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National Statistics on ASDNational Statistics on ASD• ASD now affects 1 in 150 childrenASD now affects 1 in 150 children

• ASD now affects 1 in 94 boysASD now affects 1 in 94 boys

• A child is diagnosed once every 20 minutesA child is diagnosed once every 20 minutes

• There are over 24,000 new cases diagnosed annuallyThere are over 24,000 new cases diagnosed annually

• ASD is more prevalent that juvenile diabetes, ASD is more prevalent that juvenile diabetes, childhood cancer & pediatric AIDS combined.childhood cancer & pediatric AIDS combined.

• ASD is fastest growing serious developmental disabilityASD is fastest growing serious developmental disability

• There are almost 2 million cases of ASDThere are almost 2 million cases of ASD

• The economic impact of autism is over The economic impact of autism is over $90 billion annually$90 billion annually

The California Legislative Blue Ribbon Commission on Autism

Autism Spectrum Disorders: A Public Health CrisisAutism Spectrum Disorders: A Public Health Crisis

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Dept. of Developmental Services & Regional CentersDept. of Developmental Services & Regional Centers• Caseload increased 634% from 1987 to 2002 • Currently there are almost 35,000 consumers with ASD• 84% are under the age of 22 years• Annual net increase of 3,200 cases of ASD• ASD now represents almost two-thirds of all new cases• Currently there are more cases of ASD than of Cerebral Palsy• Regional Centers probably serve only about 20% of ASD

School districtsSchool districts • Almost 35,000 students with ASD in special education• Most districts have doubled ASD students in just the past 4 years• Proportion of students with ASD in special education has increased >400%

in past 9years• There has been >1000% increase in ASD students K-12

during past 12 years

The California Legislative Blue Ribbon Commission on Autism

Autism Spectrum Disorders: A Public Health CrisisAutism Spectrum Disorders: A Public Health Crisis

California Statistics on ASDCalifornia Statistics on ASD

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The California Legislative Blue Ribbon Commission on Autism

• Legislation (Sen. Perata) enacted 2005;Unanimous & bipartisan support

• Autism Commission Goals ~ identify & close gaps:– Early identification & intervention– Education & continuous treatment– The “aging out” of children

• Commission’s Three Task ForcesIdentify existing problems & gaps

Review potential strategiesProvide specific recommendations

• Task Forces Reports (March 1, 2007)

• Statewide Townhall Meetings

• Final Report to Governor & Legislature(September 2007)

• Legislation extends Commission to Nov. 2008

Web site: senweb03.senate.ca.gov

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The California Legislative Blue Ribbon Commission on Autism

Factors & Considerations:

• Consumers, parents, & families as well as individuals working in the field must be involved

• The state should have a clear role and responsibility to address these issues

• The solutions should be clearly identified

• The solutions should be reasonable & feasible to implement.

• The solutions should have outcomes that can be monitored & measured

• The solutions should have the potential to effect broad “systems change”

 

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Autism Legislative Package: 2007-2008 Session

SB 527 – SB 527 – Early Identification of ASDEarly Identification of ASD (Sen. Steinberg) (Sen. Steinberg)

SB 1475 – SB 1475 – Pilot on Transitional Services for Early ASD Pilot on Transitional Services for Early ASD TreatmentTreatment (Sen. Torlakson) (Sen. Torlakson)

SB 1563 – SB 1563 – Health Insurance Coverage of ASDHealth Insurance Coverage of ASD (Sen. (Sen. Perata)Perata)

SB 1364 – SB 1364 – Addressing the Public Health Crisis of ASDAddressing the Public Health Crisis of ASD in Californiain California (Sen. Cedillo) (Sen. Cedillo)

AB 2302 – AB 2302 – Expanding Credentials for Teachers to EducateExpanding Credentials for Teachers to Educate Students with ASDStudents with ASD (Asm. Bass) (Asm. Bass)

AB 1872 – AB 1872 – State Clearinghouse for the Education of State Clearinghouse for the Education of StudentsStudents with ASDwith ASD (Asm. Coto) (Asm. Coto)

SB 1175 – SB 1175 – Expansion of Housing for ASDExpansion of Housing for ASD (Sen. Steinberg) (Sen. Steinberg)

SB 1531 – SB 1531 – Police Officer Training on ASDPolice Officer Training on ASD (Sen. Correa) (Sen. Correa)

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SB 527SB 527 – – Early Identification of ASDEarly Identification of ASD (Sen. Steinberg) (Sen. Steinberg)

• Pilot project (three or more counties) established by DDS to establish Pilot project (three or more counties) established by DDS to establish best practices for the effective identification, assessment and best practices for the effective identification, assessment and treatment of children with ASD and other developmental delaystreatment of children with ASD and other developmental delays

• DDS will establish an Autism Early Identification Advisory Committee DDS will establish an Autism Early Identification Advisory Committee (AEIAC) to implement innovative approaches, promote (AEIAC) to implement innovative approaches, promote collaboration/communication, utilize new telehealth strategies, collaboration/communication, utilize new telehealth strategies, improve professional development, provide appropriate improve professional development, provide appropriate compensation, and increase public awarenesscompensation, and increase public awareness

• DDS and AEIAC shall report to the Legislature by July 1, 2011 with an DDS and AEIAC shall report to the Legislature by July 1, 2011 with an evaluation and recommendations based on the outcomes of the pilot evaluation and recommendations based on the outcomes of the pilot projectproject

• Will be funded by non-general fund sources Will be funded by non-general fund sources

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SB 1475SB 1475 – – Pilot on Transitional Services for Early ASD Pilot on Transitional Services for Early ASD TreatmentTreatment (Sen. Torlakson) (Sen. Torlakson)

• Pilot project (three or more counties) by DDS to improve the transition of children with ASD as they transition at three years of age from regional centers to school districts

• This project shall identify and implement existing models of excellence and best practices that will establish seamless, coordinated, and integrated programs between regional centers and local school districts for the. identification, assessment and treatment of children with ASD and other developmental delays from birth to five years of age

• DDS shall establish an Early Autism Intervention and Transition Advisory Council that shall advise and assist the department in the pursuance of this legislation

• DDS and the Advisory Council shall provide a report and recommendations to the Legislature by June 1, 2012

• Will be funded by non-general fund sources

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SB 1563SB 1563 – – Health Insurance Coverage of ASDHealth Insurance Coverage of ASD (Sen. Perata) (Sen. Perata)

• The Department of Managed Health Care and the Department of The Department of Managed Health Care and the Department of Insurance shall review guidelines and standards on the Insurance shall review guidelines and standards on the screening, diagnosis, assessment, and treatment of autism and screening, diagnosis, assessment, and treatment of autism and other pervasive developmental disordersother pervasive developmental disorders

• The Department of Managed Health Care and the Department of The Department of Managed Health Care and the Department of Insurance shall develop recommendations by October 1, 2009, Insurance shall develop recommendations by October 1, 2009, on ensuring that health plans and insurers provide appropriate on ensuring that health plans and insurers provide appropriate and equitable coverage for those illnessesand equitable coverage for those illnesses

• These recommendations would be consistent with the These recommendations would be consistent with the protections provided under the existing California Mental Parity protections provided under the existing California Mental Parity Law, which specifically identifies ASD and PDD. Law, which specifically identifies ASD and PDD.

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SB 1364SB 1364 – – Addressing the Public Health Crisis of ASD in California (Sen. Cedillo)

• Legislative intent to declare and establish that that ASD is a Legislative intent to declare and establish that that ASD is a public health crisis within California.public health crisis within California.

• The California Department of Public Health (CDPH) has been The California Department of Public Health (CDPH) has been established to improve access to health care servicesestablished to improve access to health care services

• The Legislature directs the CDPH to establish an Autism The Legislature directs the CDPH to establish an Autism Spectrum Disorders Advisory Council Spectrum Disorders Advisory Council

• The Legislature directs CDHP to explore and provide The Legislature directs CDHP to explore and provide recommendations on establishing a pilot project for a recommendations on establishing a pilot project for a voluntary centralized registry of individuals with ASD voluntary centralized registry of individuals with ASD

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AB 2302AB 2302 – – Expanding Credentials for Special Education Expanding Credentials for Special Education Teachers to Educate Students with ASDTeachers to Educate Students with ASD (Asm. Bass) (Asm. Bass)

• Current law requires the Commission on Teacher Credentialing Current law requires the Commission on Teacher Credentialing to report to the legislature and the Governor on the existing to report to the legislature and the Governor on the existing process and requirements for obtaining and special education process and requirements for obtaining and special education credential and to recommend modification to enhance and credential and to recommend modification to enhance and expedite those procedures.expedite those procedures.

• Authorizes the holder of a level 1 education specialist Authorizes the holder of a level 1 education specialist credential who is authorized to provide instruction to credential who is authorized to provide instruction to individuals with mild and moderate disabilities to provide individuals with mild and moderate disabilities to provide instruction to pupils with ASDinstruction to pupils with ASD

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AB 1872AB 1872 – – State Clearinghouse for the Education of State Clearinghouse for the Education of Students with ASDStudents with ASD (Asm. Coto) (Asm. Coto)

• Based on the recommendations of the Superintendent’s Autism Commission, CDE shall establish the California ASD Clearinghouse in order to provide evidence-based recommendations and practices for the education of pupils with ASD

• Information provided by the Clearinghouse shall be targeted to a broad range of audiences and shall include the following goals:

• Internet web site on evidence-based practices• Creating a “toolbox” of resources• Featuring demonstration projects

• Superintendent of Education shall convene a Clearinghouse Oversight Committee to represent major stakeholders for the education of pupils with ASD and to perform the following:

• Establish criteria, guidelines, and processes• Select anchor documents and resources• Provide advice and recommendations• Develop online rating systems and periodic surveys

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SB 1175SB 1175 – – Expansion of Housing for ASD (Sen. Steinberg)Expansion of Housing for ASD (Sen. Steinberg)

• Expands the existing authority that has been granted to the Bay Area Expands the existing authority that has been granted to the Bay Area Housing Consortium Regional Centers to all regional centers throughout Housing Consortium Regional Centers to all regional centers throughout the statethe state

• Authorizes all regional centers to enter into negotiations and contracts Authorizes all regional centers to enter into negotiations and contracts with certain specified entities for the payment of lease or leases on with certain specified entities for the payment of lease or leases on housing for regional center clients pursuant to the fulfillment of the housing for regional center clients pursuant to the fulfillment of the following stipulations provided for in this act:following stipulations provided for in this act:

• That the housing and services are integrated with individuals That the housing and services are integrated with individuals without disabilitieswithout disabilities

• Approval of proposed ownership and management by regional Approval of proposed ownership and management by regional center & DDScenter & DDS

• Reasonable costsReasonable costs• Proposal includes approved transfer of property to non-profit Proposal includes approved transfer of property to non-profit

approved by regional centerapproved by regional center

• Bill calls for review of contracts by California Housing Finance Agency and Bill calls for review of contracts by California Housing Finance Agency and the Department of Housing and Community Developmentthe Department of Housing and Community Development

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SB 1531SB 1531 – – Police Officer Training on ASDPolice Officer Training on ASD (Sen. Correa) (Sen. Correa)

• The Commission on Peace Officer Standards and Training shall The Commission on Peace Officer Standards and Training shall create and make available on DVD and electronically a course create and make available on DVD and electronically a course on how to recognize and interact with people with ASDon how to recognize and interact with people with ASD

• This course will be made available to peace officers, This course will be made available to peace officers, firefighters, ambulance attendants and other emergency firefighters, ambulance attendants and other emergency workersworkers

• Possible voluntary identification card Possible voluntary identification card

• Possible voluntary electronic data base linked to DMVPossible voluntary electronic data base linked to DMV

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