nothing about us, without us!
Post on 30-Dec-2015
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Nothing about us, without us!
Including people with dementia
Christine Bryden (Boden)
DASNI
Self-advocacy by DASNI
• Started running in 2000
• Approached ADI in 2001
• Handed over the relay baton
• ADI must finish the race
What is our label?
• Dementia:– out of one’s mind
• The stereotype:– someone in the later stages
• The myth:– We all can’t speak– We all lack insight
The oppression of stigma
• Stereotype and myth leads to stigma
• Society can’t see the person within.
• Veil of stigma masks our potential and oppresses us
Stigma is a disease of society
• We are trapped within a web of stigma that– oppresses us, and
– casts a veil across our lives
• The greater the stigma– the more likely our “adaptive
behavior”
How can we remove the barrier?
• Stigma is a barrier– behind which we experience
loneliness
• We must address the stereotype and myth of dementia
• and focus on emotions and spirituality rather than cognition
Our invisibility makes the stigma worse
• When we are invisible– you believe that we are all alike
• When we become visible – we can seek a cure and
treatment.
• You can be our ally – believe in our potential,– you need us and we need you.
Run the race for us!
• We decline daily– we may not want to or be
able to be involved– but we want to be asked
• We need your help
• Be our ally– value us and give us our
dignity and individuality
Nothing about us, without us
• Use us as visible representatives of our shared cause.
• As we become more visible, the stigma will slowly disappear.
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