Pediatric

Hydrocephalus

Foundation

2019 Annual Report

Message from the CEODear PHF Family,

As we approach the end of this year, I want to thank you for being part of our family. Whether you are a corporate sponsor, supporter, state chapter director, event coordinator, or attend our events held across the country, we appreciate your commitment and dedication, which has been instrumental to the PHF's growth and success.

We celebrated our ten-year anniversary as a non-profit charitable organization this year, and we are honored to provide the Hydrocephalus Community with support and resources while funding research projects to find better treatment options and hopefully one day a cure for our loved ones with Hydrocephalus.

There is still much work to do and I hope 2020 is filled with as many successes and achievements that we experienced in 2019.

In this holiday season, I wish you and your family happiness and good health.

Kimberly Illions

2019 National Ambassadors of Hydrocephalus Awareness

In 2019, Caleb Wiggs from Kansas and Brooklynn Reiter from South Carolina, were selected as National Ambassadors of Hydrocephalus Awareness. Featured in various Hydrocephalus Awareness Campaign’s throughout the year, both Ambassadors and their families joined over 130 people in Washington DC in August to attend the PHF’s annual Issues & Action Hydrocephalus Conference on Capitol Hill.

Additional awareness was raised thanks to the Wiggs’ Congressman, Roger Marshall, who authored a column on his blog about Caleb and Brooklynn, (an Oakland Raiders fan), received TV & Newspaper coverage when Raiders Quarterback Superstar Derek Carr was made aware of her situation and wrote her a letter and tweeted about her.

PHF Hydrocephalus Research Check Presentations

In the beginning of 2019, members of the PHF and their family delivered checks to the recipients of our Hydrocephalus Research Grants at various hospitals around the Country, including Boston Children’s Hospital, Cincinnati Children’s Hospital, Wayne State University in Michigan and Northwestern University Feinberg School of Medicine in Chicago.

PHF Reagan Sloane Shanley Scholarship Check Presentations 2019 saw the launch of the PHF Reagan Sloane Shanley Scholarship offered to students for academics/education and to medical institutions for Hydrocephalus specific internship programs. Educational scholarships were approved for Quinnipiac University student Ashley Dunbar and Bella Sacharczyk of Holyoke Community College. Boston Children’s Hospital’s Dr. Maria Lehtinen received an internship scholarship for her lab. The program is named after Reagan Shanley, a 6-year-old with Hydrocephalus.

Hydro-Hero Brain Surgery Survivor Coin

The PHF was proud to launch the PHF Hydro-Hero Brain Survivor Coin in 2019 to coincide with our 10th year anniversary as an organization.

Your loved one with Hydrocephalus is a HERO & a SURVIVOR and we want them to always know it!

This coin recognizes their most recent brain surgery providing them, we hope, with courage and strength.

2019 Fundraising & Awareness EventsWhether it was a WALK, RUN, charity night at a restaurant, Kentucky Derby themed brunch, Day @ the Races, Pro-Wrestling Autograph Signing, Cornhole Tournament, Craft Show, Bike Fitness, CrossFit training, Miniature Golf, Digital based fundraiser, Pasta Dinner, or raffling off a car, the PHF did it all.

Every dollar raised supported our core mission statement of funding a cure for Hydrocephalus.

OHIO

MISSOURI

MICHIGAN

NEW JERSEY

WASHINGTON STATE

MASSACHUSETTS

PHF Issues & Action Hydrocephalus ConferenceThe PHF’s annual Issues & Action Hydrocephalus Conference takes place in Washington DC and is the only FREE Hydrocephalus conference in the Country.

Over 130 people representing 18 states attended this past August.

The 2-day event features a Themed based Meet & Greet Dinner Reception and a full day conference in even years and a half day conference and meetings on Capitol Hill in odd years.

Family friendly and a great opportunity to advocate & educate!

This year’s Meet & Greet Dinner Reception Theme is CHRISTMAS INAUGUST!

OHIO

Hydrocephalus Congressional BriefingIn October, the PHF joined together with the Hydrocephalus Association to co-host a Congressional Briefing on Hydrocephalus on Capitol Hill at the invitation of the Congressional Pediatric & Adult Hydrocephalus Caucus.

Speakers Michael Illions, (Vice President; PHF), Diana Gray, (CEO; Hydrocephalus Association), Amanda Garzon, Hydrocephalus Association; National Director of Program Services and Communications), and Dr. Mark Luciano, (Johns Hopkins), presented to a packed room of representatives of Senate & House offices from around the Country to raise awareness and educate our elected officials.

Congressman Chris Smith, HA’s Diana Gray & PHF’s Michael Illions pictured.

OHIO

THANK YOU!

TO A HAPPY & HEALTHY 2020!!

For More Information:Visit us on the web at www.HydroKids.orgTo make a donation: www.PHFDonate.orgEmail us at info@hydrocephaluskids.orgCall us at 973.997.6288

The PHF, Inc. is a non-profit 501 (c) (3) charitable organization and as such, all contributions are tax deductible to the extent allowed by law.Tax ID # 26-4582806