dmptool webinar 6: health sciences and the dmptool (presented by lisa federer)

Logistics for Webinar

You Must Call In For Audio: 866-740-1260 access code 9870179#

Participants mutedAsk questions in chat any time

20 minutes for Q&A

Recording & slides, schedule of webinars: blog.dmptool.org/webinar-series

DMPTool Webinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS16 July 2013

Health Sciences and the DMPTool

#dmptwebinar

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Lisa Federer | @lisafedererUniversity of California-Los Angeles, Louise M. Darling Biomedical Library

DMPTool Webinar Series 6: Health Sciences & the DMPTool Sponsored by IMLS16 July 2013

28 May Introduction to the DMPTool

4 June Learning about data management: Resources, tools, materials

18 June Customizing the DMPTool for your institution

25 June Environmental Scan: Who's important at your campus

9 July Promoting institutional services; EZID Outreach Made Simple!

16 July Health Sciences & DMPTool - Lisa Federer, UCLA

23 July Digital humanities and the DMPTool - Miriam Posner, UCLA

13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue

How to give the data management sales pitch to various audiences

Other tools and resources that work with/complement the DMPTool

Beyond funder requirements: more extensive DMPs

Case studies 1 – How librarians have successfully used the tool

Case studies 2 – How librarians have successfully used the tool

Outreach Kit Introduction

Certification program introduction

blog.dmptool.org/webinar-series

Road Map

Goals of this Webinar

NIH policy overview

What to include in a plan

Special considerations

DMPTool and NIH Plans

Resources & more info

From Flickr– Username: Bastian

Webinar Goals

• Introduce requirements relevant to health sciences researchers

• Provide an overview of info to include in plans

• Demonstrate how to use the DMPTool to support NIH

• Point to resources for further help

From Flickr– Username: AG Gilmore

Road Map

Goals of this Webinar

NIH policy overview

What to include in a plan

Special considerations

DMPTool and NIH Plans

Resources & more info

From Flickr– Username: Bastian

NIH Sharing Policies

• NIH Data Sharing Policy

• NIH Grants Policy Statement (2.3.11.2.3 Access to Research Data)

• For full list of NIH policies, see http://grants.nih.gov/grants/sharing.htm

Data Sharing Policy - Applicability

• applicants seeking >$500,000 in annual direct costs

• applications submitted after October 1, 2003

• final research data for research purposes

• all types of research data (clinical/basic science), especially unique data

From Flickr– Username: bengrey

Data Sharing Policy - Applicability

• applicants seeking >$500,000 in annual direct costs

• applications submitted after October 1, 2003

• final research data for research purposes

• all types of research data (clinical/basic science), especially unique data

From Flickr– Username: bengrey

Data Sharing Policy - Applicability

• applicants seeking >$500,000 in annual direct costs

• applications submitted after October 1, 2003

• final research data for research purposes

• all types of research data (clinical/basic science), especially unique data

From Flickr– Username: bengrey

Data Sharing Policy - Applicability

• applicants seeking >$500,000 in annual direct costs

• applications submitted after October 1, 2003

• final research data for research purposes

• all types of research data (clinical/basic science), especially unique data

From Flickr– Username: bengrey

Components of the NIH Application

• Data Sharing Plan (or explanation of why data sharing is not possible)

• Budget/Budget Justification

• Background and Significance Section

• Human Subjects Section

From Flickr– Username: Raphael Moser

Components of the NIH Application

• Data Sharing Plan (or explanation of why data sharing is not possible)

• Budget/Budget Justification

• Background and Significance Section

• Human Subjects Section

From Flickr– Username: Raphael Moser

Road Map

Goals of this Webinar

NIH policy overview

What to include in a plan

Special considerations

DMPTool and NIH Plans

Resources & more info

From Flickr– Username: Bastian

NIH Guidance

Data Sharing Plan

• schedule for sharing

• data formats• documentation

and/or analytic tools provided with datasets

• data-sharing agreement

• mode of data sharing From Wikimedia Commons – German Federal

Archives

Data Sharing Plan

• schedule for sharing

• data formats• documentation

and/or analytic tools provided with datasets

• data-sharing agreement

• mode of data sharing From Wikimedia Commons – German Federal

Archives

Data Sharing Plan

• schedule for sharing

• data formats• documentation

and/or analytic tools provided with datasets

• data-sharing agreement

• mode of data sharing From Wikimedia Commons – German Federal

Archives

Data Sharing Plan

• schedule for sharing

• data formats• documentation

and/or analytic tools provided with datasets

• data-sharing agreement

• mode of data sharing From Wikimedia Commons – German Federal

Archives

Data Sharing Plan

• schedule for sharing

• data formats• documentation

and/or analytic tools provided with datasets

• data-sharing agreement

• mode of data sharing From Wikimedia Commons – German Federal

Archives

Schedule for Sharing

• “timely fashion”• release no later

than acceptance for publication of main findings

• for epidemiological or longitudinal studies, release data in “waves” as available

From Flickr– Username: Kate Tomlinson

Schedule for Sharing

• “timely fashion”• release no later

than acceptance for publication of main findings

• for epidemiological or longitudinal studies, release data in “waves” as available

From Flickr– Username: Kate Tomlinson

Schedule for Sharing

• “timely fashion”• release no later

than acceptance for publication of main findings

• for epidemiological or longitudinal studies, release data in “waves” as available

From Flickr– Username: Kate Tomlinson

Data Formats• proprietary vs.

open formats• consider formats

required by archives

• rationale for why this format was selected

Data Formats• proprietary vs.

open formats• consider formats

required by archives

• rationale for why this format was selected

Data Formats• proprietary vs.

open formats• consider formats

required by archives

• rationale for why this format was selected

Data Documentation

metadata schemas

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Data-sharing Agreements

• outline requirements for ensuring privacy and confidentiality

• stipulate provisions for how shared data may be used

• may include penalties for violating agreement

From Wikimedia– Username: Lucas

Data-sharing Agreements

• outline requirements for ensuring privacy and confidentiality

• stipulate provisions for how shared data may be used

• may include penalties for violating agreement

From Wikimedia– Username: Lucas

Data-sharing Agreements

• outline requirements for ensuring privacy and confidentiality

• stipulate provisions for how shared data may be used

• may include penalties for violating agreement

From Wikimedia– Username: Lucas

Modes for Data Sharing

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under the auspices of the PI in a data archive

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Budget and Budget Justification

• include request for funds for sharing/archiving

• PIs may need assistance on estimating costs for data preparation and archiving

From Flickr– Username: 401(K) 2013

Budget and Budget Justification

• include request for funds for sharing/archiving

• PIs may need assistance on estimating costs for data preparation and archiving

From Flickr– Username: 401(K) 2013

Road Map

Goals of this Webinar

NIH policy overview

What to include in a plan

Special considerations

DMPTool and NIH Plans

Resources & more info

From Flickr– Username: Bastian

Privacy of Human Subjects

• strip identifiers from data

• indirect identifiers and “deductive disclosure”

• restricted data enclaves

• data-sharing agreements

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From Wikimedia Commons– National Cancer Institute

Privacy of Human Subjects

• strip identifiers from data

• indirect identifiers and “deductive disclosure”

• restricted data enclaves

• data-sharing agreements

?

From Wikimedia Commons– National Cancer Institute

Privacy of Human Subjects

• strip identifiers from data

• indirect identifiers and “deductive disclosure”

• restricted data enclaves

• data-sharing agreements

?

From Wikimedia Commons– National Cancer Institute

Privacy of Human Subjects

• strip identifiers from data

• indirect identifiers and “deductive disclosure”

• restricted data enclaves

• data-sharing agreements

?

From Wikimedia Commons– National Cancer Institute

Withholding Proprietary Data

• Small Business Innovation Research (SBIR) grantees = up to 4 years

• Private sector co-funding = 30-60 days

From Flickr– Username: m thierry

Withholding Proprietary Data

• Small Business Innovation Research (SBIR) grantees = up to 4 years

• Private sector co-funding = 30-60 days

From Flickr– Username: m thierry

Road Map

Goals of this Webinar

NIH policy overview

What to include in a plan

Special considerations

DMPTool and NIH Plans

Resources & more info

From Flickr– Username: Bastian

Creating a plan with the DMPTool

Road Map

Goals of this Webinar

NIH policy overview

What to include in a plan

Special considerations

DMPTool and NIH Plans

Resources & more info

From Flickr– Username: Bastian

Resources

• NIH Data Sharing Overview: http://grants.nih.gov/grants/policy/data_sharing/

• NIH Data Sharing Policy and Implementation Guidance: http://grants.nih.gov/grants/policy/data_sharing/data_sharing_guidance.htm

• Full list of NIH sharing policies by Institute: http://www.nlm.nih.gov/NIHbmic/nih_data_sharing_policies.html

• Example data sharing agreements from NCI: https://wiki.nci.nih.gov/display/DSIC/Data+Sharing+Agreements

• Sample plan from NIH (Word doc): http://grants.nih.gov/grants/sharing_example_data_sharing_plan.doc

blog.dmptool.org/webinar-series

From Flickr by Jeff Keacher

Next week: Digital Humanities & the DMPToolPresenter: Miriam Posner, UCLA

Tuesday 23 July @ 10am PT

Register now!

blog.dmptool.org/webinar-series/

28 May Introduction to the DMPTool

4 June Learning about data management: Resources, tools, materials

18 June Customizing the DMPTool for your institution

25 June Environmental Scan: Who's important at your campus

9 July Promoting institutional services; EZID Outreach Made Simple!

16 July Health Sciences & DMPTool - Lisa Federer, UCLA

23 July Digital humanities and the DMPTool - Miriam Posner, UCLA

13 Aug Data curation profiles and the DMPTool – Jake Carlson, Purdue

How to give the data management sales pitch to various audiences

Other tools and resources that work with/complement the DMPTool

Beyond funder requirements: more extensive DMPs

Case studies 1 – How librarians have successfully used the tool

Case studies 2 – How librarians have successfully used the tool

Outreach Kit Introduction

Certification program introduction

blog.dmptool.org/webinar-series

EmailTwitter

Website

lmfederer@library.ucla.edu@lisafedererhttp://www.lisafederer.net

Questions?