annual report 2009-2010

2009 - 2010 Progress Report

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n Progress Report 2009 - 2010

Table of Contents n MS Research n Programs & Services n Activism n Volunteerism n About Our Funds n Board of Trustees n Strategic Response n Calender of Events

The National MS Society is a collective of passionate individuals who want to do

something about MS now – to move together toward a world free of multiple sclerosis. MS stops people

from moving. We exist to make sure it doesn’t.

This year, the Society provided over $33.5 million to support 345 new and ongoing research projects, plus an

additional $1.5 million for Fast Forward, a new part of the Society’s approach to MS research and treatment that focuses on

moving promising research discoveries into the drug development process more quickly.

Locally, the Pacific South Coast Chapter provides programs and services designated to help the 45,500 people and families affected by MS in

San Diego, Orange and Imperial countines move their lives forward. Nearly $4 million is spent on MS research in our area annually. We are people

who want to do something about MS now. Learn more at MSpacific.org

Table of contentsPage 5 We are a driving force of MS research, relentlessly pursuing prevention, treatment, and a cure.

Page 7 We address the challenges of each person whose life is affected by MS.

Page 9 We are moving politicians and legislation to champion the needs of people with MS through activism, advocacyandinfluence.

Page 11 We are moving to mobilize the millions of people who want to do something about MS now.

Additional Contents

Page 13 Fundraising Events

Page 15 Financial Information

Page 17 Board of Trustees

Page 19 Programs & Services Provided

Page 21 Sponsor Thank You

Progress Report 2010 - 2011 n Page 1



We are a driving force of MS research, relentlessly pursuing prevention, treatment and cure.

Excitingprogresswasmadein2010invirtuallyeveryfieldofMSresearch. Progress toward finding new therapies for MS is highlighted by the availability of the first disease-modifying therapy for MS taken orally. Progress was also made toward finding ways to restore function, improving quality of life, and specific MS symptoms through exercise, meditation, rehabilitation and medications, including the first therapy specifically approved to treat a symptom of MS (Ampyra). Our understanding of factors that influence whether a person develops MS deepened this year, bringing us closer to finding ways to prevent the disease.

Toward Stopping MS Exciting progress was made toward finding better therapies for MS, including the availability of the first disease-modifying therapy for MS taken by mouth.

Toward Restoring Function Progress was made toward finding ways to repair nervous system damage and toward improving quality of life and specific MS symptoms through exercise, meditation, rehabilitation and medications, including the first therapy specifically approved to treat a symptom of MS (Ampyra).

Toward Ending MS Forever Understanding of factors that influence whether a person develops MS deepened this year, bringing us closer to finding ways to prevent the disease.

MS research

More Progress in Research

New links were reported between MS and smoking, Vitamin D blood levels, and Epstein-BARR virus, facilitating deeper research into these areas

A guide to distinguishing MS from look-alike disorders was developed by our international task force and published for use worldwide in a leading journal (Multiple Sclerosis)

The International Genetics Consortium, formed with Society funding, began a study, which is now 90% complete, to identify the common gene variants that predispose individuals to MS

The next generation of MS investigators was encouraged by the funding of all 31 recommended clinical and research training fellowships

Fast Forward forged ahead to bridge the gap between academic research and commercial development of treatments

• Four companies received funding to move novel research discoveries (some generated by Society-supported projects) into preclinical development • Fast Forward and the Juvenile Diabetes Research Foundation began jointly funding a drug discovery program that leverages resources for therapeutics with promise in both MS and diabetes• Fast Forward and Merck Serono collaborated on a novel agreement that will bring $19 million over five years to speed new MS therapies to market

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We address the challenges of each person whose life is affected by MS. The chapter reaches out and responds to individuals, families and communities living with MS.

This year, we provided in-person education to over 30,000 people in Orange, San Diego and Imperial counties. Almost 2,200 clients attended one of our programs, professionally-led support groups or physical wellness classes or received our services. Learn more at MSpacific.org

Programs AND Services

Some Notable Highlights:

We fielded over 4,800 local requests for information and/or referral.

Four issues of the MSConnection, our quarterly newsletter, were sent to 52,000 total recipients and more than 150,500 email recipients.

Over $295,000 in direct assistance was provided to almost 600 people for grants for independence, modifications for homes, hand controls for cars, utility relief during the hot summer months, emergency assistance to avoid homelessness, transportation assistance, equipment assistance, respite care and chore services.

60 volunteers provided over 1,400 friendly visits to people with MS who rarely leave the home or live in long-term care facilities.

Seven physicians started Walk MS teams, recruiting a total of 200 walkers and raising over $25,000 for the inaugural Physician’s Challenge.



We are activists. Everyone involved in the National MS Society has a stake in the public policies that shape lives — from local parking ordinances to state insurance regulations to the federal entities that grant research funds.

At the Pacific South Coast Chapter, 1,769 individuals are part of the MS Action Alert Network and 26 people living with MS are MS Ambassadors.

Change happens through MS activism. The National MS Society and MS activists nationwide relentlessly advocate every day for federal policies and government programs to benefit the lives of people with MS and their families. The MS California Action Network, MS Action Network and the chapter’s Government Relations Committee advocate for research monies and health care rights, striving to promote public policy in the best interest of people with MS. Learn more at MSpacific.org

Activism

More Progress in Government Relations & Activism

Society activists persuaded the Congressionally Directed Medical Research Program at the Department of Defense to allocate nearly $12 million in new MS research funding from 2008 to 2010.

The Society engaged the Obama administration in priorities for people with MS and coordinated efforts to drive policy changes, especially concerning caregiving.

MS Awareness Week in March saw another increase in media coverage and constituent engagement across the nation.

Media placements featuring the Society occurred almost 18,000 times and a national story about MS appeared at least twice each week.

The Society’s Activist Network, which increased to over 65,000 people, ensured that people with MS were heard.

The bipartisan Congressional MS Caucus grew to include 118 representatives and 21 senators, all of whom support federal legislation impacting people with MS.

Local activism grew with 180 coalitions across the Society’s chapters working on state and local MS issues.

The National MS Society participated in 17 national coalitions on healthcare reform, chronic disease issues, support for medical research and disability rights.

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We mobilize the talents and resources of the millions of people who want to do something about MS.

Volunteerism

We will raise $1.25 billion by the end of 2010 to be used to create a world free of multiple sclerosis.

Economic challenges or not, the Society’s donors and fundraisers gave generously to support Society programs and services and research to find the cause and cure of MS.

Bike MS: 2,401 people cycled and raised $2,453,430 million at the two-day, 30, 100- or 150-mile Bike MS Bay to Bay Tour, Sponsored by Land Rover Miramar. The Tour was also voted the “Best Cycling Event” by readers of Competitor maga-zine for the fourth consecutive year.

MS Dinner Auction: 450 guests helped raise $420,000 at the MS Dinner Auction sponsored by Azamara Cruises held at the Loews Coronado Bay Resort.

Walk MS: At the University of California, Irvine; LEGOLAND® California in Carlsbad; and NTC Park in San Diego, 12,243 people raised over $1.7 million at San Diego County Credit Union Walk MS.

MS Golf Invitational: At the La Jolla Country Club, $149,440 was raised by 120 players. Coach Norv Turner of the San Diego Chargers acted as the chair for the event, and was joined by Philip Rivers and other star players.

Race to Stop MS Endurance Training Program: 38 Triathletes and marathoners competed in over 5 races and raised $58,552.

Challenge Walk MS: In September 2010, 263 Walkers plus 71 Super Crew and Crew members raised $905,569.

None of the accomplishments this year could have happened without the engagement of talented, hardworking, generous volunteers. The National MS Society embraces, values, and recognizes every contribution. With the help of volunteers, we stretch our donor dollar and build a stronger organization. We partner with volunteers every day, at every level, and with every project. We welcome volunteers with diverse talents and backgrounds. We will work with their availability and lifestyle, and provide growth and development at all points of service.

Chapter Achievements Include:

290 individuals served as leadership volunteers, leading over 5,100 individuals serving as volunteers.

Some 2,700 people received support by attending one of our 32 self-help groups (led by over 50 volunteers).

The local MS Action Alert Network was activated this year reaching out to more 1,700 volunteer activists who are telling their stories to our local public officials.

Twenty-six MS Ambassadors shared a personal story to educate and inspire event participants and donors.

We engaged more than 15,600 walkers, cyclists or other event participants, who advanced MS awareness and raised vital funds.



INCOMESpecial Events $4,336,285 Members & Contributions $844,517 Legacies & Bequests $473,282 Other Income $192,356

EXPENSESClient & Professional Services $2,540,031 Research & National $1,960, 584 Management $453,092 Fundraising $$854,524

About our funds

Special Events 74%

Legacies & Bequests 8%

Other Income 3%

Membership & Contributions 15%

REvENuE

Client & Professional Services 44%

Management & General 7%

Fundraising 15%

Research & National 34%

EXPENSES

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Board OF Trustees

Executive CommitteeChris Serocke, Chair

Barry Clarkson

Tim Holl

Mark Malbon

Cynthia Perazzo

TrusteesEllie Barnard

Dawn Beattie

Phil Bresnick

Sam Brusco

Dr. Jody Corey-Bloom

Kate Eder

Jeffrey Egertson

Dr. Art Flippin

Cecelia Garr

Franklyn Gottbetter

Jayne Hancock

Rick Hausman

Charlotte Hayes

Dr. William Hornstein

Zuzana Hostomska

Greg Joumas

Tom Karlo

Jim Kesaris

Nan Luke

Penny Martin

Barbara Maurais

Dan McAllister

John G. Most

Lizbeth Najm

Shashona Reynolds

Kimberly Roush

Jerry Sanders

Suzanne Schulman

Norv Turner

Eric Vann

Diane Ward

Stephen Zamucen

EmeritusPat Brown

Bob Clark

Patrick Connors

Richard Hausman

Robert Melucci

Michael Smoger

AdvisoryBill Bisch

James Brown

Gina Cunningham Daley

Margery Dorsey

Pam Fair

Lewis Finkelstein

Ronald Fowler

Francie Mortenson

Thomas Page

Beth Philion

Nancy Rossi

Jerry Sweeney

Blake vonSprecken

Carol Webster

Mrs. Alice Zamboni



In 2010, the National MS Society unanimously endorsed a 5-year strategic roadmap, titled the Strategic Response: 2011-2015. Rather than just a traditional organizational strategic plan, it strives to be a response to the brutal facts of living with MS and identifies what must be done, not only at the Society, but globally to achieve a world free of MS. The resulting set of goals and objectives reflects voices across the MS com-munity – hopes, dreams and expectations – and the Society’s plan to drive results in five key areas. The Strategic Response effectively guides priorities and work across the organization and the entire MS movement – fueling progress and moving us closer to a world free of MS.

Individuals and organizations from across the country and around the world guided our work to develop the 2011-2015 Strategic Response. The Society began an outreach process, engaging nearly 10,000 individuals — including over 7,000 people living with MS. Their shared experiences and perspectives provided clear expectation about what must be accomplished to change the lives of those with MS by the year 2015. Participants represented a wide range of people in the MS movement: those liv-ing with all forms of MS, health care professionals, researchers and scientists, elected officials and activists, donors and event participants, corporate partners and pharma-ceutical companies, volunteers, and more.

The resulting Strategic Response for 2011-2015 is bold, and reflects the urgency we collectively share in our work for the next five years – focusing on key priorities and outcomes that impact life with MS in 2015 and beyond.

Strategic response

As with the Strategic Response for 2006-2010, five key strategic goals provide the foundation for the response. Each goal is supported by the objectives and expected outcomes that impact the lives of everyone affected by MS.

We are a driving force of MS research and treatment to stop disease progression, restore function, and end MS forever.

We develop, deliver and leverage resources to enhance care for people with MS and quality of life for those affected by the disease.

We are leaders in the worldwide MS movement, mobilizing millions of people to do something about MS now.

We are activists.

We develop and align human, business and financial resources to achieve breakthrough results.


OctoberJobtoberfest Job Fair

Diet and MS - Statewide Teleconference

Moving Forward: Program for the Newly Diagnosed

November (National Family Caregiver Month)

Medicare - Statewide Teleconference

Caring for the Caregiver - Statewide Teleconference

Turkey Delivery Day

DecemberSycuan Annual Family Holiday Brunch

Stress Management-Statewide Teleconference

JanuaryUnderstanding Your Benefits (SSI/SSDI) - Statewide Teleconference

Annual Meeting of Members

FebruaryMoving Forward: Program for the Newly Diagnosed

Benefits of Exercise - Statewide Teleconference

MarchPublic Policy Conference

California Research Forum

MS Awareness Week

Living with Progressive MS - Statewide Teleconference

MS California Neuro Alliance Meeting

UCSD MS Symposium

When MS Progresses: Professionally Led Group

AprilLong Term Financial Planning - Statewide Teleconference


2009-2010 Local Programs and Services Provided:



Calender OF EventsMayMoving Forward: Program for the Newly Diagnosed

Between You and Me: Couples Group - Costa Mesa

Between You and Me: Couples Group - San Diego

Annual Day at the Bay

Top 10 Facts About Employment - Statewide Teleconference

JuneFirst Steps: Newly Diagnosed Group - San Diego

First Steps: Newly Diagnosed Group - Costa Mesa


Hiring Help in the Home - Statewide Teleconference

MS Family Cruise

JulyFirst Steps: Newly Diagnosed Group - San Diego

First Steps: Newly Diagnosed Group - Costa Mesa


MS Research Symposium

National Health Care Reform and MS - Statewide Teleconference

AugustMoving Forward: Program for the Newly Diagnosed

Managing Pain - Statewide Teleconference

SeptemberBoys Night Out

Family Night at the Movies

Accessibility Begins at Home -Statewide Teleconference


T hank youThank you to our generous sponsors!

Abbott Nutrition

Ability Center

Ability Magazine

Ace Relocation Systems, Inc.

Addie’s Personal Training Studio

Albertsons

Albertsons/So Fresh Market

Allie’s Party & Equipment Rental

Amino Vital

AMN Healthcare

Armstrong Egg Farms

Azamara Club Cruises

Barefoot Wine

Barney’s Premium Foods

Barona Casino

Bear Naked

Beckman Coulter Foundation

Biogen/IDEC

BJ’s Restaurant & Brewhouse

Blistex

Bonk Breaker

Boeing

Brutoco Engineering & Construction

California Sulphur Co.

CARES

Cart Mart

Cascadian Farms

CBS Outdoor

Clear Channel Outdoor

Clear Channel Radio

Clif Bar/ Quench

Coca Cola

Coffman Valentine

Collins Plumbing

Competitor Magazine

Continental Airlines

Courtyard Marriott Carlsbad

Creative Flavor Concepts

Crystal Geyser

CSA

Curves

Deluge Sport Drink

Disneyland Resort

Don Franciscos Coffee

East County Herald News

EMD Serono

Enterprise

Erin Baker’s Wholesome Baked Goods

Evan’s Tires & Service Centers

FedEx

Fitness Chiropractic

Flower Fields

Fluid

Fly by Night

Frazee Paint & Wallcovering

Fuser Bar/Diesel Stix

GEICO

General Mills

Genzyme

GMI Security

Golden Eagle Insurance

Golden Spoon

Grossmont Healthcare District

Griggs & Associates

Hansen’s Beverage Company

The Hausman Foundation

HD Supply

Heritage Foods/Kerns Nectar

Higher Level Sound

Homestead Sheet Metal

Jelly Belly

Jimbos

Kaiser Permanente

Kaplan College

Karl Strauss Brewing Company

Kashi

Kool-N-Fit Sport

KOST 103.5/MYfm

KPBS

KPMG

KTLA 5 News

KxKy 96.5

Land Rover Miramar

Langer’s Juice

LEGOLAND® California

T hank youLeo Hamel Fine Jewelers

Lexus San Diego

Loews Coronado Bay Resort

MARC

MedMedia

Melissa’s

Mighty Ducks of Anaheim

Mobile Music Plus

MOST Agency

Motor Tabs

MSC Software

Morgan Stanley Smith Barney

NBC 4

NBC 7/39

NetApp

NetCost Advisors

New Country 95.7

Novartis

Outdoor Insight

Pacific Ambulance

The Pacific Life Foundation

Papa John’s

Pearl Izumi

Pedro’s Tacos

PennySaver

Pepsi

Pfizer

Postal Annex

Powerade

Presidio Sentinel

Provide Commerce

Pure Design

Pure Protein

Qualcomm

Questcor

Ralphs

Raphael’s Party Rentals

Redfearn & Associates

Rehab United

REI

Road Runner Sports

Roberto’s Very Mexican Food

Rock N’ Road Cyclery

Roel Construction - Hausman Foundation

Roth Capital Partners

Sammy’s Woodfired Pizza

San Diego Business Journal

San Diego County Credit Union

San Diego Family Magazine

San Diego Padres

Scripps Health/Encinitas

SDG&E

Sempra Energy

Seven/Eleven

Shoebacca

Side Jobz

Smoke House Grills

Sophie 103.7

Souplantation

Southern California Gas

Spanky’s Portable Sanitation Services

The Suess Foundation

Sullivan Moving & Storage

Sycuan Casino

Teva Neurosciences

The Gondola Company

THE UPS STORE

Torrey Pines Bank

Torrey Pines Kiwanis

Trader Joe’s

U.S. Mailing House

UltraStar Cinemas

Unified Port of San Diego

Union Bank of California

University of California, Irvine

ViaSat

Wahoo’s Fish Taco

Walmart

Wawanesa Insurance

Wells Fargo

Westfield Plaza Camino Real

WIN Therapy

Yikes ID!

The Zable Foundation

Thank you to our volunteer photographers for donating their time and services. All of the photos we use throughout the year and in this annual report

comes from these talented individuals.

Roy AngTina ChiouRick ClickDaniel ColonMichael DomingoPat FlanaganAlex GarciaAlicia Grant

Ivo JurgensAnna KaufmanDave KeenanMary KostrubaRaju KosurPatis LeeCarlos LondonoMark MalterKatrina Manio

Donavan MartinJosue MenesesJames MooreMitch MurphyErin O’LearyJonathan PadillaPatrick PuBryan Ramsay

Terry SchwartzJeff SeltzerVivian SepeKushraga ShahMatthew ThompsonSam WagstaffVic WellsDavid Zumaya

Early and ongoing treatment with an FDA-approved therapy can make a difference for people with multiple sclerosis. Learn about Your options by talking to your health care professional and

contacting the National MS Society at www.nationalMSsociety.org or 1-800-344-4867 (1-800-FIGHT-MS).

12121 Scripps Summit Drive, Suite 190San Diego, CA 92131

3000-C Airway Avenue, Suite 100Costa Mesa, CA 92626

1-800-486-6762www.MSpacific.org

PacificSouthCoastChapterOffices

www.facebook.com/MSpacific

designed and produced by Penny Welton Designs | 949.496.4896

annual report 2009-2010

Documents

n page

ms exciting progress

n progress report

specific ms symptoms

symptom of ms ampyra

national ms society

driving force of ms

annual challenge walk