big data in cancer control

“Big Data” in Cancer Control & Prevention

Bradford W. Hesse, PhDChief, Health Communication & Informatics Research

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Unravelling the complex gene x environment interactions in

cancer may be the “emperor” of all science problems

Thursday, February 9, 2012

The Network I.T. solutions must include patients, practitioners” -

PCASTThursday, February 9, 2012

Cost of data production is plummeting

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We need data discovery tools

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Clinical data from multiple sources

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Visualization at bedside

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Inform Support Decisions

Educate Persuade

NCI Investments in Data Presentation

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SOURCE: http://alleydog.com/topics/sensation_and_perception.php

Perceptual Basics

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Cognitive / Perceptual Research

source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension. J Educ Psychol. 1999, 91(4): 690-702.

• Constructive process

• Gaze goes to center for pattern

• Contiguous labels for meaning

• Left to right tendency in western culture

• Perceptual rules guide meaning

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Visualizing Long Term Change

source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension. J Educ Psychol. 1999, 91(4): 690-702.

• Constructive process

• Gaze goes to center for pattern

• Contiguous labels for meaning

• Left to right tendency in western culture

• Perceptual rules guide meaning

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Overcome Cognitive Biases

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Overcome Cognitive Biases

Exceptional Case

Fallacy of small numbers;Tversky & Kahneman, 1971

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Clinical / Personal Decision-making

See: Fagerlin, A., Ubel, P. A., Smith, D. M., & Zikmund-Fisher, B. J. (2007). Making numbers matter: present and future research in risk communication. Am J Health Behav, 31 Suppl 1, S47-56.

Centers of Excellence in Cancer Communication

Research: p-50

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Using Interface Opportunities in EHR

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Dissolving Barriers between Clinical & Public Health

Added User Controls14 datasets spanning 6 years

NSF, NIH Collaboration

Thursday, February 9, 2012

Dissolving Barriers between Clinical & Public Health

Added User Controls14 datasets spanning 6 years

NSF, NIH Collaboration

Thursday, February 9, 2012

Data-based Interfaces for Policy

BLS USDA CDC

Thursday, February 9, 2012

Data-based Interfaces for Policy

BLS USDA CDC

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Dose > Response

Old question: How do we communicate in such a way and in such frequency so as to change behavior?

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New question: How do we structure the communication environment to support self-determined pathways of health for individuals, loved ones, and communities?

Institute of Medicine’s Crossing the Quality Chasm series

“Meaningful Use”

Safety, Quality Improvement

Patient Engagement

Continuity of Care

Population Health

Privacy, Security TRUST

* Hesse, B. W., & Shneiderman, B. (2007). eHealth research from the user's perspective. Am J Prev Med, 32(5 Suppl), S97-103.

Thursday, February 9, 2012