12 patient case studiesfile… · • track your migraines using a program like migrainepal (others...
TRANSCRIPT
12 PATIENT CASE STUDIES ……………………….…
Real patients share their experience, treatments and
advice for others to learn from.
THECASESTUDIESThesecasestudiesareself-reportedassessmentsonhowrealpeopleimprovedtheirmigraineattacks,accordingtothem.Theyarewritteninthepatient’sownwordswithminimalediting.Youmayreadpassagesofvaryingtoneofvoiceoremotionbecausetheseareliterallydifferentpeoplesharingtheirexperience. Thetreatmentsandmigrainemanagementtherapiesmentionedintheguidearenotanendorsement. Theonlysectionthathasn’tbeenwrittenbythepatientsthemselvesisthe“Commentary”sectionwhichsummarizestheinsightsfromthecasestudy.ThishasbeenwrittenbytheMigraineWorldSummitteam. CAUTIONADVISED Mentionedtreatmentshavewidelyvaryinglevelsofevidence,effectivenessandsafety.Someofthesetreatmentsmaybeharmfulorcauseserioussideeffectsiftakenbythewrongperson. Alwaysconsultyourdoctorformedicaladviceorbeforechangingyourtreatmentplan. Thisguideisforeducationalpurposesonlyandisnotareplacementforyourdoctor.Onlyyourdoctorcangiveyoupersonalmedicaladvicethattakesintoaccountyourownhealthhistory,symptomsandpotentialsideeffects.
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
HOW TO USE THIS GUIDE
ISTHISREALISTIC?These12patientcasestudiesarereal. Everyyearapercentageofpeoplewithmigraineimproveorgointoremission. It’snotgenerallyduetosomesecrettreatmentthathasbeenhiddenfromus.It’softenfrompatientsgainingabetterunderstandingtheirownconditionandputtingafewimportantself-managementprinciplesintopractice. Thankyoutoourpatientswhovolunteeredtheirpersonalinformationtohelpbenefitotherpatients. AngelaMuller BruceAlexander DanielleJones ElizabethBiddle EllenDean HelenMcConnell LeeBaas MaureenBirganMegDunleyNickySmith NicoleSoho SharwainSmith
VITAMIN&SUPPLEMENTREVIEW Anonlinesurveywasconductedofself-selectingpatientswillingtofilloutadetailedonepageformabouttheircondition. Thepatientswereaskedaseriesofquestionsincluding: • Gender • Ageatonset • Durationofcondition • Triggers(tickbox) • Frequency • Averagefrequencybeforeimprovement • Averagefrequencyafterimprovement • Keyfactorsinresults • Treatmentstried(tickbox) • Treatmentsfoundmostbeneficial • Adviceyou’dgivetoothers • Firstandlastname • Consentformtickbox The12casestudiessharedinthisguidewereexamplesofthosewhohaveimproved.Theyarelistedinasummaryforminalphabeticalorder.
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
METHODOLOGY
Screenshotfromtheonlineformavailableathttp://www.blog.migrainepal.com/casestudies/
ANGELA MULLER PATIENTDETAILS Gender:Female Onset:11yearsold Duration:29years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT • Knowingmytriggersandcombinationoftriggersand
avoidingormanagingthem. • Takingmedicationorremovingtriggerearly(eg.
movingawayimmediatelyifsomeonesitsnexttomewearingstrongperfume)ratherthanwaitingtoseeifitdevelopsintoamigraine.
• Notfeelingbad,guiltyorapologizingforavoidingtriggers.
• UsingtheMigrainePaldiarytotrackandconfirmtriggers
ADVICEYOU’DSHAREWITHOTHERS • TrackyourmigrainesusingaprogramlikeMigrainePal
(othersincludeMigraineBuddyorCurelator)thatpromptsyoutorecordthingsyoumaynotthinkof.
• Thenmanageallyourtriggers,astheywillbeuniquetoyouandtorightnow(whatworkedinthepastmightnotworknow)
• Don’tfeelbadorguiltyaboutmanagingyourtriggers
MOSTBENEFITFROM • Dietchangesviaaneliminationdietdoneunderthe
supervisionofadietician • Combinationoffolicacid,B12andB6 • Topamaxwhilegettingtriggersundercontrol
TREATMENTSTRIED Amitriptyline(eg.Elavil,Endep),Aspirin,Celecoxib(eg.Celebrex),HormoneReplacementTherapy/BirthControlpills,Ibuprofen(eg.Advil,Motrin,Nurofen),Meloxicam(eg.Mobic,Movalis),Paracetamol(eg.Panadol),Propranolol(eg.Inderal),Pseudoephedrine(eg.Sudafed),Sumatriptan(eg.Imigran,Imitrex,Treximet),Topiramate(eg.Topamax),TramadolHydrochloride(eg.Tramadol),Acupuncture,AdequateHydration,Avoidfluorescentlighting,Avoidsmoke,Avoid/reducesocialactivities,Caffeine,Cardioexercise,Dietarychanges,Drinkingwater,EliminatingCaffeine,EliminatingAlcohol,EliminatingChocolate,EliminatingDairy,EliminatingGluten,EliminatingMSG,EliminatingNitrates/Nitrites,EliminatingSoy,EliminatingSulfites,EliminatingTyramine,Exercise-general,Folate,FolicAcid,Gingersupplements,Heatpack,HotShower,Hotwheatpack,Improvingposture,Ironsupplements,Magnesium,MagnesiumCitrate,Multi-vitaminBCombos,Multi-vitaminWomen,Myofascialrelease,Neck/scalpmassage,Occlusalsplint(mouthguardtoprotectagainstclenching/grinding),Passageoftime,Physiotherapy(physicaltherapy),Pilates,Probiotics,Reduce/managestress,Regularexercise,Remedialmassage,Sleep,Strengthtrainingexercise,VitaminBcomplex,VitaminB12/Cobalamin,VitaminB2/Riboflavin,VitaminB6/Pyridoxine,VitaminD3(cholecalciferol),Wearingsunglasses,Zinc
COMMENTARY • Despiteasignificantnumberoftriggers,Angelawas
previouslyabletomanagewithonlyepisodicmigraine5daysofthemonth.
• ThislikelywasduetoherdailymigrainepreventativetreatmentTopamax(topiramate).
• Interestinglywhenshecombinedthiswithdietchangesandsupplementationshewasabletogetahugereductioninherattacks.
• Abigpartofherstrategywasusingadiarytokeeparecordandbetterunderstandhercondition.
• Anotherimportantaspectwastreatingearlyandnotfeelingbadorguiltyaboutwhatsheneededtodotoeffectivelymanagehertriggers.
• HercombinationofsupplementsiscommonlyusedtotreatmigrainewithaurapatientswhoalsohavehighlevelsofhomocysteineandaMTHFRmutation.
MIGRAINETRIGGERS • Sleepdisruption,changingsleepingpatternorjetlag • Stress,includinganyformofstressincludingstrong
emotions,anxietyandpressure • Dehydration • Visualagitationincludingbrightsunlight,staringatthe
computerscreenfortoolong,fluorescentlights,flashinglights
• Neckdiscomfortincludingstiffnessorpaininyourneckorupperbackareaincludingshoulders
• Menstruation,menopauseorotherhormonalfactors • Odors,includingincense,perfume,chemicalsmells,
cigarettesmoke,vehicleexhaust,airpollution • Weatherincludingheatorrapidchangeintemperature
orairpressure • Hungerincludingskippingmeals,lowbloodsugarlevels
orhypoglycemia • Diet,includinganytriggerfoodsnotalreadycovered
abovesuchasfoodadditivesincludingnitrites(processedmeats)andMSG(monosodiumglutamate),foodcoloring,chocolate,agedcheese,redwine,beer,caffeine,citrusfruits,curedmeatssuchasbacon,hotdogs,aspartameandicecream.
• Anyseverepainormotionsickness
MIGRAINEFREQUENCYPreviousdayspermonth:5Currentdayspermonth:1
80% reduction
BRUCE ALEXANDER PATIENTDETAILS Gender:Male Onset:25yearsold Duration:40years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT TakingStemetil(prochlorperazine)asasuppositoryratherthanMaxaltforacuteattack.Thishasallowedmetogetoutofrebound.OverallmanagementofavoidingtriggerscanworkonceoutofMOH(MedicationOveruseHeadache).
ADVICEYOU’DSHAREWITHOTHERS NeedtofindwayoutofMOH.Formeneededtonotusetriptansforamonthandreplacewithstemetiltogetthroughacuteattack.Thisallowedpreventativestrategiesandmedicationtowork.Ihad6monthsofveryfewmigrainesalthoughhaverelapsedrecently,probablybecausehavegoneoffpreventativemedicationcompletely.
MOSTBENEFITFROM • Stemetilassuppository • Physiotherapyonneck • Avoidanceoftriggers
TREATMENTSTRIED Amitriptyline(eg.Elavil,Endep),Aspirin,Pizotifen(eg.Sandomigran),Pregabalin(eg.Lyrica),Prochlorperazine(eg.Buccastem,Stemetil),Rizatriptan(eg.Maxalt),SodiumValproate(eg.Epilim),Sumatriptan(eg.Imigran,Imitrex,Treximet),Avoidfluorescentlighting,Avoidsustainednoise,Avoid/reducesocialactivities,CoolingGelSheet(eg.Kool'n'Soothe),Dark,quietroom,Dietarychanges,EliminatingCaffeine,EliminatingAlcohol,EliminatingChocolate,EliminatingDairy,EliminatingGluten,EliminatingMSG,EliminatingNitrates/Nitrites,EliminatingSoy,EliminatingSulfites,EliminatingTyramine,Hotwheatpack,KetogenicDiet,Reducescreenbrightness,Reduce/managestress,Tinted/colouredlenses,Wearingcolouredlenses,Wearingsunglasses
COMMENTARY • Brucelistsasignificantnumberoftriggersand
previouslyhadchronicmigraine. • HerealizedthathewasoverusingMaxaltwhichcaused
MOH.ByweaningoffthistreatmentthenfindinganothereffectiveoptioninStemetil,andbygettingphysiotherapyonhisneckandmanaginghistriggersbetterhewasabletoimprovesignificantly.
• Heciteshisrecentrelapseduetocomingoffhispreventativemedicationperhapsalittletooearly.
MIGRAINETRIGGERS • Sleepdisruption,changingsleepingpatternorjetlag • Stress,includinganyformofstressincludingstrong
emotions,anxietyandpressure • Dehydration • Visualagitationincludingbrightsunlight,staringatthe
computerscreenfortoolong,fluorescentlights,flashinglight
• Neckdiscomfortincludingstiffnessorpaininyourneckorupperbackareaincludingshoulders
• Odors,includingincense,perfume,chemicalsmells,cigarettesmoke,vehicleexhaust,airpollution
• Weatherincludingheatorrapidchangeintemperatureorairpressure
• Caffeine • Alcohol • Hungerincludingskippingmeals,lowbloodsugarlevels
orhypoglycemia • Diet,includinganytriggerfoodsnotalreadycovered
abovesuchasfoodadditivesincludingnitrites(processedmeats)andMSG(monosodiumglutamate),foodcoloring,chocolate,agedcheese,redwine,beer,caffeine,citrusfruits,curedmeatssuchasbacon,hotdogs,aspartameandicecream
MIGRAINEFREQUENCYPreviousdayspermonth:15Currentdayspermonth:3-15
*Upto80%reduction.
80% reduction*
DANIELLE JONES PATIENTDETAILS Gender:Female Onset:4yearsold Duration:25years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT • Eightmonthstintonamitriptylinetoresetsleepand
migrainecycle.• Correcttreatmentwhenexperiencingmigraine
symptoms.
ADVICEYOU’DSHAREWITHOTHERS Seeaneurologistwhospecializesinmigraine.Ifyoufindyourmigrainesarerelatedtooraffectingyoursleep,alsoconsiderseeingasleepspecialist.Ihadgottoapointoffearingsleepbecauseofwakingwithamigraine,andwasconstantlyexhaustedwhenIsoughthelp.Isawasleepspecialistfirstandhadsleepdisorderseliminated,thenIsawamigrainespecializingneurologist.Hedidn'ttellmetheywerejustheadaches(otherdoctorssaidthatwithoutauraImustn'tbesufferingmigraine).Heinfacttoldmethatevenmy"headaches"weremigraines,andmypainthresholdhadjustgrowntobehigh.Hekeptitverysimpleandtoldmemyconditionwasgenetic,couldmostprobablyNOTbecontrolledthroughdietchanges(oriftheyworked,itwouldonlybeshortterm)andinsteadsaidmymigrainescanbebestcontrolledthroughtherightapplicationofpharmaceuticalmedicationsandthroughlifestylechoicesfocusedonreducingstress.IusedEndepfor8monthstohelpmesleepandvirtuallyeliminatethemigraines,IthenweanedofftheEndepandthemigrainesdidn'treturn.In1yearand4monthsIhavebecomemoreincontrolofmymigrainesandnowonlyexperience1-2permonth,usuallywithmyperiod.Andwhentheyoccurtheyarenownippedinthebudveryquicklybecausewefoundtherightsumatriptanbasedtreatmentformetouse.
MOSTBENEFITFROM • Sumatriptan,specificallyImigranFDT(normalImigran
tooktoolongtowork).• Endeptakenfor8monthstoresetmigraineandsleep
cycle • Massage • Heatpacks • Advil(ibuprofen)ononset • Waterbasedpillow • Yoga
TREATMENTSTRIED Amitriptyline(eg.Elavil,Endep),Aspirin(eg.Excedrin,AspoClear),CodeinePhosphate(eg.Migraleve),Diazepam(eg.Valium),Ibuprofen(eg.Advil,Motrin,Nurofen),IbuprofenCodeine(eg.NurofenPlus),Paracetamol(eg.Panadol),Paracetamol,Codeine(eg.PanadeineForte),Rizatriptan(eg.Maxalt),Sumatriptan(eg.Imigran,Imitrex,Treximet),AdequateHydration,Avoid/reducesocialactivities,Caffeine,Chiropractictreatment,Dark,quietroom,Dietarychanges,Drinkingwater,EliminatingCaffeine(eg.Coffee,Tea,Sodas),EliminatingAlcohol,EliminatingChocolate,EliminatingGluten,EliminatingMSG,Exercise-general,Glucosamine,Heatcreams,gels,balms&rubs,Heatpack,Herbalteas,Herbs&Spices,HotShower,Hotwheatpack,Icetherapy/Icepacks,Improvingposture,Ironsupplements,Magnesium,MagnesiumCitrate,Meditation/Breathingexercises,Multi-vitaminWomen,Neck/scalpmassage,Osteopathy,PaleoDiet,Reduce/managestress,Regularexercise,Relaxationtechniques,Remedialmassage,Sleep,VitaminBcomplex,WhiteWillow,Yoga
COMMENTARY • Danielleeventuallyfoundaheadachespecialisttowork
with. • Togethertheyfoundaneffectivepreventativethatwas
usedtobringherundercontrolover8months. • Thiswascombinedwithlifestyleandbehavioral
changesaroundsleep,diet,exerciseandstressmanagement.
• Shealsofoundaneffectiveacutemigrainetreatmenttohandleanyacutemigraineattacksthatbrokethrough.
MIGRAINETRIGGERS • Sleepdisruption,changingsleepingpatternorjetlag• Stress,includinganyformofstressincludingstrong
emotions,anxietyandpressure• Dehydration• Neckdiscomfortincludingstiffnessorpaininyourneck
orupperbackareaincludingshoulder• Menstruation,menopauseorotherhormonalfactors• Odors,includingincense,perfume,chemicalsmells,
cigarettesmoke,vehicleexhaust,airpollution • Alcohol• Hungerincludingskippingmeals,lowbloodsugarlevels
orhypoglycemia
MIGRAINEFREQUENCYPreviousdayspermonth:5 Currentdayspermonth:2
60% reduction
ELIZABETH BIDDLE PATIENTDETAILS Gender:Female Onset:18yearsold Duration:17years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT DHEtreatment
ADVICEYOU’DSHAREWITHOTHERS Knowyourtriggersandalwayshaveamigrainereliefkitwithyou.
MOSTBENEFITFROM • Physicaltherapy • Sumatriptan • DHEinfusions
TREATMENTSTRIED Acetaminophen,butalbital,caffeine(eg.Fioricet),Acetaminophen,Codeine,Almotriptan(eg.Axert,Almogran),Amidrine,Amitriptyline(eg.Elavil,Endep),Aspirin,Caffeine,Orphenadrine(eg.Norgesic),Atenolol(eg.Tenormin),Celecoxib(eg.Celebrex),Cetirizine(eg.Zyrtec),Cyclobenzaprine,DihydroergotamineMesylate(eg.Dihydergot,DHE45,Divalproexsodium(eg.Depakote),Duloxetine(eg.Cymbalta),Eletriptan(eg.Replax),Gabapentin(eg.Neurotonin),GreaterOccipitalNerveBlock(Steriod/LidocaineI,Hydrocodone,Ibuprofen(eg.Advil,Motrin,Nurofen),Ketorolac(eg.Toradol),Loratadine(eg.Alavert,Claritin),Methocarbamol,Acetaminophen(eg.Robaxacet),Metoprolol(eg.Dutoprol,Betaloc,Lopressor),Mometasonenasal(eg.Nasonex),Morphine,Naproxen(eg.Anaprox,Naprosyn,Synflex),OnabotulinumtoxinA(eg.BOTOX),Ondansetron(eg.Zofran),Prednisone(eg.Rayos,Sterapred),Promethazine(eg.Pentazine,Phenergan),Propranolol(eg.Inderal),Sumatriptan(eg.Imigran,Imitrex,Treximet),Topiramate(eg.Topamax),TramadolHydrochloride(eg.Tramadol),Zolmitriptan(eg.Zomig),Zonisamide(e.g.Zonegran),Acupuncture,Avoidfluorescentlighting,Avoidsmoke,Avoidsustainednoise(eg.noisypubs),Avoid/reducesocialactivities,Cardioexercise,Cervicaltraction,Chiropractictreatment,Dark,quietroom,Dietarychanges,Drinkingwater,EliminatingCaffeine,EliminatingMSG,EliminatingNitrates/Nitrites,EliminatingSoy,EliminatingSulfites,EliminatingTyramine,Exercise-general,Feverfew,FolicAcid,Herbalteas,HotShower,Icetherapy/Icepacks,Improvingposture,Lavenderoil,Magnesium,MagnesiumCitrate,Multi-vitaminWomen,Neck/scalpmassage,PeppermintOil,Physiotherapy(physicaltherapy),Reducescreenbrightness,Reduce/managestress,Regularexercise,Relaxationtechniques,Rub/pressureTemples,Sleep,Strengthtrainingexercise,Tinted/colouredlenses,Wearingsunglasses,Yoga
COMMENTARY • Outofallourcasestudiesnoneappeartohavetriedas
manytreatmentsorstrategiesasElizabeth. • Fromtheextensivelistoftreatments,shefound
personallythatshehasthebestresultsfromphysicaltherapytoaddressherneck;SumatriptanorDHEinfusionstotreatheracuteattack.
• Withthesesimpleprinciplesshehashalvedherfrequency.
• Migrainepreventionissomethingthatshehastriedbutstillappearstobeworkingon.
MIGRAINETRIGGERS • Sleepdisruption,changingsleepingpatternorjetlag
Stress,includinganyformofstressincludingstrongemotions,anxietyandpressure
• Visualagitationincludingbrightsunlight,staringatthecomputerscreenfortoolong,fluorescentlights,flashinglights
• Neckdiscomfortincludingstiffnessorpaininyourneckorupperbackareaincludingshoulders
• Odors,includingincense,perfume,chemicalsmells,cigarettesmoke,vehicleexhaust,airpollution
• Weatherincludingheatorrapidchangeintemperatureorairpressure
• Hungerincludingskippingmeals,lowbloodsugarlevelsorhypoglycemia
• Diet,includinganytriggerfoodsnotalreadycoveredabovesuchasfoodadditivesincludingnitrites(processedmeats)andMSG(monosodiumglutamate),foodcoloring,chocolate,agedcheese,redwine,beer,caffeine,citrusfruits,curedmeatssuchasbacon,hotdogs,aspartameandicecream
MIGRAINEFREQUENCYPreviousdayspermonth:30Currentdayspermonth:15
50% reduction
ELLEN DEAN PATIENTDETAILS Gender:Female Onset:16yearsold Duration:44years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT Exerciseandchangingdiet.
ADVICEYOU’DSHAREWITHOTHERS • UseWiiBalanceExercise • Changediettoincludevitaminsi.e.magnesium,B
vitaminsandzinc.
MOSTBENEFITFROM • Exercise• Foodscontainingmagnesium • Lesscaffeine
TREATMENTSTRIED Propranolol(eg.Inderal),Avoidsustainednoise(eg.noisypubs),Avoid/reducesocialactivities,EveningPrimroseoil,Exercise-general,Herbalteas(eg.Dandeliontea),Lavenderoil,Magnesium,Neck/scalpmassage,Omega3,Physiotherapy(physicaltherapy),Reducescreenbrightness,Reduce/managestress,Regularexercise,Relaxationtechniques,Rub/pressureTemples,StJohnsWort,Tinted/colouredlenses(e.g.AxonOptics,Irlen),Visualeyetherapy,exercisesortraining.,Wearingsunglasses,Zinc
COMMENTARY • Ellenhasgonefromchronicmigraineaccompaniedby
debilitatingheadpaintonoheadpaineachmonthwithVestibularmigrainesymptoms.Theseincludefeaturessuchasvertigoanddizziness.
• Shehasreducedhercaffeineintakewhilstincreasingherintakeofvitaminrichfoodswhichincludemagnesium,Bvitaminsandzinc.
• Thiscombinedwithregularexercisehassignificantlyreducedtheburdenofmigraineinhercase.
MIGRAINETRIGGERS • Stress,includinganyformofstressincludingstrong
emotions,anxietyandpressure • Dehydration • Visualagitationincludingbrightsunlight,staringatthe
computerscreenfortoolong,fluorescentlights,flashinglights
• Neckdiscomfortincludingstiffnessorpaininyourneckorupperbackareaincludingshoulders,
• Menstruation,menopauseorotherhormonalfactors • Odors • Weatherincludingheatorrapidchangeintemperature
orairpressure • Caffeine • Hungerincludingskippingmeals,lowbloodsugarlevels
orhypoglycemia • Diet,includinganytriggerfoodsnotalreadycovered
abovesuchasfoodadditivesincludingnitrites(processedmeats)andMSG(monosodiumglutamate),foodcoloring,chocolate,agedcheese,redwine,beer,caffeine,citrusfruits,curedmeatssuchasbacon,hotdogs,aspartameandicecream
MIGRAINEFREQUENCYPreviousdayspermonth:31Currentdayspermonth:*Noheadache,justvestibular symptoms.
n/a reduction*
HELEN McCONNELL PATIENTDETAILS Gender:Female Onset:21yearsold Duration:28years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT • Learningabouthypoglycemia • Eatingbetterandatmoretimelyintervals
ADVICEYOU’DSHAREWITHOTHERS Checkforlowbloodsugar,howevertheglucosetolerancetestfor5-6hoursisnotdonereadilyasitisthoughtunnecessary&theresultsneedtobereadcorrectlybyanexpertinthatfield.Pleaseread"VictoryoverMigraine"byProfessorRodolfoLow.
MOSTBENEFITFROM • KetogenicDiet • DrinkingWater • TakingChromium • BComplex • Niacin • Remedialmassage • Regularexercise
TREATMENTSTRIED Doxylamine,Paracetamol,Codeine(eg.Mersyndol),Ergotaminetatrate(eg.Cafergot,Migril),Paracetamol(eg.Panadol),Paracetamol,Codeine(eg.PanadeineForte),Prochlorperazine(eg.Buccastem,Stemetil),Sumatriptan(eg.Imigran,Imitrex,Treximet),Avoid/reducesocialactivities,Dark,quietroom,Dietarychanges,Drinkingwater,EliminatingCaffeine(eg.Coffee,Tea,Sodas),EliminatingAlcohol,EliminatingDairy,Exercise,Feverfew,Herbalteas,Icetherapy/Icepacks,KetogenicDiet,Magnesium,Naturopathy,Niacin,Omega3,PaleoDiet,Probiotics,Reduce/managestress,Remedialmassage,Sleepingmask,Vaporinhalerstick(eg.Vicks),VitaminBcomplex,VitaminD3(cholecalciferol),Wearingsunglasses,Chromium
COMMENTARY • Helenhashadmigraineforalmost30yearsandwas
previouslyepisodicwith6dayswithmigrainepermonth.Todaysheisdowntozerowhichisafantasticresult.
• Sheattributesthissuccesslargelytohermanagementoffood.Notonlythroughherdietbutalsothetimingandintervalsofherfoodtoensureherbloodsugarlevelsremainrelativelylevel.
• OtherfactorsimportanttoherimprovementweresupplementationwithBComplex,NiacinandChromiumaswellasexercise,hydrationandremedialmassage.
MIGRAINETRIGGERS • Sleepdisruption,changingsleepingpatternorjetlag • Stress,includinganyformofstressincludingstrong
emotions,anxietyandpressure • Dehydration • Visualagitationincludingbrightsunlight,staringatthe
computerscreenfortoolong,fluorescentlights,flashinglights
• Caffeine • Alcohol,whitewine• Hungerincludingskippingmeals,lowbloodsugarlevels
orhypoglycemia
MIGRAINEFREQUENCYPreviousdayspermonth:6Currentdayspermonth:0
100% reduction
LEE BAAS PATIENTDETAILS Gender:Female Onset:13yearsold Duration:26years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT Iusealargewheatsackcoveringshoulders,neckandhead,sittinguprightandreappliedwhencool,untilnotneeded,itstopsthemigraineinitstracks.Italsoseemstoreduceincidentsofmigraines...itrelaxesthemuscles,Icantrackthetensionfrommyshoulders,uptherightsideofmyneckandintomyhead,besidemyear,thenrightacrossthetopofmyhead.Therearepathsyoucanfeeloftensionandterriblepain.Pressthesepathsanywhereandthepainiscruel.
ADVICEYOU’DSHAREWITHOTHERS Learntoknowtheveryearlysignsofyourmigraine,thenrespondimmediatelytowhatworksforyou,trythewheatsackmethod,I'vegonefromdaysofpresymptoms,threedaysofpain,thendaysofaftersymptomswithmajoreyedisturbancessonotbeingabletodoanything,holdingontowallsasIcan'tseeproperlyduetothepressure,to'nothing'.Ican'tusepainkillersduetoallergiesexceptParacetamol(orAcetaminophen),soI'vetriedalotofthings,thisworksforme,totally....
MOSTBENEFITFROM Hotwheatpacksreappliedastheycoolacrossshoulders,neckandbaseofskull,mustbeonbaseofskullasthisstopsthepainfromradiating.ThisSTOPSthembeforetheygetbad,nomigrainehangoversthenextdayeither...
TREATMENTSTRIED • Paracetamol(eg.Panadol) • Avoidsmoke • FolicAcid • Heatpack• Hotwheatpack • Magnesium • Neck/scalpmassage • Regularexercise • Vaporinhalerstick(eg.Vicks) • VitaminB12/Cobalamin• Icannotusepainkillersduetoallergies
COMMENTARY • Leereferstotriggerpointswhenshedescribeshowshe
useshotwheatpacksonherneckduringamigraineattack.Itissoeffectiveshefindsitstopstheattackinitstracksduetothemusclerelaxing.
• Leealsoadvisesotherstoknowtheveryfirstsignsoftheirattacktoimmediatelyintervene.
• Thisforherhasdramaticallyimprovedhercondition.
MIGRAINETRIGGERS • Stress,includinganyformofstressincludingstrong
emotions,anxietyandpressure • Neckdiscomfortincludingstiffnessorpaininyourneck
orupperbackareaincludingshoulders.
MIGRAINEFREQUENCYPreviousdayspermonth:5-10Currentdayspermonth:0
100% reduction
MAUREEN BIRGAN PATIENTDETAILS Gender:Female Onset:16yearsold Duration:48years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT Nifedipinedrug(B.P.calciumblocker)60miligramsdaily
ADVICEYOU’DSHAREWITHOTHERS Tryeverythingyouhearabout.
MOSTBENEFITFROM • Sumatriptancuredtheheadache.• WithnifedipineIdon'tgetthem.
TREATMENTSTRIED Acetaminophen,Codeine(eg.Tylenol3or4),Amitriptyline(eg.Elavil,Endep),Budesonidenasal(eg.RhinocortAqua),Clonidine(eg.Catapres,Dixarit),DihydroergotamineMesylate(eg.Dihydergot,DHE45,Doxylamine,Paracetamol,Codeine(eg.Mersyndol),Ergotaminetatrate(eg.Cafergot,Migril),HormoneReplacementTherapy/BirthControlpills,Methysergide(eg.Deseril),Metoclopramide(eg.Maxolon,Paramax,Pramin),Morphine,Oxycodonehydrochloride(eg.Endone),Paracetamol,Codeine(eg.PanadeineForte),Pizotifen(eg.Sandomigran),Prochlorperazine(eg.Buccastem,Stemetil),Propranolol(eg.Inderal),Sumatriptan(eg.Imigran,Imitrex,Treximet),Topiramate(eg.Topamax),TramadolHydrochloride(eg.Tramadol),Zolmitriptan(eg.Zomig),Acupunture,AlexanderTechnique,Avoidsmoke,Avoidsustainednoise(eg.noisypubs),Chiropractictreatment,Dark,quietroom,EliminatingAlcohol,EliminatingChocolate,EliminatingDairy,EliminatingGluten,EliminatingMSG,EliminatingNitrates/Nitrites,EveningPrimroseoil,Exercise-general,Feverfew,Heatcreams,gels,balms&rubs,HotShower,Icetherapy/Icepacks,Naturopathy,Neck/scalpmassage,Physiotherapy(physicaltherapy),Pilates,Probiotics,Quitcigarettesmoking,Relaxationtechniques,Rub/pressureTemples,Sleep,StJohnsWort,VitaminBcomplex,VitaminB12/Cobalamin,Wearingsunglasses
COMMENTARY • Maureenfoundgreatsuccessfulwithasingle
treatmentdesignedtopreventmigraine. • ShealsorespondedverywelltoSumatriptan,apopular
andeffectivetreatmentforacutemigraineattacks. • Youcanalsoseethatithastakensometimeandmany
differenttreatmentstofindthissolution. • Unlikeothercasestudiesshehasnotmentioneda
significantnumberoftriggersnorhasshementionedotherlifestyleorbehavioralchangesasanimportantfactorinherresult.
MIGRAINETRIGGERS • Sleepdisruption,changingsleepingpatternorjetlag • Alcohol,Hungerincludingskippingmeals,lowblood
sugarlevelsorhypoglycemia • Cinema
MIGRAINEFREQUENCYPreviousdayspermonth:5+Currentdayspermonth:0
100% reduction
MEG DUNLEY PATIENTDETAILS Gender:Female Onset:13yearsold Duration:32years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT ChangeofmedicationplusBotoxtreatments,andavoidingtriggerswherepossible,avoidingovermedicating
ADVICEYOU’DSHAREWITHOTHERS • Don'tusecodeine. • AvoidPanadol. • TakedrugsASAPattheonsetofmigraineandtakea
breakforatleast1/2hour.• Don'tfightthemigraine-remindyourselfthatitwillgo. • Avoidallnitratesandsulphates.• Seekhelpfromaneurologist-butalwaysbeproactive
inyourowncare.Nobodycaresaboutyourpainreliefasmuchasyoudoanditwillprobablybeamixofdrugandalternatetherapythatworks.
MOSTBENEFITFROM Candesartan+Botoxforpreventions,ImigranandNurofenorVoltarenforrelief,Vaporinhaler(VICKS),shower,icepackonneck,washdishesinhotwater,gentlewalk,relaxationtherapy,coffee.
TREATMENTSTRIED Acetaminophen,Codeine(eg.Tylenol3or4),Aspirin,Codeinephosphate,Budesonidenasal,Candesartan(eg.Atacand),Cetirizine,Diazepam(eg.Valium),Diclofenac(e.g.Cambia,Voltaren),Doxylamine,Paracetamol,Codeine(eg.Mersyndol),HormoneReplacementTherapy/BirthControlpills,Ibuprofen,IbuprofenCodeine,Metoclopramide,Mometasonenasal(eg.Nasonex),Naproxen(eg.Anaprox,Naprosyn,Synflex),OnabotulinumtoxinA(eg.BOTOX),Paracetamol(eg.Panadol),Paracetamol,Codeine(eg.PanadeineForte),Pizotifen(eg.Sandomigran),Propranolol(eg.Inderal),Pseudoephedrine,SodiumBicarbonate,APAP,Aspirin,Anhydrouscitri,Sumatriptan,Topiramate(eg.Topamax),Zolmitriptan(eg.Zomig),Acupuncture,Aromatherapy,Avoidfluorescentlighting,Avoidsmoke,Avoidsustainednoise(eg.noisypubs),Avoid/reducesocialactivities,Caffeine,Chineseherbs,CoenzymeQ10/CoQ10,Dark,quietroom,Dietarychanges,Drinkingwater,EliminatingCaffeine,EliminatingAlcohol,EliminatingChocolate,EliminatingDairy,EliminatingMSG,EliminatingNitrates/Nitrites,EliminatingSoy,EliminatingSulfites,EliminatingTyramine,EveningPrimroseoil,Exercise-general,Feverfew,Folate,FolicAcid,Glucosamine,Heatcreams,gels,balms&rubs,Heatpack,Herbalteas,HotShower,Hotwheatpack,Icetherapy/Icepacks,Improvingposture,Lavenderoil,Magnesium,MagnesiumCitrate,Meditation/Breathingexercises,Multi-vitaminBCombos,Naturopathy,Neck/scalpmassage,Occlusalsplint,Osteopathy,Passageoftime,PeppermintOil,Pilates,Quitcigarettesmoking,Reducescreenbrightness,Reduce/managestress,Regularexercise,Relaxationtechniques,Remedialmassage,Sleep,StJohnsWort,TheFastDiet(5:2Diet,IntermittentFasting),Vaporinhalerstick,VitaminBcomplex,VitaminB12/Cobalamin,VitaminB2/Riboflavin,VitaminB6/Pyridoxine,VitaminD3(cholecalciferol),Wearingsunglasses,Yoga,Zinc
COMMENTARY • Meghas,after30yearsofmigrainemanagedavery
impressivereductionfrom27daysto10dayspermonthwithmigraine.Thishasmovedherfromchronictoepisodicmigraine.Afantasticachievement.
• Megadvisestoseekhelpfromaneurologistorheadachespecialistbutnottoneglectyourownroleinyourcare.
• Shealsorevealsthatforherithasbeenacombinationofmedicinalandnaturalstrategiesandpreventativesthathavehelpedherachieveherreductioninmigrainefrequency.
MIGRAINETRIGGERS • Sleepdisruption,changingsleepingpatternorjetlag • Stress,includinganyformofstressincludingstrong
emotions,anxietyandpressure • Dehydration • Visualagitationincludingbrightsunlight,fluorescent
lights,flashinglights • Neckdiscomfortincludingstiffnessorpain• Menstruation,menopauseorotherhormonalfactors • Odors • Weatherincludingheatorrapidchangeintemperature
orairpressure • Caffeine • Alcohol • Hungerincludingskippingmeals,lowbloodsugarlevels
orhypoglycemia • Diet,includinganytriggerfoods
MIGRAINEFREQUENCYPreviousdayspermonth:27Currentdayspermonth:10
63% reduction
NICKY SMITH PATIENTDETAILS Gender:Female Onset:32yearsold Duration:20years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT Botox
ADVICEYOU’DSHAREWITHOTHERS Oftennotonetreatmentistheanswer.Youneedtobewillingtotryarangeoftreatmentswhichwillgiveyouthemostrelief.Findingtheseandstickingtothesecanbeverydifficultandrequiresignificantlifestylechanges.Iamstillonthatjourney.
MOSTBENEFITFROM • Relpax • Botox • Eliminatingalcoholandcaffeine • Meditationandstressreduction
TREATMENTSTRIED Acetaminophen,Codeine(eg.Tylenol3or4),Amitriptyline(eg.Elavil,Endep),Aspirin,Doxylamine,Paracetamol,Codeine(eg.Mersyndol),Eletriptan(eg.Replax),HormoneReplacementTherapy/BirthControlpills,Ibuprofen(eg.Advil,Motrin,Nurofen),Indomethacin(eg.Indocin,Indocid),Mefenamicacid(eg.Ponstan),Metoclopramide(eg.Maxolon,Paramax,Pramin),OnabotulinumtoxinA(eg.BOTOX),Ondansetron(eg.Zofran),Oxycodonehydrochloride(eg.Endone),Paracetamol(eg.Panadol),Paracetamol,Codeine(eg.PanadeineForte),Propranolol(eg.Inderal),Rizatriptan(eg.Maxalt),Sumatriptan(eg.Imigran,Imitrex,Treximet),Topiramate(eg.Topamax),TramadolHydrochloride(eg.Tramadol),Zolmitriptan(eg.Zomig),Acupuncture,AdequateHydration,Avoidsustainednoise,Avoid/reducesocialactivities,Bowentherapy,Chineseherbs,CoolingGelSheet(eg.Kool'n'Soothe),Dark,quietroom,Dietarychanges,Drinkingwater,EliminatingCaffeine,EliminatingAlcohol,EliminatingChocolate,EliminatingNitrates/Nitrites,Exercise,Heatpack,Icetherapy/Icepacks,Improvingposture,Magnesium,MagnesiumCitrate,Meditation/Breathingexercises,MigraineSupportFormula,Multi-vitaminBCombos,Neck/scalpmassage,Physiotherapy(physicaltherapy),Reduce/managestress,Regularexercise,Relaxationtechniques,Remedialmassage,Sleep,Sleepingmask,VitaminBcomplex,Wearingsunglasses,Yoga,Zinc
COMMENTARY • Nickyhasusedacombinationofmedicaland
complementarystrategiestoimprovehermigrainecondition.
• ThisincludesBotoxtopreventmigraineandReplax(eletriptan)totreattheacutemigraineattack.
• Throughmeditation,stressreductionandeliminatingalcoholandcaffeineshehasreducedherfrequencybyalmost40%.
• Shemaynotberequiredtogiveupcaffeineandalcoholforever,butitiscertainlyworthconsideringtodotemporarilyforchronicmigraine.
MIGRAINETRIGGERS • Stress,includinganyformofstressincludingstrong
emotions,anxietyandpressure • Dehydration • Visualagitationincludingbrightsunlight,staringatthe
computerscreenfortoolong,fluorescentlightsflashinglights
• Neckdiscomfortincludingstiffnessorpaininyourneckorupperbackareaincludingshoulders
• Menstruation,menopauseorotherhormonalfactors • Weatherincludingheatorrapidchangeintemperature
orairpressure • Caffeine • Alcohol • Hungerincludingskippingmeals,lowbloodsugarlevels
orhypoglycemia • Diet,includinganytriggerfoods • Wearinghats • Flying
MIGRAINEFREQUENCYPreviousdayspermonth:18Currentdayspermonth:11
39% reduction
NICOLE SOHO PATIENTDETAILS Gender:Female Onset:27yearsold Duration:3years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT I'mstillgettingthemasoften,theyjustdon'tlastaslongasbefore(2-3hoursinsteadof2-3days).Ihavebeenmanagingmysleepbytryingtogettobedaroundthesametimeandwakeuparoundthesametime.ImakesureIeatevery4hoursandalwaystrytostayhydrated.
ADVICEYOU’DSHAREWITHOTHERS Keepamigrainejournalinwhicheverformyoulikeandtrackthebasics:sleeptimes,exerciseintensity,meals,menstrualcycle,lengthandintensityofmigraine,possiblestressors,treatment(drugsorover-the-counter),doctorsyou'reseeing. Removeyourselffromwhateveryouthinkisgivingyoumigraineandseeifyoufeelbetter.
MOSTBENEFITFROM • Takingadailynap • Caffeine • Sleepinadarkroomuntilitbecomesmanageableand
avoidpeopleandnoisyplaces
TREATMENTSTRIED Aspirin,Duloxetine(eg.Cymbalta),Sertraline(eg.Zoloft),Sumatriptan(eg.Imigran,Imitrex,Treximet),Topiramate(eg.Topamax),Venlafaxine(eg.Effexor),Acupuncture,AdequateHydration,Avoidfluorescentlighting,Avoidsustainednoise,Avoid/reducesocialactivities,Caffeine,Chiropractictreatment,Dark,quietroom,Dietarychanges,EliminatingChocolate,EliminatingDairy,Homeopathies,Icetherapy/Icepacks,Meditation/Breathingexercises,PaleoDiet,Passageoftime,PeppermintOil,Reducescreenbrightness,Reduce/managestress,Reflexology,Regularexercise,Relaxationtechniques,Sleep,Wearingsunglasses
COMMENTARY • Nicolehasnotreducedthenumberofdayswith
migraineeachmonthbutshehassignificantlyimprovedhermanagementofacuteattacksfrom2-3daysto2-3hoursperattack.
• Sleepisacommonfactorthatappearsinthosewithmigraine.Sleepisanessentialfunctionthatourbrainneedstorejuvenateandfunctionnormally.Thismaybeespeciallyimportantinmigrainepatientswherethebrain‘malfunctions’duringamigraineattack.
• Movingtoadarkquietroomandsleepareknowntobehelpfulandnaturalwaystorecovermorequicklyfromanattackformanywithmigraine.
• Theuseofcaffeineshouldbenotedwithcaution.Takentoooftenandirregularlycanleadtoreboundheadacheormigraine.
MIGRAINETRIGGERS • Sleepdisruption,changingsleepingpatternorjetlag • Stress,includinganyformofstressincludingstrong
emotions,anxietyandpressure • Dehydration • Visualagitationincludingbrightsunlight,staringatthe
computerscreenfortoolong,fluorescentlights,flashinglights
• Neckdiscomfortincludingstiffnessorpaininyourneckorupperbackareaincludingshoulders
• Menstruation,menopauseorotherhormonalfactors • Hungerincludingskippingmeals,lowbloodsugarlevels
orhypoglycemia
MIGRAINEFREQUENCYPreviousdayspermonth:13Currentdayspermonth:13 *Nicolehasreducedtheseverityofherattacksfrom2-3daysto2-3hours.
0% reduction*
SHARWAIN SMITH PATIENTDETAILS Gender:Female Onset:15yearsold Duration:35years
©Copyright2018AllRightsReserved.MigraineWorldSummit.Alwaysconsultyourdoctorformedicaladvice.
THEMOSTIMPORTANTFACTORINIMPROVEMENT • StressReduction • Magnesium • Hydration
ADVICEYOU’DSHAREWITHOTHERS • Findagoodheadachedoctor • Keeptryingthings
MOSTBENEFITFROM • IcePack • Magnesium • Rest • Meditation
TREATMENTSTRIED Acupuncture,AdequateHydration,Avoidfluorescentlighting,Avoidsmoke,Avoid/reducesocialactivities,Caffeine,CoenzymeQ10/CoQ10,Dark,quietroom,Dietarychanges,Drinkingwater,EliminatingCaffeine,EliminatingAlcohol,EliminatingMSG,EliminatingNitrates/Nitrites,EliminatingSoy,EliminatingSulfites,Feverfew,Icetherapy/Icepacks,Magnesium,Meditation/Breathingexercises,Multi-vitaminBCombos,Neck/scalpmassage,Passageoftime,Reduce/managestress,Rub/pressureTemples,Sleep,Sleepingmask,Tinted/colouredlenses,Wearingsunglasses
COMMENTARY • Sharwainsharessomeconcisebutfundamentaladvice
thatisimportantformostusfindagoodheadachedoctor(orspecialist)andkeeptryingthings.Itisimportanttoremembertherearemanyoptionsandmanyalternativesavailableformigraine.Differentpeoplerespondtodifferentthings.It’simportantwedonotgiveup.
• InterestinglySharwainhasfoundthemostimportantbenefitfromnaturalalternativeslikeIcetherapy,magnesium,rest,hydrationandmeditation.Allsimple,cheapandhelpfulstrategiesformigraineprevention.
MIGRAINETRIGGERS • Sleepdisruption,changingsleepingpatternorjetlag • Stress,includinganyformofstressincludingstrong
emotions,anxietyandpressure • Dehydration • Visualagitationincludingbrightsunlight,staringatthe
computerscreenfortoolong,fluorescentlights,flashinglights
• Neckdiscomfortincludingstiffnessorpaininyourneckorupperbackareaincludingshoulders.,
• Menstruation,menopauseorotherhormonalfactors.,• Odors,includingincense,perfume,chemicalsmells,
cigarettesmoke,vehicleexhaust,airpollution,Weatherincludingheatorrapidchangeintemperatureorairpressure
• Caffeine • Alcohol • Hungerincludingskippingmeals,lowbloodsugarlevels
orhypoglycemia • Diet,includinganytriggerfoodsnotalreadycovered
abovesuchasfoodadditivesincludingnitrites(processedmeats)andMSG(monosodiumglutamate),foodcoloring,chocolate,agedcheese,redwine,beer,caffeine,citrusfruits,curedmeatssuchasbacon,hotdogs,aspartameandicecream
MIGRAINEFREQUENCYPreviousdayspermonth:20Currentdayspermonth:15
25% reduction