a perspective from both sides of the fence

20
Patient and Family Experience Summit Dr Kate Granger ST5 Doctor in Elderly Medicine & terminally ill cancer patient

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A Perspective From Both Sides of the Fence. Patient and Family Experience Summit Dr Kate Granger ST5 Doctor in Elderly Medicine & terminally ill cancer patient. About Me…. What I’m going to talk about. Experiences as a patient Communication Undergoing procedures - PowerPoint PPT Presentation

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Page 1: A Perspective From Both Sides of the Fence

Patient and Family Experience Summit

Dr Kate GrangerST5 Doctor in Elderly Medicine &

terminally ill cancer patient

Page 2: A Perspective From Both Sides of the Fence

About Me….

Page 3: A Perspective From Both Sides of the Fence

What I’m going to talk aboutExperiences as a patient

CommunicationUndergoing proceduresDeciding to stop chemotherapy

The impact of illness on me as a doctorCommunicationAdvocacyImportance of Palliative Care

Page 4: A Perspective From Both Sides of the Fence

My experience on the other side as a cancer patient

Page 5: A Perspective From Both Sides of the Fence

To me being a patient is…EmbarrassingUndignifiedFrighteningStressfulTime consumingIsolating

Page 6: A Perspective From Both Sides of the Fence

Simple as 1,2,3…

Page 8: A Perspective From Both Sides of the Fence

Imagine this scenario…I am aloneI am in agonyA junior doctor I have never met beforeTells me I have metastatic cancer…

He then leaves me without telling the nurses what he has just said, does not ask if I would like him to get anyone for me and I never see him again

Page 9: A Perspective From Both Sides of the Fence

Finding out my definitive diagnosisMy Consultant sees me with his junior teamHe asks if I want anyone with meAn appropriate warning shot is fired I am gently told that I have DSRCTHe holds my handWhen I break down emotionally and ask the

juniors to leave it is fineLots of quiet time for the news to settleMy questions are answered at an appropriate

level

Page 10: A Perspective From Both Sides of the Fence

Procedure after procedure• Retrograde bilateral ureteric stent insertion• 3 x nephrostomies• 2 x omental biopsies• Hickman line insertion• Flexible cystoscopy and stent removal• Antegrade bilateral ureteric stent insertion• Hickman line removal• (and numerous venepunctures, cannulations,

intimate examinations etc)

Page 11: A Perspective From Both Sides of the Fence

Dignity!

Page 12: A Perspective From Both Sides of the Fence

Deciding to stop

New Year’s Eve 2011In hospital with febrile neutropaenia and peritonitisBurdens of treatment outweighing benefitsPerceived as ‘giving up’ by someRelief from othersConsultant tried to talk me into continuing…

Page 13: A Perspective From Both Sides of the Fence

Impact of terminal illness on me as a practising doctor

Page 14: A Perspective From Both Sides of the Fence

CommunicationImportance of the ‘Little Things’

Page 15: A Perspective From Both Sides of the Fence

Breaking bad newsRight time, right person, right setting, right

after-care

Page 16: A Perspective From Both Sides of the Fence

AdvocacyI can advocate for myself effectivelyMany of my patients cannot…

Page 17: A Perspective From Both Sides of the Fence

Palliative CareArguably the most important time in

healthcare terms for a patientPalliative Care is everyone’s business

Page 18: A Perspective From Both Sides of the Fence

Any questions?

Page 19: A Perspective From Both Sides of the Fence

To summariseSerious illness has had a major impact on me

as a doctorCommunication, communication,

communicationPatient-centred care is the Holy GrailPatients are individual people first and

foremost; they are not just disease entitiesTime to care

Page 20: A Perspective From Both Sides of the Fence

www.theothersidestory.co.ukShameless self-promotion…