thinkwell 2013

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Can The Public Do Their Own Trials Online?

Amy Price

Public Led Online Trials (PLOT)

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Who are we?

The public is smart enough to master risk, odds and ethics while conducting research. They have untapped potential for improving decision-making, education, policy and advocacy. Join us to provide them with training and a voice

Dr. Amanda Burls

Presented in cooperation with ThinkWell and Zooniverse

Amy Price

3Amy Price

AIMS

AIMS To develop an online randomized controlled trial to assess shared decision making for better health and wellbeing. To accomplish this aim we will develop build and test the infrastructure for valid online trials.

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How To Get there From Here

Amy Price

“The most under-realized resource in research is the patient.”

The Public are smart and they are architect consultants in their own healthcare

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Application Requires Preparation

Amy Price

Real Public Research is Active and informed Decision-Making

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Learning is a Team Function

Learn Research Interactively Choose the Question and the Involvement

Amy Price

Where The Public Decides Research Priorities

DO IT TOGETHER YOUR WAY!

Choose topic

Hands On

learning

Do The Research

• Bio-Feedback for Pain

• Aging without Alzheimer’s Disease

• Drinking water is it a weight loss tool?

Here is where we start

Project plan- Pilot study protocol

International online

collaboration

Steering group

Funding

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TRIALS STEERING GROUP

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Professor Mike Clarke

PLOT Methodology Trials Advisor

Amy Price

Professor Lelia Duley

PLOT Chief Clinical Trials Lead

Director, Nottingham Clinical Trials Unit, Faculty of Medicine & Health Sciences

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Amy Price

Dr. Eric T MeyerPLOT Embedded Research Advisor

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Zooniverse Provides Prime the Pump Funding

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Dr. Chris Lintott

ThinkWell and Zooniverse YES WE CAN!

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Cycle of Knowledge

Question

Find Answers

Priorities

Design

Do Research

Analysis

Make an Informed Choice

“The mind is not a vessel to be filled, but a fire to be kindled.” ― Plutarch

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Join The Headache and Water PLOT-IT Research Trial

Tell us about you

Trial information

Consent

Tasks

What’s in it for me

Amy Price

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Should we drink extra water?And if so, how much?

Join inresearch

to findout!

?You expressed interest in headaches and drinking extra water

Amy Price

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Two Week Feasibility Water intake and Headache RCT

Amy Price ThinkWell and Zooniverse YES WE CAN!

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Two Week Feasibility Water intake and Headache RCT

Amy Price ThinkWell and Zooniverse YES WE CAN!

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5 76 8

Join inresearch

to findout!

?How much water do I drink?

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3 4

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Forgot? Drink the extra when you remember

=500ml

=120ml

=1L

=2L

At ThinkWell The Public Does Research

ThinkWell Transformation In Health Research

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Input From Non Compliant Is Important too

Amy Price Embedded and qualitative Research will Deepen What we Know

ThinkWell Where Public Applies Research

ThinkWellApplication Requires Preparation

The application of what we know already will have a bigger impact on health and disease than any drug or technology likely to be introduced in the next decade.

Sir Muir Gray.

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Failure is an event not an identity

The miracle is not that I finished but that I had the courage to start - J Bingham

Amy Price

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Embrace The Shake

Paralyzed by choice

Be limited to be limitless

Why forced destruction

Creative thinking

within the box

Public Led Research In Action

JOIN us to put the public at the heart of research

YESTERDAY YOU SAID TODAY JUST DO IT

The more distracted we are by future promises the less we focus on current need

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ThinkWell Public Led Online Trials

Building Research With You

Courage Grows Where Encouragement is Shared

ThinkWell

Richard Branson Says Screw it JUST DO IT!

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Together We Can

MAKE RESEARCH FUN

Help ThinkWell Make Fun Research Public Led

THANK YOU EBHC

Amy Price