sibling leadership network with autism now march 13, 2012
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8/2/2019 Sibling Leadership Network with Autism NOW March 13, 2012
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Involving Siblings in the
Transition Process for
Young Adults with Autism
and Other Disabilities
March 13, 2012
Sarah Hall, Ph.D., Ashland UniversityTom Fish, Ph.D., Ohio State University
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www.siblingleadership.org
Mission: To provide siblings of individuals
with disabilities the information, support,and tools to advocate with their brothers and
sisters and to promote the issues important to
them and their entire families.
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Background
Founded in 2007, the SLN has held annual
conferences to connect siblings andprofessionals
Developed a policy white paper with
recommendations on policy and advocacy,research, and services and supports
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Partnership
Key partnerships include:
Sibling Support Project
Self Advocates Becoming Empowered
The Arc
AutismNOW, a national initiative of The Arc
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State Chapters
Alabama
DC
Georgia
Illinois
Massachusetts
New Hampshire
New York
Ohio
Oklahoma
Tennessee
Utah
Wisconsin
For more information on how to start a state
chapter of the SLN, contact Ashley Coulter at
ashley.coulter@Vanderbilt.edu.
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Join the SLN
Visit www.siblingleadership.org
Find us on Facebook at
http://www.facebook.com/siblingleadership
Email info@siblingleadership.org
http://www.siblingleadership.org/http://www.facebook.com/siblingleadershiphttp://www.facebook.com/siblingleadershiphttp://www.siblingleadership.org/ -
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Ohio SIBS
Ohio SIBS (Special Initiatives for Brothersand Sisters) is a program designed toempower adult siblings of people with
developmental disabilities by supplyinginformation about services, supports,resources, and quality outcomes.
Ohio SIBS provides education and training inpublic advocacy and offers emotional supportand wellness opportunities.
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Ohio SIBS
Tom Fish organized the first conference in2001 for siblings across the state.
Ohio SIBS became a nonprofit organization in2011.
Diverse board of 15 members from acrossthe state
In process of hiring an executive director
Holds regional information sessions
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A group of sibling advocates meet with U.S. Senator Edward M.
Kennedy, who was also a sibling.
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Ohio SIBS Conference
The purpose of the Ohio Adult Sibling Conference isto create an environment where adult siblings cangather together to share family experiences, developnew relationships, obtain relevant information, and be
recognized as an integral part of the familys success.
Attendees have heard presentations from state andnational IDD professionals, educators, and
politicians. Attendees also enjoy meeting other adultsiblings and exploring topical areas of interest.
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Importance of Siblings
Longest life relationship
Often have unique insights andperspectives
Able to provide a continuum of supportand information
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Importance of Transition for
Individuals with Disabilities
A time of significant change from high schoolto adult life
Students prepare for
Employment
Education/ training
Community Living
Social Activities
Time for community and family support
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Important Roles Siblings Can and
Often Do Play
Caretaker/ caregiver
Advocate
Teacher
Role Model
Behaviorist
Translator
Friend/ companion
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Things Parents and Professionals Can
Do to Support Siblings
Listen
Ask questions
Ask open ended questions Be open to any response or feeling
Dont make assumptions
Connect to other siblings
Realize things might change Involve them in planning
Keep them informed and updated
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Sibs Looking Forward:
A Retreat about Transition
The sibling retreat is a weekend wherestudents with autism and other disabilitiesand their siblings will explore transition topics
and enjoy recreation and leisure activitiestogether.
The retreat will help promote awareness,understanding, and dialogue about transition
and develop self-awareness and confidencefor students and their siblings.
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Sibs Looking Forward:
A Retreat about Transition
15 pairs of siblings
Students with disabilities from age 16-22
Siblings from age 15-25
Counselors will be Ohio SIBS members
Overnight camp from Friday to Sunday
Pre/post evaluation measures
Monthly engagement after the retreat
Opportunity for ongoing mentorship
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Sibs Looking Forward:
A Retreat about Transition
Retreat Goals:
To gain knowledge about transition, options
for the future, and supports available. Participants will know how to advocate for
themselves and others.
Participants will explore their current andpotential roles of advocate, support, andfriend to their brother or sister.
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Sibs Looking Forward:
A Retreat about Transition
Retreat Activities:
Group discussions
Teambuilding challenges Advocacy practice
Sharing thoughts and experiences
Sibling bonding time
Campfires and outdoor fun!
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Contact Information
Sarah Hall Ph.D., Ashland University
sahall@ashland.edu
Tom Fish Ph.D., Ohio State University thomas.fish@osumc.edu, 614-685-8723
Ohio SIBS www.ohiosibs.com
mailto:sahall@ashland.edumailto:thomas.fish@osumc.eduhttp://www.ohiosibs.com/http://www.ohiosibs.com/mailto:thomas.fish@osumc.edumailto:sahall@ashland.edu
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