maryland caregiver survey results
Post on 15-Jan-2016
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Family Caregiver Needs Assessment 2014-2015: A Deeper Look Presentation to the Maryland Caregivers Support Coordinating Council Amy Fuhrmann, M.S., Consultant Counseling Psychology University of Maryland 4.2.15
Differences for Male and Female Caregivers
• 33% of Female Caregivers provided care for 10+ years, compared with 22% of Male Caregivers
• Female caregivers report statistically significant, higher levels of physical fatigue, emotional hardship, and financial hardship than male caregivers
• Male caregivers tended to be older (15% of male caregivers were 75 or older, compared with only 6%)
• Female caregivers were more likely to be divorced (14% compared with 4%)
• More non-white female caregivers (31% compared with 23%)
n= 1,828 (data as of 3/17/15)
13.30%
85.70%
0.10% 1.00%
Gender
Male Female
Differences Age of Caregiver • Average Age of Caregiver: 57
• 18 to 34– tend to be more ethnically diverse (45% non-white), have lower income (56% less than $50K household income) take care of a mother or grandparent (37%), whose primary condition is Alzheimer’s (21%), Intellectual Disability (15%), or Chronic Disease (13%)
• 35 to 49– tend to be white (59%), have more income (51% more than $50K household income), take care of a child (33.4%), whose primary condition is Intellectual/Developmental Disability (29%), Alzheimer’s (17%), or Chronic Disease (17%)
• 50 to 64– tend to be white (71%), have more income (78% more than $50K household income), take care of a mother (39%) or child (23%), whose primary condition is Alzheimer’s (26%), Chronic Disease (16%), or Intellectual/Developmental Disability (17%)
• 65 to 74– tend to be white (77%), have more income (76% more than $50K household income), take care of a spouse (29%) or Mother (34%), whose primary condition is Alzheimer’s (26%), Mobility (24%), or Chronic Disease (17%)
• 75+ - tend to be white (77%), have moderate resources (63% more than $50K household income), take care of a spouse/partner (73%), whose primary condition is Alzheimer’s (34%), Chronic Disease (14%), or Mobility (24%)
3.70%
18.00%
53.30%
17.90%
7.10%
Age
18 to 34 35 to 49 50 to 64
n= 1,828 (data as of 3/17/15)
Differences By Age of Care Recipient
8.30%
14.70%
4.90%
8.30%
12.30%
23%
28.40%
0.00%
5.00%
10.00%
15.00%
20.00%
25.00%
30.00%
Age of Care Recipient
Under 18 18 to 34 35 to 49 50 to 64
65 to 74 75 to 84 Over 85
• Under 18: • 63 % have Intellectual/Developmental Disability • Caregivers reported the most need for financial support
(68 %) and a break (62 %) • 18 to 34:
• 63 % have Intellectual/Developmental Disability • 81 % of those 18 to 34 have received care for ten or more
years • 35 to 49:
• 20 % have Mental Illness • 50 to 64:
• 23 % have a Chronic Disease (e.g., cancer) • 65 to 74:
• 26 % have Alzheimer’s/Dementia (22 % Chronic Disease) • 75 to 84:
• 41 % have Alzheimer’s/Dementia (25% Chronic Disease) • 85+:
• 39 % have Alzheimer’s/Dementia (24 % Mobility)
Differences By Race/Ethnicity • African American/Black persons twice as likely to care for someone with HIV/AIDS and more likely than any other group to provide constant care.
• Non-white caregivers identified more need for financial support.
• Non-white caregivers identified a greater need for information about government services: White 24 %; Black 33 %; Asian 36 %; Native American 33 %; Other 29 %
• More male caregivers are white than Black, Asian, and “other” groups (2 of 6 Native American caregivers – 33% -- were men)
• Non-white caregivers reported lower incomes. Under $50K White 22%; Black 45%; Asian 23%; Native American 50%; Other 29%
Race/Ethnicity of Caregiver
Baltimore City
White – 80 % Black – 10 % Asian – 2 % Native American - .4 %
White – 93 % Other – 7 %
White – 31% Black – 60 % Asian – 1 %
White – 68% Black – 27 % Asian – 2 %
White – 76% Black – 20%
White – 74% Black – 21% Asian – 3%
White – 95% Black – 2.3%
White – 79% Black – 14%
White – 82% Black – 18%
White – 42% Black – 52% Asian – 2 %
White – 92% Asian– 2%
White – 100%
White – 86% Black – 8 % Asian – 2 %
White – 70 % Black – 15 % Asian – 1% Native American - 1%
White – 75% Black – 13%
White – 79% Black – 6% Asian – 1%
White – 34 % Black – 55 % Native American - 1%
White – 85% Black – 4% Asian – 4% Native Amer.- 4%
White – 50% Black – 44% Asian – 6%
White – 70% Black – 20% Asian – 5%
White – 77% Black – 17% Asian – 3%
White – 80 % Black – 7 % Native American - 3%
White – 66% Black – 29%
White – 90% Black – 7%
Awareness of the
• Only 4% of 18 to 34 year olds knew of the Council, while 21% of 75+ did: Systematic increase in awareness with age of caregiver.
• Of people who are aware of the Council, the most were female (90%), care for their mother (39%), followed by a spouse (18%), child (17%), and father (10%). Most provided long-term care (80%) for someone 85+ (34%), 75 to 84 (25%), or 18 to 34 (14%). Most common condition of care recipient was Alzheimer’s (32%), blindness (17%), and Intellectual/Developmental Disability (12%)
• Of people who were NOT aware of the Council, the most were female (85%), care for their mother (33%), followed by a child (23%), spouse (17%), and father (9%). Most provided long-term care (81%) for someone 85+ (28%), 75 to 84 (23%), or 18 to 34 (15%). Most common condition of care recipient was Alzheimer’s (24%), Intellectual/Developmental Disability (18%), and Chronic Disease (16%)
Awareness of the Maryland Caregivers Support Coordinating Council (CONTINUED)
0%
15%
10%
12%
8%
10%
13% 13%
6%
0%
2%
4%
6%
8%
10%
12%
14%
16%
Awareness of Council by Condition
AIDS/HIV Alzheimer's Blindness Chronic Disease Intellectual
Mental Illness TBI/PTSD Mobility Stroke
Differences from 2002 to 2015 Assessment
2002 – 679 respondents
• 47 % High School Education or Below
• 45 % Provide Constant Care
• 45 % Need Financial Support
• 56 % Earn less than $50K
• 35 % Care for Child, 22 % Spouse
• 26 % Care Recipients had Developmental Disability
• 47 % Work Full-Time
• 20 % Are Retired
2015 – 1828 respondents • 10 % High School Education or Below
• 37 % Provide Constant Care
• 52 % Need Financial Support
• 27 % Earn less than $50K
• 24 % Care for Child, 16 % Spouse
• 18 % Care Recipients had Developmental Disability
• 65 % Work Full-Time
• 24 % Are Retired
*reported differences are all statistically significant
Alzheimer’s Caregivers • 22% African American/Black
• 53% of care recipients were mothers or mothers-in-law (21% spouse)
• 25% were from Anne Arundel County
• 48% of caregivers had been providing care for 1-4 years
• 51% of caregivers reported considerable or great emotional hardship
• 31% of caregivers reported regular or great financial hardship
• 44% identified financial support as a need; 48% needed a break; 23% needed help understanding how to pay for nursing home; 26% needed information about government services
• 15% were aware of the Council before the survey, 21% were aware of respite care
Caregivers for those with Intellectual/Developmental Challenges
• 91% female; 16% African American/Black
• 86% of care recipients were children of caregiver
• 21% were from Montgomery County (15% Baltimore County)
• 82% of caregivers had been providing care for 10+ years
• 41% of caregivers reported considerable or great emotional hardship
• 41% of caregivers reported regular or great financial hardship
• 54% reported financial support as a need; 51% needed a break; 29% needed legal help; 26% needed information about government services
• 8% were aware of the Council before the survey; 32% aware of Respite Care
Caregivers of Veterans • 36% cared for a spouse; 38% for a father or father-in-law
• 33% of recipients had cognitive impairment (Alzheimer’s); 25% had chronic disease; 20% had mobility challenges
• 48% of caregivers had provided care from 1-4 years
• 40% reported considerable or great emotional hardship
• 51% needed a break; 27% needed information about government services
• 70% said the government can provide more information about services available
• 13% were aware of the Council; 16% were aware of Respite Care
• 20% were from Anne Arundel County (15% from Baltimore County)
Under $50K vs. Over $50K Income
Under $50K Over $50K
• 26% Alzheimer’s; 18% Chronic Disease; 15% Intl./Dvlp Disability
• 24% Alzheimer’s; 15% Chronic Disease, 18% Intel./Dvlp Disability
• 44% regular or great financial hardship (63% need $ support)
• 27% regular or great financial hardship (40% need $ support)
• 47% need free time/break • 47% need free time/break
• 36% need info about gov. services • 23% need info about gov. services
• 14% were aware of Council; 28% aware of respite care
• 11% were aware of Council; 24% aware of respite care
• 15% from Wicomico County; 12% Anne Arundel; 10% Baltimore City
• 14% Montgomery County; 14% Anne Arundel; 13% Baltimore City
• 37% African American/Black • 17% African American/Black
Respite Care
• 21% of those aware care for someone with Alzheimer’s; 22% Intellectual/Dvlp. Disability; 16% Chronic Disease (almost same percentage unaware)
• 48% of unaware reported need for a break/free time
• 8% of those aware were male vs. 16% unaware
• 30% aware were African American/Black vs. 20% unaware
Next Steps
• Recommendations for data use:
– Brochures
– Findings on redesigned website or reprinted brochures
– Providing partners with results relevant to them
• Discussion:
– How can this data help to make the case for funding or legislative purposes?
– What other questions need to be asked and answered through our data?
– How can this data best be available to you and our partners in the state?
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