2009 – 2010 QUALITY CARE AWARDS2009 – 2010 QUALITY CARE AWARDS

• Arkansas Children’s Hospital &University of Arkansas Medical

Center Little Rock, Arkansas

• Kaiser Permanente Oakland, California

2009 – 2010 QUALITY CARE 2009 – 2010 QUALITY CARE AWARDSAWARDS

• Emory University Atlanta, Georgia

• Johns Hopkins University Baltimore, Maryland

2009 – 2010 QUALITY CARE 2009 – 2010 QUALITY CARE AWARDSAWARDS

• Minnesota Cystic Fibrosis Center Minneapolis, Minnesota

• University of Nebraska Medical Center Omaha, Nebraska

2009 – 2010 QUALITY CARE AWARDS2009 – 2010 QUALITY CARE AWARDS

• University Hospitals Rainbow Babies & Children’s Hospital Cleveland, Ohio

• Children’s Hospital of Wisconsin Froedtert & Medical College of

Wisconsin Milwaukee, Wisconsin

Richard J. MattinglyRichard J. Mattingly

Executive Vice President Chief Operating Officer

Outstanding Partnership AwardOutstanding Partnership AwardBetween CFF Care Center and Between CFF Care Center and

ChapterChapter

Dartmouth-Hitchcock Medical Center

Rush University Medical CenterMinnesota Cystic Fibrosis Center

Fundraising Innovator AwardFundraising Innovator Award

Medical College of Georgia

Program Committee

Frank J. Accurso, M.D.Cynthia L. AdamsNancy AlarieRebecca J. Bathon,  M.S.W., LCSWRobert J. Beall, Ph.D.Julie A. Biller, M.D.Michael P. Boyle, M.D.Preston W. Campbell, III, M.D.

André M. Cantín, M.D.J.P. Clancy, M.D.Richard C. Cohen, M.D.Jonathan Cohn, M.D.Mitchell L. Drumm, Ph.D.Antoinette Gardner, B.S.N., M.Ed., A.E.-C.,

CCRCCynthia A. George, M.S.N., F.N.P., B.C.William B. Guggino, Ph.D. John W. Hanrahan, Ph.D.Leslie Hazle, M.S., R.N., C.P.N.Michelle S. Howenstine, M.D.Sandra K. Hurban, R.N., B.S.N., CCRCElizabeth Joseloff, Ph.D.Michael W. Konstan, M.D.Robert J. Kuhn, Pharm.D.

Amanda R. Leonard, M.P.H., R.D., C.D.E.

John J. LiPuma, M.D.Bruce C. Marshall, M.D.Martin Mense, Ph.D.Peter J. Mogayzel, Jr., M.D., Ph.D.Catherine O’Malley, R.R.T.Christopher M. Penland, Ph.D.Raymond J. Pickles, Ph.D.Alexandra L. Quittner, Ph.D.Felix Ratjen, M.D., Ph.D.Kim Reno, M.S.W., L.S.W.Steven M. Rowe, M.D., MSPHRonald C. Rubenstein, M.D., Ph.D.Kathryn A. Sabadosa, M.P.H.Lisa Saiman, M.D., M.P.H.Sarah Jane Schwarzenberg, M.D.Richard H. Simon, M.D.Christine M. Singh, R.N., M.S.N.,

C.N.P.Marci K. Sontag, Ph.D.Eric J. Sorscher, M.D.Elizabeth Tullis, M.D., FRCP(C)Michael L. Vasil, Ph.D.Jeffrey J. Wine, Ph.D.

Co-Chairs: Raymond A. Frizzell, Ph.D. and Beryl J. Rosenstein, M.D.

Members

Young Investigator AwardsYoung Investigator Awards

Basic and Clinical ScienceBasic and Clinical Science

Jennifer Bomberger, Ph.D.Dartmouth Medical School

Abstract #167

Grace Wu, M.S.University of Wisconsin, Madison

Abstract #411

CF Foundation’s Meetings TeamCF Foundation’s Meetings Team

Cynthia AdamsOlesya Lamb

Kaitlyn FarrellChristie Goldstein

Allison Oakesand other supporting staff

Transforming CF Healthcare: Partnerships

for LifeOctober 23, 2010

• Bruce C. Marshall, M.D.Vice President for Clinical AffairsCF Foundation

• Donald M. Berwick, M.D.AdministratorCenters for Medicare and Medicaid Services

• Kathy Sabadosa, M.P.H.Quality Improvement Program ManagerDartmouth and CF Foundation

• Accreditation system– Multidisciplinary care– Peer review

• Patient registry

Framework for CF Care

“I was shocked to see the variation in outcomes across centers. I knew this was important information that we would want to share with our committees.  More importantly, it was obvious that something needed to be done, but at the time I wasn’t sure what we should do.”

Bob BeallPresident/CEOCF Foundation

University of Utah

Mountain West Cystic Fibrosis Consortium

Our Three Wise Men

CF Foundation QI Strategic Plan

• Assertion– Years of life can be added…

• Vision– Exemplary care at all care centers…

• Key strategies

• Worthy goals

Our Three Wise Men

BrentJames

89 CF Centers17,948 People with CF

Learning and Leadership Collaboratives

Benchmarking

Benchmarking: Key Themes

• Highly functional teams

• Practice style – Proactive approach– Consistency on core care processes

• Engaged patients/families– Well informed on disease management/rationale

3 L’s (Leadership, Longevity and Love)

Our Three Wise Men

BrentJames

PaulBatalden

It’s All About Annie

Honor Page, Jim Acton and Paul BataldanOctober 17, 2004

E-mail message to CFFFrom: xxxx xxxxx [mailto:xxxxxxxxx@yahoo.com]Sent: Monday, August 23, 2004 1:21 AMSubject: CFF accredited centers with best patient outcomes

Our infant son was recently diagnosed with cystic fibrosis. We have been researching the disease and have come across several articles stressing differences in patient outcomes even among the CFF accredited treatment centers. However, we have been unable to find information that shows which centers have the best patient outcomes. Could you give us this information or let us know how we could find it? We want to make sure our son receives the best possible care. Your help is greatly appreciated.

John and Jane, parents of an 8 week old

Aha Moment!

Partnering with our patients and families is important if we wish to accelerate improvement and…..

partners share information freely!

Insert screen shot of center data from cff.org

…and now for the rest of the story.Paul Harvey

Input from Key Partners

• “We have an amazing group of people in our community… high level of commitment and passion for improvements for this disease”

• “Need to celebrate how far we’ve come……phenomenal improvement”

• “We are leading the charge and doing great things…… exciting”

Input From Three Wise Men

• Pursue a dual strategy: – Pull up those who are lagging & push forward the top

• Patient/family as “captain of the ship”– Health care as a series of decisions made in

conjunction with trusted counselors

• Patient/family experience of care:– Powerful way to explore dimensions off the radar

Our Three Wise Men

BrentJames

PaulBatalden

Don Berwick

• Bruce C. Marshall, M.D.Vice President for Clinical AffairsCF Foundation

• Donald M. Berwick, M.D.AdministratorCenters for Medicare and Medicaid Services

• Kathy Sabadosa, M.P.H.Quality Improvement Program ManagerDartmouth and CF Foundation

• Bruce C. Marshall, M.D.Vice President for Clinical AffairsCF Foundation

• Donald M. Berwick, M.D.AdministratorCenters for Medicare and Medicaid Services

• Kathy Sabadosa, M.P.H.Quality Improvement Program ManagerDartmouth and CF Foundation