
• Strong Women Workers
• Tobacco Workers
• Chronic Disease Coordinators
• Recall Support Officers
Who are the ATSI Professionals?
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Cancer Education Learning Goals
• What is cancer?
• How to prevent cancer.
• Learn how to detect cancer early.
• Learn more about cancer screening.
• Workshop with other ATSI Professionals.
• Explore barriers to treatment.
• Learn about cancer treatments;
Surgery
Chemotherapy
Radiotherapy
• Learn about Supportive care, Palliative Care
and PEPA.
• Share survivor stories.
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Day one at Barbara James House accommodation for cancer patients
and their families.
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Jill Naylor from the Cancer Council NT talks about how
cells can change into cancer.
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What are cells?
The beach is made of millions of tiny grains of sand……
like our bodies are made of millions of cells.
Sometimes these
tiny cells get sick
and start to grow
very quickly. They
start taking over
good cells and
like a weed, they
can start
spreading all over
the body.
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Phone 13 11 20
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Phone 13 11 20
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Phone 13 11 20
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After the Cancer Council NT presentation, we break into small talking
groups to discuss the barriers to cancer treatment.
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Margaret O’Brien from Danila Dilba summarises her small group
discussion with everyone.
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Boyan Yunupingu talks about barriers to cancer treatment for remote
Indigenous patients.
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Cath Hampton a Chronic Disease Coordinator from Miwatj talks about
barriers for remote cancer patients.
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Cath Hampton from Miwatj Barriers to cancer treatment
• Remoteness
• No Escort
• Not enough Specialists
• Cultural training for non-Indigenous
• Different priorities between cultures
• Cultural safety
• Confusing health messages
• Don’t know about support services
• Scary environment
• Language barriers
• Don’t want to tell family
• Shame or scared
• Confidentiality in small community
• Feel normal “I’m not sick!”
• Loss of control
• Not enough time to break down concepts
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Bernie Shields sums up the day
• Alan Walker Cancer Care Centrein Darwin means patients get
treatment closer to home.
• Barbara James House culturally safe accommodation for cancer
patients and their carers.
• Not everyone dies of cancer,
finding cancer early is important
to survival. Men’s and Women Checks are important.
• Now we know about the Cancer Council NT and the Nurses that
can support cancer patients in
Darwin.
Good news stories
Cancer Council NT
Cancer Nurses Jill or Marg on (08) 8927 4888 during the
week or 13 11 20 after hours.
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Boyan Yunupingu reflects on what
was learnt yesterday.
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Doctor Phil Carson talks about
surgery to cut out cancer.
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Doctor Carson shows a Mammogram image of a woman’s breast, showing a cancer tumour.
Women aged 50 and over should have a mammogram every two years.
For an appointment or to find your nearest service call the friendly staff at Breastscreen NT.
BreastScreen NT
13 20 50.
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Doctor Carson shows a male with a breast cancer
tumour.
This tumour started off
small inside the body and could have been removed by surgery.
This cancer tumour became so big that it came
out of the body through the skin.
Finding cancer early is important to survival.
Why didn’t this man come to the clinic earlier?
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Dr Phil’s Tree
Sometimes you can see a cancer tumour
but like a tree, the tumour may send
down roots.
When we do surgery
and cut out the cancer we need to make sure
we cut out all the
roots or the cancer will grow again.
Cancer is like a tree
Sometimes the cancer
tumour is like a tree and
sends off seeds that can travel and spread
throughout the body.
Surgery cuts out the cancer but chemotherapy
and radiation make sure
all the cancer roots and seeds are destroyed.
Cancer starts small like a seed and can grow anywhere in the body. Some cancer grows fast like a Carpentaria Palm, Soap tree or Grevillia. These are called
‘aggressive’ cancers. Others grow slow like a Cycad.
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The Alan Walker Cancer
Care Centre in Darwin gives Chemotherapy and Radiotherapy treatments to
cancer patients from across the Northern Territory.
The good news is that most patients can be treated in the
Northern Territory, treatments don’t take all day and the staff at the cancer centre are very
friendly and caring.
Alan Walker Cancer Care Centre
(08) 8944 8220
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Resources in language
Elizabeth Presley an Aboriginal Liaison
Officer from the Alice Springs Hospital
introduces ‘Waiting, Going to Hospital,
Coming Home Strong’ DVD and flipbook
which helps ATSI Professionals get patients
ready to go into town for surgery.
The ‘Looking from a new perspective to
create a bright future’ DVD, asks non-
Indigenous staff to consider the challenges
for remote people with English as a second
language. In this DVD all the Doctors and
Nurses are Indigenous and speak in
language to the non-Indigenous patient who
becomes quite distressed until the
Interpreter arrives.
To order a DVD contact the
Elective Surgery Project Officer
on (08) 8999 2950.
Available in language
Anindilyakwa
Burrada
Murrinh-Patha
Djambarrpuyngu
Arrente
Walpiri
Pitjantjatjara
Gurindji
Waramungu
Kriol
English
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Resources in language
A Cancer Journey DVD is available in five regional
languages including;
Watch this DVD in language to help
you understand the cancer journey for a patient and their family.
Show the Cancer Journey DVD to cancer patients and their family.
• Yolngu-Matha• Murrinh-Patha
• Walpiri• Pitjantjatjatjara• Kriol
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What is our good news story?
• Men’s and Women’s Health Checks
are important.
• Know your body and if something
changes go to the clinic.
• Most cancer patients can be treated in
Darwin.
• The Cancer Council can go to
specialist appointments with cancer
patients in Darwin.
Cancer Council NTCancer Nurses Jill or Marg on
(08) 8927 4888 during the week
or 13 11 20 after hours.
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Call the Cancer Council in Darwin on (08) 8927 4888and ask a Nurse to come to your Specialist appointment. They will
help you to get the right story.
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Territory Palliative Care
The Palliative Care team
can help patients, their carers and families to finish up in the right way.
Territory Palliative Care
Top End
8922 6761
8922 8888 After hours
Central
8951 6762
8951 7777After hours
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Call Aboriginal Education Officer Cindy Paardekooper on 8922 7679 for more information.
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Glen Gurruwiwi works for Miwatj as a Tobacco Worker, an
important job as smoking is a leading
cause of cancer.
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After lunch the women settle down for a Survivorship Sessionsharing their cancer stories and asking questions of the Cancer Council Nurses.
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Marrapalawuy Marika from Yirrkala
tells her cancer survival story and
how her family were very strong for
her. She was happy to see Doctor
Carson that morning, as he
performed surgery on her many
years ago.
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There is no shame in
talking about cancer.
Sharing these stories makes us all stronger.
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The Cancer Journey can be a
long and difficult one but remembering your family will keep you strong.
The Cancer Council are there to help patients and their
families get the full story and make good decisions.
The Cancer Council nurses can come to specialist
appointments with you in Darwin.
Cancer Council NT
(08) 8927 4888
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Karen Duxfield from Katherine West
Health Board battled cancer ten years
ago and this experience inspired her
to become an Aboriginal Health
Worker.
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Karen grew up speaking English as
a first language but still found the
cancer journey very stressful. She
had to travel to Adelaide, leaving her
family behind and worrying about
her children. Karen found
communicating with the Doctors and
Nurses very difficult as they didn’t
seem to listen or understand. At one
point she was mistakenly placed in a
Children’s Ward!
Karen survived cancer and found a
new strength and determination.
She became an Aboriginal Health
Worker so nobody in her community
would have to go through what she
did.
Sharing survivor stories makes us all
stronger!
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Our good news story
Bernie sums up the day,
reminding everyone that there
are many services out there to
support patients, their carers
and families.
The Cancer Journey can be a
difficult one but Marrapalawuy
and Karen show that you can
survive and come back even
stronger.
The Alan Walker Cancer Care
Centre in Darwin works hard to
provide a culturally safe place
for Aboriginal patients to receive
lifesaving Radiotherapy and
Chemotherapy treatments closer
to home.
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Alan Walker Cancer Care Centre
The AWCCC is on the grounds of the Royal Darwin Hospital. The
friendly staff are dedicated to providing the best cancer treatment in a safe and comfortable location.
Phone 8944 8220or visit www.ntro.com.au
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The friendly team at the
Alan Walker Cancer Care Centre
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Giam Kar, the Manager of the Alan Walker Cancer Care Centre, shows the ATSI Professionals around the Chemotherapy suite.
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When having radiotherapy it is important to stay very still so the radiation
only goes to the cancer and not to other nearby body parts, like eyes or
tongue. Bonnie Godyn shows everyone how to make a mask.
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Brave Theresa Haidle a Katherine ALO agrees to help make the face mask.
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Bonnie wets the plastic
which makes it soft while
Giam helps get Theresa
comfortable.
Marrapalawuy keeps a
close eye on the action.
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The wet warm mask is stretched over the
face and fixed to the table so the patient
stays still.
Let’s hope Theresa doesn’t get an itch!
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Ellen Gapany from the Aboriginal Interpreter
Service feels the plastic as it cools. Oscar
Garawirrtja a Tobacco Worker looks on.
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The soft cold gloves help
the plastic to cool quicker
and harden, so brave
Theresa can get out
quicker!
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While Giam’s not looking cheeky
Bernie Shields pulls a face!
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This is the Linac
machine that delivers a
targeted ball of radiation
to the cancer tumour.
The treatment doesn’t
hurt and lasts about 10 -
20 minutes.
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Karen Greer and Darrin
Weetra both Family
Support Officer’s from
Danila Dilba have a
closer look at the Linac
machine which costs 2.2
million dollars!!
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Aboriginal Cancer Journeys
are stories of kinship, hope
and survival available at the Cancer Council NSW
website.
www.cancercouncil.com.au
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The Cancer Journey – Prevention to Diagnosis
Done at the local clinic, sometimes as a part of an Adult Health
Check. The Doctor will put a gloved finger into the bowel to feel the prostate. A blood test can also assist diagnosis.
Prostate Check
Men only - talk to
Clinic
Sitting next to someone who is smoking is still bad for your health.
Tobacco smoking is a leading cause of cancer. Passive smoking
The identification or naming of a person's disease.Diagnosis
Done at the local clinic, sometimes as a part of an Adult Health
Check. An easy test that can save your life. A scrape of poo is taken for tests. Can be done as part of an Adult Health Check.
Bowel Screening
Talk to Clinic
The name of the test that squeezes the breast into a machine and
takes a photo that shows Doctors if there are cancer tumours or lumps. An uncomfortable test that can save your life.
Mammogram
Looking at the breast for any changes. It’s important to know how your body feels, so you can see any changes, lumps or sores. Women over 50 should have a mammogram every two years.
Breast screening
50 year old woman every 2 years
Also called Pap test. A test that can looks for changes in the doorway to the baby bag or cervix. Some cells are scraped off the cervix and
sent to a laboratory for examination under a microscope. This uncomfortable test can save your life by finding cancer very early.
Pap Smear
Sexually active women every 2 years
Human papillomavirus is a virus that causes skin sores and can
become cancer. Three injections given to young girls helps protect them from these cancers. Does not stop pregnancy.
HPV Vaccination
Young girls 3
injections
Finding cancer in the body early when it is small makes it easier to
cure. Adult Health Checks help detect sickness early.Early Detection
Living a healthy lifestyle and having regular health checks, helps you ‘prevent’ getting sick. Lowering your risk.
Prevention
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The Cancer Journey – Diagnosis to Palliative Care.
There is no cure, the patient is finishing up. Helping to make the death a good one for the patient, family and community.
Palliative Care
In cancer, survivorship focuses on the health and life of a
person with cancer after they return to their community. Survivorship includes how you care for yourself after treatment, side effects, what if the cancer comes back, and
your quality of life. Family members, friends, and caregivers are also part of the survivorship experience.
Survivorship
The use of radiation, like used in a microwave, to kill cancer cells or injure them so they cannot grow or multiply.
Treatment–Radiotherapy
Cancer tumours act like trees and can send out seeds that
spread and grow in other parts of the body. This is why its important to find cancer early.
Metastatic
When a cancer tumour is cut out of the body the Doctor will take a little more to be safe. If this surrounding tissue does not contain any cancer cells it is said to be a clear margin.
Clear Margin
Going to Hospital and being put to sleep so the cancer can be
cut out of the body. A difficult but lifesaving procedure.Treatment – Surgery
Malignant means cancerous and can cause death.
Benign means not cancer but a harmless lump or tumour.
Malignant and Benign
The building blocks of the body. Like grains of sand make a beach. A human is made of millions of cells, which are
changed for different jobs. Cells can reproduce themselves exactly, unless they are abnormal or damaged, as are cancer cells.
Cells
When normal cell growth changes and the cell becomes sick or damaged.
Abnormal cells
Putting strong medicine into the blood, which travels all over the body and slows or kills cell growth. Gets rid of any cancer cells in the body.
Treatment–Chemotherapy
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Cancer Council NTCancer Nurses Jill or Marg on
(08) 8927 4888 during the week
or 13 11 20 after hours.
The Alan Walker Cancer Care Centre Phone 8944 8220
or visit www.ntro.com.au
Breastscreening NT - appointments 13 20 50
Bowel Screening NT - www.bowelcanceraustralia.org
Men’s Health Checks - 8985 8170
Woman’s Health Checks - 8955 6135
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Good luck in your challenging and important work.
The Cancer Network is here to help you.