accelerating delivery locally and regionally · the personal health record (phr) toolkit supports...

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Interoperable citizen-facing apps

Accelerating delivery locally and regionally

Expo 2018

Andy Payne

NHS Digital

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The Personal Health Record (PHR) Toolkit supports the delivery of citizen-facing solutions being developed via…

- Integrated Care System population health solutions- LHCRE programme- STP funding- Maternity & Child Health programmes

to establish an integrated digital channel between the citizen and health and care professionals, enabling the citizen to be a peer in their own care team, and support them to live healthier lives for longer

How can this help you to help citizens?

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Contributing to the longitudinal record

Longitudinal Personal Health Record

Digital Redbook

Birth Teens 20s 40s 60s 80s

Mental health app

Maternity Digital tool

Sources

Integrated Care Record including

Acute

GP

Mental Health

Community

Social Care Personal

Budget

Social Care

IBD App

Breast Cancer

App

Citizen

Smart Watch

Fitness App

Breast Cancer Screening

Results

CervicalScreening

Results

Well WomanCheckReport

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Citizen-facing digital tools – where are we now?

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To support local and regional organisations to design

and implement quality citizen-facing digital tools, so that

anyone in England can access the tools they need, when

they need to

Goal

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• Support citizen-facing innovation happening at regional &

local levels

• Learn from existing solutions – don’t reinvent the wheel

• Accelerate implementation and adoption

• Promote re-use of nationally provided services at

regional/local level

• Prevent fragmentation and promote interoperability

Toolkit goals - how

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What have you asked for?

Key standards useful for the development of PHRs

Guidance on areas such as procurement, interoperability, benefits content for business cases

Case studies on successful PHRs showing good practice and lessons learned

An interactive map showing where existing or in-development PHRs are, with filtering and fields to allow organisations to contact each other for peer to peer sharing.

Preapproved templates such as data sharing agreements

Updates on latest technology impacting PHRs and what the direction of travel for PHRs are

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https://digital.nhs.uk/

phrtoolkit

The PHR

Adoption

Toolkit

available now

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The PHR Adoption Toolkit – available now

https://digital.nhs.uk/phrtoolkit

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The Toolkit – what’s coming?

Delivery Guidance

Interop Standards

Horizon Scanning

Community

Maturity Model

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Sign-up to get involved

phr.feedback@nhs.net

digital.nhs.uk/phrtoolkit

We need your involvement

Local and Regional PerspectiveWessex / Hants and IOW / Southampton

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phr.feedback@nhs.net

digital.nhs.uk/phrtoolkit

Thank you! @digipershealth

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Expo 2018

Adrian ByrneCIO at UHS

Chair of CIO network

INTEROPen board member

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• Set out our vision for PHR in 2012

• Implemented an “untethered” model

• A patient centred approach

• Work across the UK – various hospitals

• Have led the development for Prostate Cancer UK

programme

PHR - A new future ?

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Cloud based PHR

Patient Portal

Lifestyle

LTC App

Services

Client Portal

Untethered, Open, Personal Health Records

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Open

Platform

PHR

Front End

ApplicationsOpen APIs

Digitally Mature Personal Health Records (PHRs)

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Specialised

Interactive

BroadBasic

• View information

• Newsletters

• General Trust

communications

• Appointment

reminders

• Gathering patient

input e.g.

demographics

• General surveys

e.g.

PROMS/PREMS

• Provide results

• Condition specific

• Targeted surveys e.g.

pre appointment

• Educational Videos

• Reminders for tests/

medication checks

• Protocol driven

information push

• Wearables

• Pre op assessment

• Consent

• Post discharge follow

up

• Support self

management

• Virtual interactions

• Customised surveys

and feedback loops

(red flag questions)

Digital Maturity Model for PHRsbased on KLAS model

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HardEasy£

££££

Return

Basic viewing

Niche connected apps

Wellbeing/Lifestyle

Untethered

• Open APIs

• Identity service

• Data sharing

Content management model

Professional level data content

Personal Health RecordsStart Right – or else!

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Enabling patient centred care

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Open platform

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Open platform

x nUHS

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OpenPHR is Light on Function

• Allow federated identity for apps

• Control proxy access

• Provide APIs to apps/developers

• Security

• Test environment

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OpenPHR is Light on Function

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Some practical uses... Online journals

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Some practical uses... Electronic document

delivery

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Some practical uses... Secure messaging

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Some practical uses... Medications

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Some practical uses... Clinician approved patient information

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Supported Self Management (SSM) Workshop• 3.5 hour workshop

• 8-12 men

• Way of working (Ground rules)

• Introduction to SSM (quiz)

• PSA Tracking & Surveillance

• Health MOT

• Fear of recurrence

• How to contact the clinical team?

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Challenges

• Working with the clinical teams – time to develop

content

• Patient engagement

• Patient registration / consent

• Technology

• Lack of national standards

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Improved care for staff

New roles Faster

recalls

Safety netMore

effective

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Where next?

• Growing use of the My Medical Record

- New use cases, more sites (blueprint)

• Apps ecosystem around OpenPHR

- Open APIs (FHIR etc)

• The STP/LHCRE strategy

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• “I was invited to use My health record and asked to weigh myself using the digital scales once a week. As I was going through a rough patch it was good to know that there were people keeping an eye on how I was doing. If my weight went down too low then I would automatically get contacted by a member of the clinical team.

• I also used the messaging function in the system. It is comforting to have a simple way of telling people you are not feeling well” – IBD patient

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@adebyrne

Thank you!