a website with information and resources to help teens and ... resource for self-adv… · a...
TRANSCRIPT
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
A website with information and resources to help teens and young people with intellectual and developmental disabilities, families and caregivers to achieve successful health transition.
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
• The Taking Charge of My Health team:
• Marilyn Vitale, MA
• Mitchell Levitz
• Barbara Levitz, MS Ed
• Katie Borras, MS
• Karen Edwards, MD, MPH
Website development was supported through a grant from the Special Hope Foundation
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
• Find out how to:
• Transition from pediatric to adult health care
• Live more independently
• Become a self-advocate!
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
What did Taking Charge of My Health mean to me
when I was a teenager and was starting to plan for
when I became an adult?
• Being able to make my own appointments
with doctors and to go on my own so the
doctors would talk to me and not my
parents
• Taking care of getting my own
prescriptions for medicines and then
taking them by myself
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
What did Taking Charge of My Health mean to me
when I was a teenager and was starting to plan for
when I became an adult?
• Having a way to record and keep track of
my own medical information
• Speaking up for myself when talking to my
doctors and other staff in the doctor’s
offices
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
What did Taking Charge of My Health mean to me
when I was a teenager and was starting to plan for
when I became an adult?
• Being the one to make choices and
decisions about my health but with help
from my Circle of Support that I set up
myself
• Deciding what activities I want to do as
part of my lifestyle in order to stay healthy
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
Besides those things that I told you were
important to me, are there other things you
can think of that are part of Taking Charge
of Your Health for you?
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
Overview
• Learning to be more in charge of
your own health care is part of
being more independent in your life.
• These topics will guide you
through learning new information.
• You will look at the many resources
that are available.
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
Overview
• You can read and listen to what other teens and young adults have to say.
• Going through all the topics at your own pace can help you get a full picture of making changes in your health as you become a young adult.
• But if you only want to learn certain things about health, you can just read the parts of this learning series that are of interest to you.
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
Topics
• Getting Started: Transition Plans,
Timelines, and Checklists
• Health Goals in Individualized
School and Community Plans
• Health Records and Health
Summaries
• Health Insurance
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
• Health Choices and Medical Decision
Making
• Moving from Pediatric to Adult Health
Care
• Health Management and Self-Advocacy
• Staying Healthy
• Changing Roles: Letting Go/Taking
Charge
Topics
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
Let’s explore the website!
http://www.takingchargeofmyhealth.org/
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
A Self-Advocate’s View on
Managing Your Health
• Self-advocacy means speaking up for
yourself with doctors and other health
professionals.
• A good circle of support—family and
friends—can help you make good medical
decisions.
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
A Self-Advocate’s View on Managing
Your Health
• Taking care of your health means keeping
track of appointments, taking your
medications, and learning what to bring to
the doctor’s office.
• If you can, learn how to travel to your
medical appointments. Family, friends,
and support staff can help you learn how
to do that.
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
• Whenever possible, choose doctors and other
health professionals who listen to you and make
you feel comfortable.
• Practice how to talk with your doctor and ask
questions. You should understand what to do to
get and stay healthy before you leave the
office—how to take a new medicine or care for
an injury at home.
A Self-Advocate’s View on Managing
Your Health
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
• Eating right, exercising, and getting enough
sleep are important ways you can take charge
of your own health.
• Preventing illness before it starts is the best way
to by stay healthy.
A Self-Advocate’s View on Managing
Your Health
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Westchester Institute for Human DevelopmentUniversity Center for Excellence in Developmental Disabilities
Contact Information
Please feel free to contact us for more
information:
• Mitchell Levitz [email protected]
• Marilyn Vitale, MA [email protected]
• Katie Borras, MS [email protected]