asan with autism now webinar march 20, 2012
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8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 1/15
A Very
Necessary Book
Shannon Des Roches Rosa
Carol Greenburg
Jennifer Byde Myers
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 2/15
Shannon Des Roches Rosa Carol Greenburg Jennifer Byde Myers
Shannon Des Roches Rosa writesabout autism, parenting,evidence-based approaches,iPads, and geekery atwww.Squidalicious.com, asBlogHer.com's contributingeditor for parenting kids withspecial needs, and as a co-founder and Senior Editor of TheThinking Person's Guide toAutism. Her writing andinterviews have also been
featured in The New York Times,The Wall Street Journal, andParents Magazine.
She, her handsome husband,and their three capriciouschildren live near San Francisco
Carol Greenburg, executivedirector of Brooklyn SpecialNeeds Consulting, is a special
education consultant and layadvocate in private practiceserving the five boroughs of NYCand beyond. Her uniqueperspective as an adult withAspergers Syndrome and as themother of a severely language-delayed autistic child, informs allof her work. A frequent speaker
at National Conferences and areauniversities, parent supportgroups and community basedorganizations, she is a memberin good standing of Council of Parents Attorneys and Advocates(COPAA). Carol lives in Brooklynwith two humans: hermagnificent husband and son, aswell as two cats.
Jennifer Byde Myers is a writer,editor, and parent of a child withautism. She has been writing
since 2003 atwww.jennyalice.com, chroniclingher family’s journey fromdiagnosis to daily living with herson’s special needs. She is afounder and editor of TheThinking Person’s Guide toAutism. Her writing has beenfeatured at Salon.com, Autism
Speaks, Care.com, and in severalbooks including My Baby Ridesthe Short Bus. She is a regularcontributor at Dandelion andlives on the San Franciscopeninsula with her supportivehusband, two wily children, anda dog named Gus.
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 3/15
• The resource we wish we'd had when autism
first became part of our lives
• One-stop source for carefully curated,
evidence-based information
• Veteran and expert perspectives from autism
parents, autistics, and autism professionals
Why Create TPGA?
Shannon Des Roches Rosa
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 4/15
• Carol Greenburg: Self-Advocate, autismparent, professional advocate
• Jennifer Byde Myers: Co-founder, writer,autism parent
• Shannon Des Roches Rosa: Co-founder, writer,
autism parent• Emily Willingham: Science Editor, autism
parent
• Liz Ditz: co-founder, educational advocate
Five Editors
Shannon Des Roches Rosa
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 5/15
• Positive role modeling: get past stereotypes,
misinformation, negativity
• Clear, thoughtfully presented, balanced,
referenced information
• Promote autism acceptance: not merely noble
but necessary attitude
• Promote rights to medical, legal, social,
educational accommodation
Project Goals
Shannon Des Roches Rosa
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 6/15
• Does this practitioner or vendor promise miraclesthat no one else seems to achieve?
•
Is the person promising the outcome also askingfor money?
• Is there any scientific research supporting theirclaims beyond individual testimonials?
•
Does the practitioner or vendor promise ablanket “cure” for unrelated disorders?
• Does the practitioner or vendor have strongcredentials as an expert in the therapies they’re
promising, or in the field of autism?
Evaluating misinformation
and pseudoscience
Shannon Des Roches Rosa
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 7/15
• One of the most important actions we can take
• Embrace the best, fact-based autism
approaches and attitudes
• Critical attitude: “I love someone with autism
and…” not “I love someone with autism but…”
• Critical, primary voices: Autistics themselves
Thinking Critically
Shannon Des Roches Rosa
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 8/15
Self-advocacy is for everyone
Carol Greenburg
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 9/15
Type of advocacy depends
on your goals
Carol Greenburg
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 10/15
Think Rights. Talk Responsibilities.
Carol Greenburg
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
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Best advocacy works for
everyone involved
Carol Greenburg
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 12/15
Parents, Adults, Professionals
Online and Offline
Fostering Community
Jennifer Byde Myers
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
http://slidepdf.com/reader/full/asan-with-autism-now-webinar-march-20-2012 13/15
Setting up for success with
service providers
Knowledge is Power
Jennifer Byde Myers
8/2/2019 ASAN with Autism NOW Webinar March 20, 2012
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Take the best path
Jennifer Byde Myers
Learn from those who have
come before you
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