dude, where’s my transition plan? by: family voices of tennessee

Dude, Where’s My Transition Plan?

By: Family Voices of Tennessee

Responsibilities Transition IEP Self-Directed Services/Advocacy Support Systems Student’s Advice $$/Transportation/Housing Pop Quiz

Session Overview

We serve  parents, youth, family members, and professionals who have children with special health care needs

Assist families as they navigate public/private health systems

Educate families to access services, resources and supports

Work with/train health providers and other professionals

At the 2012 F2F grantee meeting we discovered each had a

piece of the transition process; TN= Adult section, KY=Youth

piece. 

Collaboration made sense

“Dude, where is My Transition Plan” was born!

Who’s on first?

Each state interviewed

“transitioning aged youths”

We learned most youths are not

prepared for Transition

We learned youth need more

help with Transitioning to

Adulthood

“How could we improve the

process of transition?”

“Needed hands on experiences”

Are You Talking to Me?

Yeah, I’m Talking to You!

Start at an early age

Each child may differ

Responsibilities change as the child

gets older

Youth should be included in decision

making

Including health care and education

Does your youth know what they are

responsible for once they turn 18?

So Many Responsibilities…So Little Time!

As you grow, so will your

doctors!

Where does my specialist fit

in

Finding a doctor that meets

my needs AND covers my

health plan

Affordable Care Act…does that affect me?

Health Care

It’s about Civil Rights

Protects you from being discriminated against

due to your disability.

Knowledge of Rights Under the ADA

(American with Disabilities Act)

The ADA requires health care providers to

provide individuals with disabilities:

full and equal access to their health care

services and facilities.

reasonable modifications to policies, practices,

and procedures

ADA and Health Care Providers

an accessible exam table

or a patient lift

enough trained staff

available who can assist

you to transfer

a qualified interpreter

written materials

assistive listening devices

Examples of Health Care Provider Accommodations

It’s a

change

It’s

exciting,

yet a little

scary

What is “Transition”

 Parents and teachers talk about transition planning. What is that?

It’s a plan, that involves

the whole team

When should transition

planning begin?

Make a New Plan, Stan

Your Individualized

Education Program (IEP) is

like a road.

“Individualized” means

about you.

It’s important to pay

attention to your IEP.

Ask your teacher about a

“Self-Directed IEP”.

What does my “IEP” have to do with transition planning?

You (the youth) are in charge

of the services you get.

Important thing to know:

can’t happen w/o self-

determination and self-

advocacy.

What are Self-Determination

& Self-Advocacy?

How can I learn to advocate

for myself?

What are Self-Directed Services and Self Advocacy?

Check it out…

Doing things you haven’t done before

But you don’t have to do it alone

The kinds of supports we need may change

Often we use more than one support at a time

Supports differ from person to person

What do people mean when they talk about “supports?”

Advice from other students Students

listen to other students

Here’s what they say:

What’s the word?

Start early

Actively Participat

eAsk ?s

Learn about

Resources

Learn Independent Living skills

Learn to Drive/use

public transportatio

n

Set goals

Services available after

high school may not be

the same services

during high school.

You will have to locate

new services and

provide information

that you qualify for

those services.

After High School, the Rules Change

Let’s Compare:

Do you have a budget (or know what

a budget is)?

What’s a “money mentor”?

Who could you ask to be your

“money mentor”

Other possibilities

Business owners

Neighbor

teacher

Money Matters

Where do you want to call home? It’s not just “where you

live”

What other choices are available besides living with my parents? Renting Roommates Independent living program

There’s No Place Like Home

How do you get

from one place to

another?

What are your

transportation

options?

Easy Rider

So, now what?

Don’t Just Stand There, Bust a Move!

Complete quiz

Discuss answers

Pop Quiz

Questions?

A special thank you to the Kentucky Family-to-Family Health Information Center for collaborating with us on this project.

Thank you…

Belinda HotchkissFamily Voices Director

Tennessee Disability Coalition615.383.9442

Belinda_h@tndisability.orgwww.tndisability.org

Toll Free: 1.888.643.7811

Tonya BowmanMiddle TN Parent Navigator/Newborn

Hearing Parent ConsultantTonya_h@tndisability.org

www.tndisability.org