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Sickle Cell Awareness Month September 2014

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SPECIAL CAREER FAIR GUEST APPEARANCE

BY TOM JOYNER

(888) 978-3790 | praisereporter.com | September 2014 3

Publishers Message

September is National Sickle Cell Awareness MonthThis special edition of

the Praise Reporter is important as Sep-

tember is “National Sickle Cell Awareness Month.” This month recognizesd both nationally and in Ohio gives homage to the issues, activities and information surrounding Sickle Cell Disease.

Sickle cell disease (SCD) affects people of many ra-cial and ethnic groups. In the United States, 90,000 to 100,000 people―mainly Blacks or African Americans―have SCD. The disease occurs among about 1 of every 500 Black or African-American births and among about 1 out of every 36,000 Hispanic-American births. Other people affected include those of Mediterranean, Mid-dle Eastern, and Asian origin. In addition, more than 2 million people carry the sickle cell gene that allows them potentially to pass the disease on to their children. These facts are the reason everyone shoukd Take Time, Know Your Status or #TTKYS which is the title of the new statewide campaign focused on raising awareness of sickle cell disease and sickle cell trait through the use of social media platforms. Sickle Cell awareness is near and dear to my heart. Several very close friends and family members are frequently hospitalized due to pain they encounter as a result of sickle cell anemia. I believe

that publications like this will assist our communities in supporting the efforts of the sickle cell programs in your area, as they provide the services and resources desper-ately needed by affected families.

To help the reader to understand the sickle cell phe-nomena, the following is some historical insight on this major health concern:

• The annual observance of sickle cell disease originated in 1975 when the National Association for Sickle Cell Disease and its member organizations began conducting month-long events to raise awareness about sickle cell disease and the need to address the problem at the national and local level.

• The Association (now called the Sickle Cell Disease Association of America, Inc. – SCDAA) and its member organizations, sponsored public educational pro-grams and fundraising activities during the month. State and local officials issued Sickle Cell Month proclamations and were introduced to local poster children.

• The SCDAA tradition of selecting a National Poster Child (now called the Child Ambassador Contest) from local candidates began in 1975 with President Ger-ald Ford greeting the first winner, 8-year- old Bridgette Earby of Oakland California, at the White House. Presi-dents’ Carter, Reagan, Bush, Clinton and Obama have also greeted the National Poster Child.

• The effort to have Sickle Cell Anemia Awareness Month officially recognized at all levels succeeded in 1983 when the U.S. House of Representatives unanimously

passed the resolution, introduced by the Congressional Black Caucus, asking President Reagan to issue a procla-mation designating the month of September as “National Sickle-Cell Anemia Awareness Month”. The President, signed Proclamation 5102, which did just that, in Septem-ber, 1983.

In Ohio, legislation designating the month of Sep-tember as “Sickle Cell Awareness Month” was signed by former Governor Bob Taft in February, 2003. Since its of-ficial recognition, the Ohio Department of Health (ODH) Sickle Cell Services Program in collaboration with a regional network of grant-funded sickle cell projects have dedicated the month the month of September to raising public and professional awareness and understanding about sickle cell disorders in Ohio.

September, 2014 marks the twelfth official year desig-nated as “Sickle Cell Awareness Month” in Ohio.

It is our hope that you will have an opportunity to participate in some of the sickle cell health and awareness events around the state.

For more information about “Sickle Cell Aware-ness Month” in Ohio or to receive educational materials, contact the Sickle Cell Project for your region (see Project Profiles).

For more information about the ODH Sickle Cell Services Program, contact the Program Coordinator at 614-466-1549 or [email protected].

Ivory D. PaynePublisher


STAFFIvory D. Payne [email protected]

Advertisting Agency Spencer 4Higher Media

CONTRIBUTING WRITERSCheryl Jones (ODH), Brenda Spencer (Spencer 4Higher Media), Wendy Berry-West (OSCHA)Lisa Shook (Region I), Cynthia Moon (Region II), Kortney Weber (Region III), Tanica Jeffries (Region IV), Ira Bragg-Grant (Region V)LaTonya Lewis (Region VI)Zenia Johnston (N.E.O.)Arielle Hernandez

CREDITSPaper funded in whole or part by the Ohio Developmental Disabilities Council under the Developmental Disabilities Assis-tance and Bill of Rights Act and the Ohio Department of Health.

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Inside this issueSpecial Sickle Cell Awareness Month Section• Ohio Unveils New Sickle Cell Awareness Campaign ...................................................................................................... 5• SICKLE CELL PROJECT PROFILE: STATEWIDE .......................................................................................................... 7• Top 5 Frequently Asked Questions About Sickle Cell Trait .............................................................................................. 8• SICKLE CELL PROJECT PROFILE: REGION I-CINCINNATI ....................................................................................... 9• SICKLE CELL PROJECT PROFILE: REGION II-DAYTON .......................................................................................... 10• SICKLE CELL PROJECT PROFILE: REGION III-TOLEDO ......................................................................................... 11• Spotlight On A Sickle Cell Affected Family Group ......................................................................................................... 12• Sickle Cell And Health Awareness Event Listings ......................................................................................................... 12• “Sickle” a Personal Story of Pain, Purpose, and Perseverance..................................................................................... 16• SICKLE CELL PROJECT PROFILE: REGION IV-COLUMBUS ................................................................................... 17• SICKLE CELL PROJECT PROFILE: REGION V-CLEVELAND.................................................................................... 18• SICKLE CELL PROJECT PROFILE: REGION VI-AKRON ........................................................................................... 19• Sickle Cell National Event Listings ................................................................................................................................ 20

More Praise....Gospel Music, Entertainment• Comedian Jonathan Slocumb to Host Columbus Kingdom Image Awards .................................................................. 21• Gospel Music Legend Twinkie Clark Special Guest at 30th Annual Columbus GospelFest ........................................... 23• Top 10 Gospel ............................................................................................................................................................. 23• Left Behind, Upcoming Action-Adventure Starring Nicolas Cage To Open In Theaters Nationwide ............................... 23• Events ......................................................................................................................................................................... 25• Events ......................................................................................................................................................................... 26

www.247praiseradio.com • Sharing Good News And Great Music


Sickle Cell Awareness l #TTKYS

Ohio Unveils New Sickle Cell Awareness Campaign

The Ohio Regional Sickle Cell Proj-ects, in collaboration with the Ohio De-partment of Health Sickle Cell Services Program, will unveil a new campaign during September Sickle Cell Month to raise awareness of the most common ge-netic blood disease in the U.S.Take Time, Know Your Status or #TTKYS - is the title of the new statewide campaign fo-cused on raising awareness of sickle cell disease and sickle cell trait through the use of social media platforms. The mes-sage of “Take Time, Know Your Status”, hones in on the personal responsibility of each individual to know if they carry the gene for sickle cell and the impor-tance of getting TESTED!

According to the Centers for Dis-ease Control and Prevention, approxi-mately three million people in the U.S. have sickle cell trait. Thousands more are unaware of their trait status. “It is important for individuals to know if they carry the gene for sickle cell prior to having children” says Cheryl Jones, Program Coordinator for the Sickle Cell Services Program at the Ohio Depart-ment of Health. “If both parents have sickle cell trait, there is a 25% chance with each pregnancy that their child will have sickle cell disease. Sickle cell dis-ease is a serious, life-long blood disease. That is why it is so important to know your sickle status.”

The #TTKYS campaign will target at-risk populations in the general public and among teenagers and young adults who may be unaware of their sickle sta-

tus. The use of social media platforms will allow for the message to reach a broader audience base. The campaign will also use the #TTKYS acronym as a logo to brand products (e.g. t-shirts, ban-ners) for distribution to the target audi-ence and to sickle cell community part-ners. This type of format will allow the target audience and community partners to join in on the sickle cell movement.

The #TTKYS campaign joins the “FACE Sickle Cell” campaign – which unveiled by ODH in 2008 – put an im-portant face on sickle cell disease in Ohio. Originally developed and cre-ated by the Connecticut Department of Public Health, “FACE Sickle Cell” was designed to build awareness of the two most important facts about sickle cell trait and sickle cell disease:

1. Sickle cell affects people of dif-ferent races, ages, genders and social sta-tus.

2. Sickle cell is genetic and it can be a “piece” of what we pass on to our children. So, we must always consider who we are a part of and who is or will be a part of us!

The “FACE Sickle Cell” campaign continues to be an important resource in our arsenal to educate, inform and em-power the residents of Ohio.

For more information on how YOU can get involved, contact a Sickle Cell Project in you region.


SICKLE CELL AND HEALTH AWARENESS EVENT LISTINGSSeptember 6“BACK IN STRIDE AGAIN” - 5K WALK.RUN.JOG. FOR SICKLE CELL DISEASE

8 a.m.-NoonWolfe Park105 Park DriveColumbus, OH 43209

Audience: Open to individuals, families, friends and supporters of individuals affected by sickle cell disease.Cost: $25 (includes cost of t-shirt). Individuals may get sponsors to help support the cost.Registration Deadline:

Registration open until the morning of the walk (9:00 a.m.).Description: This event, which has not been held since 2008, will use the slogan “Back in Stride Again” to commemorate a new beginning of walking on behalf of sickle cell disease. Information about sickle cell disease and sickle cell trait will be available along with blood donation and bone marrow registry information for sickle cell disease.Organizer: Sickle Cell Disease Association of America, Inc. (SCDAA)/OSCHA

Contact: Wendy Berry-West, (614) 228-0157

September 24OHIO SICKLE CELL ADVISORY COMMITTEE (OHSCAC) ANNUAL MEETING

11 a.m.-3 p.m.Del Monte BuildingLocation of event: Board Room341 South 3rd StreetColumbus, OH 43201

Audience: Open to members of the OHSCAC. Interested non-members/guests may

attend the meeting with prior notice to the organizer.Cost: FREEDescription: This is an annual meeting of the OHSCAC to discuss issues related to sickle cell disease programming and policy. The mission of the OHSCAC is “To increase awareness of, advocacy for and advancement in services concerning sickle cell disease in Ohio.”Organizer: Sickle Cell Disease Association of America, Inc. (SCDAA)/OSCHAContact: Wendy Berry-West, (614) 228-0157

September 28WESLEY CHURCH OF HOPE SICKLE CELL AWARENESS SUNDAY

11 a.m.-1 p.m.Wesley Church of Hope2935 Bulen AvenueColumbus, OH 43207

Audience: Members of the church and the public.Cost: FREEDescription: Event to bring awareness of sickle cell disease to the congregation and the community surrounding the church.Organizers: Sickle Cell Disease Association of

America, Inc. (SCDAA)/OSCHA and Wesley Church of HopeContact: Wendy Berry-West, (614) 228-0157

Note: The times, dates and locations of the 2014 Sickle Cell and Health Awareness Event Listings are subject to change. The Praise Reporter does not assume responsibility for the accuracy or cancellation of any event. We suggest that you verify all event listings prior to attendance.

The mission of the Ohio Sickle Cell and Health Association (OSCHA) is to “ Provide Education, Advocacy and Sup-port Statewide to Individuals and Fami-lies Affected and At-Risk for Sickle Cell Disease”. This means that OSCHA must take a proactive role in the way in which sickle cell disease is promoted, advocated for and perceived. How do we do this? Through marketing, OSCHA seeks to pro-vide innovative ways to educate the public and bring awareness to the phenomena of sickle cell disease.

The early part of 2014 offered the op-

portunity for OSCHA to do just that! In collaboration with two affiliate regional sickle cell projects, OSCHA set forth to dis-pel myths and promote the issue of sickle cell disease. For the past 3 years OSCHA in partnership with the Cincinnati Com-prehensive Sickle Cell Center, has hosted individuals affected from across the state to participate in a full day empowerment seminar , the “Annual Empowerment Day for Adults Affected By Sickle Cell Disease” . Why the focus on adults? Adults affected are less likely to receive the care and sup-port available in pediatric care setting;

Ohio Sickle Cell and Health Association 341 South Third StreetSuite 200Columbus, OH 43215Phone: (614) 228-0157 http://www.ohiosicklecell.org

Counties:Statewide-88 Ohio Counties

Standard services available:• Consumer and professional training and education• Statewide public awareness and media campaigns

Expanded services and programs:• Statewide Sickle Cell Advisory Committee • Empowerment Scholarship Fund • Information and referral services for extended family testing • Ohio Chapter of the Sickle Cell Disease Association of America, Inc. (SCDAA)• Advisory organization to the Ohio Sickle Cell Affected Families Association • Statewide coordinator for Sickle Cell Sabbath/Sickle Cell Month/Praise Reporter social marketing activities • Organizer for Statewide Town Hall “Community

Conversation” Meetings • Representative to local, state and national organizations and groups • Coordinating organization for the Columbus area 5K Walk.Run.Jog. for Sickle Cell Disease• Partner with Cincinnati Comprehensive Sickle Cell Center for Annual Empowerment Day Event for Consumers

Non-grant supported services and programs (provided through the Ohio Sickle Cell and Health Association):• Patient/client/legislative advocacy for issues related to sickle cell disease• Coordinating organization for SCDAA and Ohio Sickle Cell Child Ambassador Competition and scholarship awards• Emergency support services for individuals/families with sickle cell disease• Social marketing campaigns • Case management and physician referral (per request)

Project Director: Wendy Berry-West

Medical Advisor: Dana Vallangeon, MD (Lower Lights Christian Health Center)

Ohio Sickle Cell and Health Association

adults affected experience more disparities in social, economic and systemic services than children with this chronic disease; and there is a need for adults affected to have more opportunities to network and be educated about what can assist in improv-ing their quality of life. This year the focus of the annual event offered peer informa-tion through national advocacy speakers, consumer education on issues related to the phenomena and peer-to-peer network-

ing so often not available in the everyday life of the adult living with sickle cell dis-ease.

The West Central Comprehensive Sickle Cell Program (Dayton) joined forc-es with OSCHA in a Town Hall meeting entitled “Sickle Cell Disease: Empower-ment Through Community Conversa-tion”. This unprecedented event created

The Sickle Cell Phenomena—Promotion of A Public Health Issue

SICKLE CELL PROJECT PROFILE: STATEWIDE

left to right - Saylor White, Cheryl Jones, Eva Winton, Wendy Berry-West,Cynthia Moon and Jessica and Edmound Dai’Re III.


See HEALTH ISSUES, on page 8


Q. WHAT IS SICKLE CELL TRAIT?A. Sickle cell trait (SCT) is not a

disease, but having it means that a per-son has inherited the sickle cell gene from one of his or her parents. Peo-ple with SCT usually do not have any symptoms of sickle cell disease (SCD) and live a normal life.

Q. WHAT IS SICKLE CELL DISEASE?A. Sickle cell disease describes a

group of inherited red blood cell disor-ders:

• In SCD, the red blood cells become hard and sticky and look like a C-shaped farm tool called a “sickle.”

• Sickle cells die early, which causes a constant shortage of red blood cells.

• Sickle cells can also get stuck in small blood vessels and block the flow of

blood and oxygen to organs in the body. These blockages cause repeat-ed episodes of severe pain, organ damage, serious infections or even stroke.

• SCD is inherited when a child re-ceives two sickle cell genes—one from each parent.

Q. WHO IS AFFECTED BY SICKLE CELL TRAIT? A. In the United States, SCT affects about 1 out of every 12 blacks or African-Americans and about 1 out of every 100 Latinos. • SCT can also affect people whose fami-

lies come from Africa, India, Central and South America, the Middle East, the Ca-ribbean and the Mediterranean region.

• Approximately 3 million people liv-ing in the U.S. have SCT and many are unaware of their status.

Q. WHAT HEALTH COMPLICATIONS ARE ASSOCIATED WITH SICKLE CELL TRAIT?

A. Most people with SCT do not have any symptoms of SCD, although – in rare cases – people with SCT might experience complications of SCD, such as “pain episodes” or “crises” and, in extreme circumstances, sudden death.

In their extreme form and in rare cases, the following conditions could be harmful to people with SCT: • Increased pressure in the atmosphere

(e.g. while scuba diving). • Low oxygen levels in the air (e.g.

when mountain climbing, exercising hard in military boot camp or strenu-ous athletic training/competition).

• Dehydration (e.g. too little water in the body).

• High altitudes (e.g. flying, mountain

climbing or visiting a city at a high altitude).

• More research is needed to find out why some people with SCT have complications and others do not.

Q. HOW WILL A PERSON KNOW IF HE OR SHE HAS SICKLE CELL TRAIT?

A. A simple blood test can be done it find out if someone has SCT. Contact your health care provider, clinic or the Sickle Cell Project in your region for testing availability.

For more information about sickle cell trait and links to other websites, go to: Cen-ter for Disease Con-trol and Prevention - http://www.cdc.gov/ncbddd/sicklecell/free-materials.html

Frequently Asked Questions About Sickle Cell Trait


a rare opportunity for awareness about sickle cell disease to go out into the com-munity. Radio Station WDAO 1210 AM “The Real Rhythm of the City”, served as the platform by which individuals affected , health professionals and leaders in the program presented facts, issues and heart-felt stories about the sickle cell phenomena to the community. The response from the general public was well received with calls coming in throughout the two hour talk show. In addition, the local sickle cell pro-gram received calls from the area, as well as a donation in support of their services. The talk show created a buzz in the Dayton community, who seemed surprised that the issue still exists, as well as thoughtful about the phenomena of sickle cell that might not have been felt for a long time.

As the West Central Ohio Program Di-rector stated, “Its Takes A Community to Change A Cause”. Change is inevitable and it is the premise of OSCHA to be the cata-lyst for change. As change agents our role is to transform the issue of sickle cell dis-ease. This can only be done collectively as an organization that seeks to ADVOCATE. INSPIRE.CHANGE.

HealtH Issues from page 7


September 4thSICKLE CELL AWARENESS MONTH CINCINNATI KICK-OFF

10 a.m.-2 p.m.Fountain Square416 Vine StreetCincinnati, OH 45202

Audience: Open to the general publicCost: FREEDescription: Kick-off event hosted by Cincinnati Comprehensive Sickle Cell Center (CCSCC) to commemorate September Sickle Cell Awareness Month. Information about sickle cell disease, sickle cell trait and free testing opportunities will be available. Be the Match bone marrow donor program,

Hoxworth Blood Center and local advocacy groups will also be on-site.Organizer: Cincinnati Comprehensive Sickle Cell CenterContact: Deidra Haygood, (513) 636-3472

September 10-13ORIENTATION FOR NURSES NEW TO OHIO SCHOOLS

Check website for times Ohio Department of Agriculture8995 East Main StreetReynoldsburg, OH 43068

Audience: Licensed nurses who have less than two years of experience working in schools and who have not previously attended an orientation.

Cost: $80 includes conference materials and nursing continuation education credit.Description: Three-day workshop is to offer nurses without prior experience in Ohio schools current information regarding school nursing. The CCSCC and the Ohio Department of Health (ODH) Sickle Cell Services Program will be on-site (Thursday, September 11) to provide information relevant to school nursing and students with sickle cell disease.Organizer: ODH School Nursing ProgramFor more information: http://www.odh.ohio.gov/odhprograms/chss/schnurs/conf.aspx

September 10UNIVERSITY OF CINCINNATI HEALTH AND WELLNESS FAIR

11a.m.-2 p.m.University of Cincinnati (UC)Location of event: McMicken Commons(Corner of Clifton Avenue and Martin Luther King Drive)Cincinnati, OH 45219

Audience: College students and employees of UCCost: FREEDescription: Annual health and wellness fair hosted by the UC Wellness Center. The CCSCC will be on-site to provide educational information about sickle cell trait and sickle cell disease.Organizer: Cincinnati

Comprehensive Sickle Cell CenterContact: UC Wellness Center, (513) 556-6124

September 17SICKLE CELL AWARENESS BLOOD DRIVE

7:00 am – 7:00 pmCincinnati Children’s Hospital Medical CenterLocation of event: Mobile bus outside of Location D3333 Burnet AvenueCincinnati, OH 45229

Audience: Open to the general public. Blood donation eligibility guidelines can be found at www.hoxworth.org/donate_blood/eligibility.htmlCost: $FREE

Contact: Deidra Haygood, (513) 636-3472

September 27CINCINNATI WALKS FOR KIDS

Check the website for walker check-in options4:30 p.m.-WalkCincinnati Zoo and Botanical Gardens3400 Vine StreetCincinnati, OH 45220

Audience: Patients, families and supporters of Cincinnati Children’s Hospital Medical Center.Cost: $25 for adults and $5 for children 17 and younger. See website for more information www.cincywalks.org

SICKLE CELL AND HEALTH AWARENESS EVENT LISTINGS

SICKLE CELL PROJECT PROFILE: REGION I-CINCINNATI

February 18, 2014 represents a historic day for sickle cell disease (SCD) in Uganda. This day marked the official opening of the Sickle Cell Laboratory within the Central Public Health Laboratories (CPHL) in the capital city of Kampala, Uganda. Cincin-nati Children’s Hospital has proudly be-gun a formal partnership with the Uganda Ministry of Health, to perform a detailed surveillance study that will investigate and document the prevalence and distribution of SCD across the country. The Uganda Sickle Surveillance Study (US3) represents a bold and vital first step toward address-ing the needs of children with SCD who live in Uganda. The initiative from Cincinnati Children’s is led by Dr. Russell Ware, Direc-tor of the Division of Hematology and co-Executive Director of the Cancer and Blood Diseases Institute; the team is working closely with local leaders at the Ministry of Health, the CPHL, and Makerere University on this landmark study.

Sickle Cell Disease in UgandaOver 400,000 SCD births occur globally

each year, most of which occur in sub-Sa-haran Africa. Uganda is a small country in East Africa with a population of 36 million and an annual birth rate of 1,600,000. Ugan-da has one of the highest child mortality rates in the world, and each year an estimat-

ed 20,000 babies are born with SCD; sadly, 70-80% of these affected children die before age five years. SCD therefore contributes heavily to Uganda’s under-5 mortality rate. Given the absence of accurate data on the prevalence of SCD and trait, coupled with a lack of proper diagnosis and early medi-cal intervention, as well as inadequate SCD education among healthcare providers and the general public, SCD is a common but in-visible killer of children in Uganda.

Study Setting and MethodsThe CPHL serves as Uganda’s national

referral laboratory and works under the Na-tional Disease Control Program of the Min-istry of Health. The CPHL HIV screening program, known as the Early Infant Diag-nosis (EID) Program, uses a sample trans-port network to collect and test dried blood spots from HIV-exposed children at health facilities across the country. US3 is testing these same samples for SCD, and anticipate >75,000 results during the 12-month study period. Dr. Ware’s team from Cincinnati Children’s travelled to Kampala to set-up the new Sickle Cell Laboratory and to train CPHL laboratory technicians in diagnostic testing and interpretation. The Cincinnati Children’s team provides ongoing pro-grammatic and technical support that has built local laboratory capacity and research

capabilities. To date, 25,000 samples have been tested that reveal substantial differ-ences in the amount of SCD and trait in dif-ferent regions of the country.

The Next StepsThe US3 study will collect data to guide

the Ministry of Health as it plans to initiate pilot newborn screening programs that tar-get high prevalence areas. With accurate prevalence data and geospatial distribution maps, the Ministry of Health will address the current burden of disease, and begin to develop a national sickle cell strategy.

Cincinnati Children’s Hospital Medical Center3333 Burnet Avenue, MLC 7015Cincinnati, OH 45229(513) 636-7541http://www.cincinnatichildrens.org/svc/alpha/c/cancer-blood/blood-disease/sick-le-cell

Region I counties:Adams, Brown, Butler, Clermont, Clinton, Hamilton, Highland, Warren

Standard services available:• Newborn screening coordination, counsel-ing and education• Free hemoglobin testing• Outreach education and training for health-care professionals and the public• Care coordination for pediatric patients di-agnosed with sickle cell disease• Regional center for hemoglobinopathy edu-cational materials• Sickle Cell Sabbath/Sickle Cell Month edu-cational activities

Expanded services and programs:• “Center Talk” newsletter for pediatric fami-lies

• Newsletter for regional healthcare providers

Non-grant supported services and pro-grams (provided through the Compre-hensive Sickle Cell Center at Cincinnati Children’s Hospital Medical Center):• Comprehensive sickle cell clinic for pediat-ric patients, including social work and school intervention program• Expanded educational and support pro-grams for individuals/families with sickle cell disease• Extensive clinical research studies for indi-viduals/families with sickle cell disease• Transition to adult care programs• Annual summer camp program • Annual National Hemoglobinopathy Coun-selor Training Course• Health Resources and Services Administra-tion Sickle Cell Disease Newborn Screening Program grantee (2011 – 2015)• Training/rotation in hemoglobin disorders

Project Director: Lisa Shook

Medical Director: Charles Quinn, MD

Cincinnati Comprehensive Sickle Cell CenterCincinnati Children’s Launches a Surveillance Study of Sickle Cell Disease in the Republic of Uganda



SICKLE CELL AND HEALTH AWARENESS EVENT LISTINGSAugust 30SICKLE CELL FAMILY SKATING PARTY

2-5:00 p.m.Skateworld of Vandalia333 South Brown School RoadDayton, OH 45377

Audience: Open to patients/families with sickle cell disease who receive care at the West Central Ohio Comprehensive Sickle Cell Center.Cost: FREERegistration Deadline: August 25, 2014Description: Fun event for patients and families. The West Central Ohio Comprehensive Sickle Cell Center will be on-site to provide back-to-school information related to sickle cell disease and patient education (Individualized Education Program-IEP/Section 504 Plans). All school-age patients (that RSVP

by the registration deadline date) will receive a backpack full of back-to-school supplies.Organizer: West Central Ohio Comprehensive Sickle Cell CenterContact: Synthia Copher, (937) 641-4334

September 5SICKLE CELL AWARENESS BLOOD DONOR DRIVE

8:00 a.m.-4:00 p.m.Community Blood Center Main Office (Downtown Dayton)349 South Main StreetDayton, OH 45402

Audience: Target audience is African-American blood donors (ages 18 & over). Blood donation guidelines can be found at http://givingblood.org/donate-blood/who-can-donate.aspx.Cost: FREE

Description: Blood drive event to bring awareness to the community about sickle cell disease and the need for minority blood donors. The West Central Ohio Comprehensive Sickle Cell Center will be on-site to provide information about sickle cell disorders and regional program services, along with the Dayton/Springfield Sickle Cell Affected Families Association, Inc.Organizers: Community Blood Center and West Central Ohio Comprehensive Sickle Cell CenterContact: Tracy Morgan-Community Blood Center, (937) 461-3254

September 14PHILLIPS TEMPLE 9TH ANNUAL HEALTH FAIR

10:00 a.m.-2:00 p.m.Phillips Temple CME Church3620 Shiloh Spring RoadTrotwood, OH 45426

Audience: Open to the general public and church communityCost: FREEDescription: Event will offer the community important screenings and provide information that meets the mind, body and spirit. The West Central Ohio Comprehensive Sickle Cell Center will be on-site to provide information related to sickle cell disorders and regional program services.Organizer: Phillips Temple CME ChurchContact: Charles Day, (937) 837-9631, Ext. 104 September 17WELLNESS AND BENEFITS FAIR

10:00 a.m.-2:00 p.m.Central State UniversityLocation of event: Ballroom in the Ward Building1400 Brush Row Road

Wilberforce, OH 45384

Audience: College students and the general publicCost: FREEDescription: Event will consist of informative vendor booths, student’s clubs and organizations and Central State University departments. The West Central Ohio Comprehensive Sickle Cell Center will be on-site to provide information related to sickle cell disorders and regional program services.Organizer: Central State UniversityContact: Molly Cropenbaker, (937) 376-6245

October 12HEALTH AND WELLNESS DAY

Noon-3:00 p.m.St. Luke Missionary Baptist Church2262 North GettysburgDayton, OH 45405

Audience: Open to the general public and church communityCost: FREEDescription: Event will offer the community important screenings, educational information and speakers that will address “Living with a Chronic Disease”. The West Central Ohio Comprehensive Sickle Cell Center will be on-site to provide information related to sickle cell disorders and regional program services.Organizer: St. Luke Missionary Baptist ChurchContact: Mrs. Dean Roberts, (937) 277-2632

Dayton Children’s HospitalOne Children’s PlazaDayton, OH 45404(937) 641-3111 or 1-800-228-4055 ext. 5014http://www.childrensdayton.org/cms/dayton_childrens_services/0aa34374b79c9d18/index.html

Region II counties:Allen, Auglaize, Champaign, Clark, Darke, Greene, Hancock, Hardin, Logan, Mercer, Miami, Montgomery, Paulding, Preble, Putnam, Shelby and Van Wert

Standard services available:• Newborn screening coordination and follow-up • Free hemoglobin testing• Hemoglobinopathy counseling and education• Care coordination and specialty resource referrals• Community education and outreach• Regional resource clearinghouse of educational materials • Sickle Cell Sabbath/Sickle Cell Month activities• Sickle Cell Advisory Committee

Expanded services and programs:• Patient and family disease education• School intervention program• Patient assistance program • Special family events/activities• Living Healthy with Sickle Cell Disease Workshop for Adults (part of the Chronic Disease Self-Management Program)

Non-grant supported services and programs (provided through the Hematology/Oncology Department at Dayton Children’s Hospital):• Diagnostic evaluation, treatment, and management services for patients birth to 22 years of age• Consultation and collaboration with adult health care providers• Nutrition assessment and counseling• Social work services• Psychosocial assessment and intervention• Transition Clinic at Five Rivers Health Center (725 South Ludlow Street, Dayton, 45402)• Training/rotation/internship in hemoglobin disorders

Project Director: Cynthia MoonMedical Director: Mukund Dole, MD

SICKLE CELL PROJECT PROFILE: REGION II-DAYTON

The West Central Ohio Comprehensive Sickle Cell Center (WCOCSCC) implement-ed the Living Healthy with Sickle Cell Dis-ease Program, a workshop adapted from the Chronic Disease Self-Management Program (CDSMP), an evidence-based program de-veloped by Stanford University Patient Edu-cation Research Center.

The workshops are designed for any adult, 19-years of age and older living with sickle cell disease (and/or other chronic con-ditions) and their caregivers. Each workshop focuses on teaching the skills needed for the day-to-day management of living with sickle cell disease by enhancing regular treatment and education, teaching patients to coordi-nate their care with other providers and en-couraging patients to stay active and carry out normal life activities like chores, employ-ment and social life.

So far, WCOCSCC has held three ses-sions since its inception in 2012. Read what some of the participants had to say about the workshops.

• “The fact that people feel the same way that I feel is a strength of this workshop” -2013 participant

• “Commitment to the patients and teaching are strengths of the program”-2013 participant

• “I loved the hands-on activities and practicing the skills…it increased my understanding of how to manage my dis-

ease”-2013 participant• “Sharing information from each par-

ticipant about communicating with their doctors was great…each participant is inter-esting and I love it!”-2013 participant

• “I loved the symptom cycle chart, it helped me understand how my disease is related to other symptoms including anxiety, stress and fatigue”-2012 participant

• “I learned how to manage my chronic disease, eat right and use relaxation tech-niques”-2012 participant

• “Please continue to offer these work-shops because it’s definitely beneficial”-2012 participant

The next session will be offered late fall of 2014. Workshop topics will include: 1) techniques to deal with problems such as frustration, fatigue, pain and isolation, 2) appropriate exercise for maintaining and improving strength, flexibility, and endurance, 3) appropriate use of medica-tions, 4) communicating effectively with family, friends and health care profes-sionals, 5) nutrition and 6) how to evalu-ate new treatments. All participants in the workshop are provided with a free copy of the companion book, “Living a Healthy Life with Chronic Conditions” a relaxation CD, “A Time for Healing” and a journal. WCOSCC’s goal is to provide adult partici-pants with the tools, skills and techniques

needed to become good self-managers. In return, participants can improve their qual-ity of life of living with sickle cell disease. Providing adults with self-management skills is the key to living healthy with sickle

cell disease. For more information about the Living

Healthy with Sickle Cell Disease Program, contact Cynthia Moon at 937-641-5014 or [email protected].

West Central Ohio Comprehensive Sickle Cell Center

What Is The Key To Living Healthy With Sickle Cell Disease?

Sickle Cell Awareness l #TTKYS l



SICKLE CELL AND HEALTH AWARENESS EVENT LISTINGSSeptember 1-31THE UNIVERSITY OF TOLEDO BLACK STUDENT UNION OUTREACH/EDUCATION

12:00 p.m.-5:00 p.m. (during office hours)The University of Toledo Black Student UnionLocation of event: Student Union #3523 (3rd Floor)2801 West BancroftToledo, OH 43606

Audience: University of Toledo students

Cost: FREEDescription: For September-National Sickle Cell Awareness Month, the Sickle Cell Project of North West (NW) Ohio will have information on sickle cell disorders and regional services available for students at the Black Student Union on the campus of the University of Toledo.Organizer: Sickle Cell Project of NW OhioContact: Kortney Weber, (419) 255-7883, Ext. 110

September 1, 8, 15, 22, 29LUCAS COUNTY JOBS

AND FAMILY SERVICES OUTREACH/EDUCATION

8:30 a.m.-4:40 p.m.4310 Monroe StreetToledo, OH 43606

Audience: Open to the general publicCost: FREEDescription: For September-National Sickle Cell Awareness Month, the first Monday of every week, the Sickle Cell Project of NW Ohio will have a display table set up with information on sickle cell disorders and regional services

available for those individuals coming into the Job and Family Services building.Organizer: Sickle Cell Project of NW OhioContact: Kortney Weber, (419) 255-7883, Ext. 110

September 17COMMISSION ON MINORITY HEALTH PRESENTATION

9:00 a.m.EMS Training Center2127 Jefferson AvenueToledo, OH 43604

Audience: Representatives from various organizations in the region that work in the area of minority health.Cost: FREEDescription: Presentation to the attendees of the monthly meeting of the Commission on Minority Health regarding sickle cell disorders and regional services provided by the Sickle Cell Project of NW Ohio.Organizers: Toledo-Lucas County Health Department, Toledo Commission on Minority Health, Sickle Cell Project of NW OhioContact: Kortney Weber, (419) 255-

7883, Ext. 110

Note: The times, dates and locations of the 2014 Sickle Cell and Health Awareness Event Listings are subject to change. The Praise Reporter does not assume responsibility for the accuracy or cancellation of any event. We suggest that you verify all event listings prior to attendance.

September is National Sickle Cell Awareness Month, so it’s very fitting that it is also National Pain Awareness Month. Chronic pain is one of the hallmark com-plications of sickle cell disease, and for those living with chronic pain, the only relief they may feel is when taking opioid (narcotic) medi-cations such as Vicodin, Per-cocet, OxyContin, methadone and morphine (just to name a few). While these medica-tions offer patients legitimate treatment options for pain, when taken at high doses on a regular basis they can severe-ly inhibit a person’s ability to function normally on a day to day basis. Long term, regu-lar opioid use can also lead to physical dependence and therefore addiction. Many adults living with sickle cell disease know these facts all too well, and are constantly struggling to maintain a deli-cate balance where their pain is being treated adequately while still being able to live productive lives free from the physical side effects of these medication.

Meet Shau’nea Thomas (friends and family call her Shay). Mrs. Thomas, who resides in Chandler, AZ but is originally from Toledo, OH, is a 33 year old wife and step-mom who is living with sickle cell

disease. She is also one of the first sickle cell patients in the country to have a pump implanted to administer medicine to treat her pain. And the most amazing aspect of the pump is that it releases a drug to treat her pain that is a non-narcotic, non-opioid.

The drug is called PRIALT, and it is syn-thesized from the venom of a marine snail. Yep, you read that right, a marine snail. But as strange as it sounds, it works!

Mrs. Thomas moved to Columbus, OH a number of years ago and began

SICKLE CELL PROJECT PROFILE: REGION III- TOLEDO

313 Jefferson Avenue (mailing address)Toledo, OH 43604

Cordelia Martin Health Center (location address)615 Division StreetToledo, OH 43604(419) 255-7883 Ext.110

Region III counties:Defiance, Erie, Fulton, Henry, Huron, Lucas, Ottawa, Sandusky, Seneca, Williams, Wood

Standard services available: • Newborn screening coordination and fol-low-up services• Hemoglobinopathy counseling • Education, outreach and awareness activities • Regional resource center for hemoglobin-opathy educational materials • Sickle Cell Sabbath/Sickle Cell Month activities

Expanded services and programs:• Patient and family disease education• School outreach• Genetic counseling (in collaboration with the University of Toledo Division of Genetics)

Non-grant supported services and pro-grams (provided through Cordelia Martin Health Center):• Primary and pediatric medical care for unin-sured and underinsured populations• Social work services• On-site pharmacy and laboratory• WIC Services

Project Director: Kortney Weber

Medical Advisors: Crawford Strunk, MD (Toledo Children’s Hospital) and Rama Jasty, MD (Mercy Children’s Hospital)

Sickle Cell Project of Northwest Ohio

seeing Dr. Gladstone McDowell, medi-cal director at Integrated Pain Solutions, for treatment of her sickle cell pain. It was under his care that she had the pump implanted in 2011 for use with PRIALT, which was only approved for use in 2004. “How does the pump work?” you ask? Well, it is implanted in her abdomen, and it releases timed doses of PRIALT to relieve her symptoms. The medicine is released into the fluid surrounding her spinal cord, which acts to block certain channels on nerves that transmit pain signals. She also has access to a button to release more med-ication if she feels the onset of more severe pain. Mrs. Thomas said “It works very

well and sometimes I even forget about the pain button period.” And considering that PRIALT has no addictive qualities, there is no chance of the physical dependence that you find with opioids. Many sickle cell patients face unfair labeling as “drug seekers” or “addicts” due to their need for these drugs to alleviate their pain. The na-ture of PRIALT could change the face of sickle cell pain treatment in the future for many patients.

To learn more about Mrs. Thomas story, PRIALT, and Dr. Gladstone Mc-Dowell, please visit our Facebook page by searching “Sickle Cell Project of Northwest Ohio”.

Toledo Native One Of The First With Non-Narcotic Pain Pump To Treat Sickle Cell Pain


September 6STEPPING INTO SICKLE CELL AWARENESS WALK - HEALTH AND RESOURCE FAIR

9 a.m.-NoonEast Technical High School 2439 East 55th StreetCleveland, OH 44104

Audience: Open to the public Cost: $25 with walk t-shirt/$10 without walk t-shirtRegistration Deadline: August 24, 2014Description: A 3k walk to raise awareness and visibility of sickle cell disease and how it affects an individual and their families. Event will include a health and resource fair.Organizers: Kincaid’s Kindred Spirits, Inc.; Buckeye Community Health; University Hospitals; CareSourceContact: Adrienne Kincaid, (216) 347-1931

September 66TH ANNUAL 5K RUN.WALK.JOG. FOR SICKLE CELL DISEASE: “I Gave My SOLE for Sickle Cell Disease”

9:00 a.m. (Registration)11:00 a.m. (Walk Begins)Art Van Atta Park3180 Benchwood RoadDayton, OH 45414

Audience: Individuals/families affected by sickle cell disease, sickle cell trait and the general publicCost: $15 per person donation for t-shirt and goodie bag/$10 per person donation for teams of five (or more) for t-shirt and goodie bag. Event is FREE for anyone who would just like to run/walk/jog for sickle cell awareness.Registration Deadline: Early registration at [email protected] is suggested. You may also register the day of the event.Description: Annual run/walk/jog to raise awareness of sickle cell disease. Event will include health, social service and retail vendors.

The West Central Ohio Comprehensive Sickle Cell Center (WCOCSCC) will be on-site to provide information related to sickle cell disorders and regional program services.Organizers: Dayton/Springfield Sickle Cell Affected Families Association (D/SSCAFA), Inc. and WCOCSCC (co-sponsors)Contact: Eva Winton-D/SSCAFA, (937) 626-3840

September 25S.C.R.E.A.M. FOR SICKLE CELL MEETING

7-8 p.m.Manna From On High Ministries Location of event: Fellowship Hall2128 Leonard AvenueColumbus, OH 43219

Audience: Open to the general public and individuals/families affected by sickle cell diseaseCost: FREEDescription: Come SCREAM for Sickle Cell! A group meeting for individuals affected by sickle cell disease and their families/spouses/caregivers. There will be an open discussion on how people with sickle cell disease are living a productive a life and what they are doing to take care of themselves. Organizer: S.C.R.E.A.M. (Sickle Cell, Reaching, Empowering, and Motivating), Inc.Contact: JoAnna Floyd, (614) 359-8617

September 2610TH ANNUAL RED AND WHITE CELL-ABRATION

7-10 p.m. (with reception to follow)Normandy Party Center30310 Palisade Parkway

Wickliffe, OH 44092

Audience: Open to the public and individuals affected by sickle cell disease.Cost: $50Registration Deadline: September 22, 2014Description: Annual semi-formal fundraiser event for Kincaid’s Kindred Spirits sickle cell support group to raise awareness and recognize individuals living with sickle cell disease.Organizer: Kincaid’s Kindred Spirits, Inc.Contact: Adrienne Kincaid, (216) 347-1931

September 27ALPHA KAPPA ALPHA (AKA) SORORITY, INC. PRESENTS “SICKLE CELL NIGHT IN BLACK & WHITE”

7 p.m.-MidnightSt. George Family Center3204 Ridgewood RoadAkron, OH 44333

Audience: Adults diagnosed with SCD and their family members as well as the support from the surrounding community and AKA membersCost: $40 (Ticket purchase deadline September 6, 2014). Contact Zenia Nash-Johnston for ticket purchase locations.Description: This is a black tie fundraiser event. Come celebrate with the ladies of Zeta Theta Omega in raising awareness and support of adults diagnosed with Sickle Cell Disease. The night will include: dinner and dancing, fellowship and a silent auction. Organizers: NEO Sickle Cell Day Clinic, Inc. and AKA Sorority, Inc.Contact: Zenia Nash-Johnston, (330)-615-6488

The Ohio Sickle Cell Affected Fami-lies Association (OSCAFA) is a statewide organization of consumer community-based groups whose members are af-fected by or concerned with sickle cell disease. OSCAFA is under the umbrella of the Ohio Sickle Cell and Health As-sociation (OSCHA). The Association’s purpose is to advocate and educate about the sickle cell condition from a consumer perspective . Currently there are four organized groups across the state of Ohio who work collectively to bring awareness to this chronic disorder. The four groups are as follows: N.E.O. (Akron) , S.C.R.E.A.M (Columbus), Kincaid’s Kindred Spirits (Cleveland) and Dayton Sickle Cell Affected Fam-ily Association (Dayton). This year the spotlight is on the President of N.E.O. (Northeast Ohio Sickle Cell Day Clinic) Zenia R. Nash Johnston MSN MBA RN, in a heartfelt self- profile. N.E.O. is a 3 year- old Akron based sickle cell sup-port group. Membership is comprised of individuals affected and persons who have an interest in the sickle cell phe-nomena. Let’s share in Zenia’s story----- “ I can’t remember the first time I be-came sick enough to be admitted into Children’s Hospital Medical Center of Akron, but my mom documented with

a photograph of me at age three in De-cember 1973. In and out of hospitals since then. I was not supposed to be living after the age of 14... I’m 43 and I am Blessed and Highly Favored. Being sick and having a incurable disease is not a walk in the park. I have asked my God on several occasions “Why me”? Every time I ask that ques-tion, Psalms 23 rings throughout my body. Sickle Cell is not who I am, it is a portion of my life in which I have had to make some adjustments and my Creator provides me with strength to endure .. I am a Survivor! I am also a mother of two, my daugh-ter is 22 and my son is 12. Did I mention I am Blessed? I truly adore them. My children are my heart and soul, they are my motivation. I am a registered nurse who has become an educator at Kent State University in the College of Nurs-ing. Did I mention I am Blessed? My goals continue to grow, I pray that my future aspirations of obtaining a doctor-ate in Public Health come to past. I have a passion to give back to the community of individuals diagnosed with Sickle Cell Disease. I am here on this earth for a rea-son and did I mention I am BLESSED!” For more information on the Ohio Sickle Cell Affected Family Association or ways in which you can start a local sup-port group call 614-228-0157.

Spotlight On A Sickle Cell Affected Family Group



Zenia R. Nash Johnston and children.



For patients living with sickle cell disease, blood transfusions are vital in maintaining good health and, many times, can mean the difference between life and death. Blood transfusions are used to treat life-threatening compli-cations caused by sickle cell disease, to treat or prevent strokes, and to pre-pare patients for surgery. The need for blood transfusions may begin as early as six months of age. At the Sickle Cell Anemia Center at University Hos-pitals Rainbow Babies & Children’s Hospital in Cleveland, Ohio, we have approximately twenty children who receive chronic monthly transfusions. These children require anywhere from one to six units of blood every month. At the University Hospitals Seidman Cancer Center, about 15 adult patients with sickle cell disease receive chronic blood transfusions. Many more pa-tients will require blood transfusions during hospital stays when they are acutely ill. As a result, we need HUN-DREDS of units of blood for our sickle cell patients every year, and this is just at University Hospitals! Most patients with sickle cell disease are African-American and have rare blood type antigens found only in the African-American population. The best match for an African-American child with

sickle cell disease usually comes from an African-American blood donor. While African Americans comprise nearly 13% of the United States popula-tion, they represent less than 1 percent of blood donors. It’s important that blood donors reflect the ethnic diver-sity of the patients who receive their blood. Since children with sickle cell disease often need many blood trans-fusions, it is best for them to receive blood that very closely matches their own. Patients with sickle cell disease — primarily in the African-American community — are less likely to have complications from blood donated by African Americans. We encourage ALL eligible donors to give blood because there are many patients who need life-saving blood, but we would especially like to increase the number of minor-ity donors. Keep in mind that even if you have sickle cell trait, you are eli-gible to donate blood (your blood will not be used for patients with sickle cell disease but can be life-saving for other patients needing blood transfusions). How can you help? DONATE BLOOD! Check out the American Red Cross website to locate a blood drive near you. We urge you to become a blood donor – be a life-saver to your com-munity.

The Importance of Donating Blood


UsingPerson First

Language

Put the person first inword and thought.Emphasize the person rather than the disability. (For example, say, “person with a disability,” rather than “disabled person.”)Remember, most people with a disability want to be thought of as ordinary people.

Be accurate andnon-judgmental.If you’re unsure about how to describe a disability, ask someone who knows. (For example, ask the person with the disability).

Emphasize abilities.(For example, say, “uses a wheelchair” instead of “is confined to a wheelchair.”)

Remember:language shapes

attitude! www.ddc.ohio.gov

Examples ofPerson First

LanguageUse...congenitaldisability

uses a wheelchair

has adisability

deaf, hardof hearing

DownSyndrome

person of small/short stature

mentalillness, orthe specificdiagnosis

person with epilepsy

Instead of...birth defect

wheelchairbound

handicappedor disabled

hearingimpaired

Mongol orMongoloid

dwarf ormidget

crazy, maniac or lunatic

epileptic

Nothing makes us happier than helping a child who has a disease like

sickle cell manage his condition. Our research programs help us to do this

for hundreds of children around Cincinnati and thousands around the world

each year.

Sickle cell disease affects 100,000 people in the United States, and nearly

half of those suffering are children. As a national leader in caring for children

with sickle cell disease, thalassemia and other hemoglobin disorders,

researchers in the Hematology and Gene Therapy Program at Cincinnati

Children’s are on the brink of a scientific discovery that may one day end

the symptoms-and suffering-caused by sickle cell disease.

Our quest to find better treatments for sickle cell and blood diseases is a

costly one. And as a not-for-profit hospital and research center, we need

your support. Visit our web site and see how you can help us change

the outcome.

Dumeral Brown benefits f rom our comprehensive support and specialized ex pertise in the research and t reatment of sickle cell .

www.cincinnatichildrens.org/support

You can see the results of our sickle cell

research in leading medical journals.

And in Dumeral’s smile.


Dominique Friend is an author and advocate for sickle cell disease. Affected by this chronic illness since birth, Friend finds ways in which to channel her pain through being a champion for the cause, In her book “Sickle” she give an emotion-ally stirring testimony and a frank description of living with a disease associated with bouts of disabling pain and a host of other symptoms. Dominique describes other psycho-social issues relating to chronic ill-nesses and emphasizes the impor-tance of developing active coping

mechanisms. “Sickle” is an inspir-ing literary portrait; Dominique paints a personal an occasionally a very intimate picture of a continu-ing struggle of survival and of growth beyond all odds. This book is a must-read for individuals, fami-lies, and other caregivers dealing with life- altering illness. As you read, you will learn many lessons as well as be reminded of truths that will serve you well. This book will help you find the strength and cour-age from within to help you through every aspect of your journey ahead.


Run.Walk.Jog.for

Ohio Sickle Cell and Health AssociationPresents

SAVE THE DATESATURDAY, SEPTEMBER 6, 2014

Wolfe Park Shelter House

Columbus, OhioBegins at 8 a.m.

General Registration Deadline September 1Team Registration Deadline August 17

To Register or for more information call 614.228.0157 or online at http://www.ohiosicklecell.org

5k Run, 5 Mile Walk

Run.Walk.Jog.for

Ohio Sickle Cell and Health AssociationPresents

SAVE THE DATESATURDAY, SEPTEMBER 6, 2014

Wolfe Park Shelter House

Columbus, OhioBegins at 8 a.m.

General Registration Deadline September 1Team Registration Deadline August 17

To Register or for more information call 614.228.0157 or online at http://www.ohiosicklecell.org

5k Run, 5 Mile Walk

Dominique Friend – Author/Advocate

“Sickle” a Personal Story of Pain, Purpose, and Perseverance


SICKLE CELL AND HEALTH AWARENESS EVENT LISTINGSSeptember 1-30UNDERSTANDING SICKLE CELL DISEASE - NATIONAL SICKLE CELL DISEASE AWARENESS MONTH

24 hours per day/7 days a weekNationwide Children’s Location of event: Centennial Wall Main Corridor-Education Building555 South 18th StreetColumbus, OH 43205

Audience: Open to the general publicCost: FREEDescription: Prominent wall

display to promote education and awareness of sickle cell disease during the entire month of September – National Sickle Cell Disease Awareness month.Organizer: Comprehensive Sickle Cell Disease and Thalassemia ProgramContact: Tanica Jeffries, (614) 722-5948

September 19GIVE LIFE CHALLENGE: BLOOD AND BONE MARROW REGISTRY DRIVE

Noon-5:00 p.m.

Nationwide Children’s Location of event: Conference Room 025A-Education Building555 South 18th StreetColumbus, OH 43205

Audience: Open to the general publicCost: FREEDescription: Registry drive to educate the public on the need for blood and bone marrow donations to help cure chronic illnesses such as sickle cell disease. Organizers: National Marrow Donor Program (NMDP), Central Ohio American Red Cross and

Comprehensive Sickle Cell Disease and Thalassemia Program (CSCDTP)Contacts: Tanica Jeffries-CSCDTP, (614) 722-5948 or Marshall Brown-NMDP, (614) 309-5129

September 27FAMILY EDUCATION AND PEER MENTOR DAY!

During zoo hours 1-3:30 p.m. (Program)Columbus Zoo and AquariumLocation of event: Activity Pavilion9990 Riverside DrivePowell, OH 43065

Audience: School-aged children with sickle cell disease (and their families) who receive services at Nationwide Children’s/Comprehensive Sickle Cell Disease and Thalassemia Program.Cost: FREERegistration Deadline: September 8, 2014Description: At this event, school-aged children with sickle cell disease and their families will learn by using small animals, valuable information about the genetics of sickle cell disease and other red blood cell disorders

during a presentation by the program’s Medical Physician and an animal demonstration by zoo staff. Families will also have the opportunity to meet older adolescents and young adults with sickle cell disease that participate in the Peer Mentor Program and who will share their journey of Living with Sickle Cell Disease.Organizer: Comprehensive Sickle Cell Disease and Thalassemia ProgramContact: Tanica Jeffries, (614) 722-5948


Sickle cell disease (SCD), also called sickle cell anemia, is a blood disorder that affects a part of the red blood cell called hemoglobin. Hemoglobin carries oxygen to all parts of the body. People with SCD have red blood cells that rap-idly lose their oxygen, become hard and clog small blood vessels. This causes se-vere pain and organ damage.Hydroxy-urea (HU) can decrease this pain and other complications, as well as, hospital-izations, and healthcare costs. In clinical practice, however, 20% of caregivers do not accept HU when it is offered. Our Comprehensive Sickle Cell Disease Pro-gram at Nationwide Children’s Hospital (NCH) believed that families with chil-dren who are taking HU may have expe-riences that can assist other families who are deciding on whether or not to give their child HU. Therefore; we decided to host a physician-family panel pre-sentation and to explore the audience’s perspective on this medication, particu-larly after hearing the stories of others. The presentation occurred during

the 2013 SCD Holiday Party at NCH. Children with SCD and their families were invited to the event. Five fami-lies with a child on HU were invited to participate on the panel. A pediat-ric hematologist gave a brief presenta-tion on the indications, benefits, dosing, and side effects of HU. Families on the panel were then invited to speak open-ly about their child’s SCD, their deci-

Nationwide Children’s 700 Children’s DriveColumbus, OH 43205(614) 722-5948http://www.nationwidechildrens.org/sickle-cell-and-thalassemia-program

Region IV counties:Athens, Belmont, Coshocton, Delaware, Fairfield, Fayette, Franklin, Gallia, Guernsey, Harrison, Hocking, Jackson, Jefferson, Knox, Lawrence, Licking, Madison, Marion, Meigs, Monroe, Morgan, Morrow, Muskingum, Noble, Perry, Pickaway, Pike, Ross, Scioto, Union, Vin-ton, Washington, Wyandot

Standard services available:• Newborn screening coordination and follow-up services• Hemoglobinopathy counseling• Hemoglobinopathy education, outreach, and aware-ness activities• Sickle Cell Sabbath/Sickle Cell Month activities

Expanded services and programs:• School/daycare intervention program

• Patient/family disease education• Blood/bone marrow donor education • Peer Mentor Program for Adolescents and Young Adults• Nursing education • Transition to adult care

Non-grant supported services and programs (pro-vided through the Hematology/Oncology/BMT Di-vision at Nationwide Children’s):• Infusion services • Confirmatory testing for abnormal newborn screening hemoglobin results• Comprehensive medical management and follow-up for hemoglobin disease• Genetic counseling and extended family testing • Case management• Dental evaluations • Psychological testing and evaluations• Apheresis Program • Clinical research trials• Student training

Project Director: Tanica JeffriesMedical Director (Interim): Sarah O’Brien MD, PhD

Comprehensive Sickle Cell Disease and Thalassemia Program

SICKLE CELL PROJECT PROFILE: REGION IV-COLUMBUS

Hydroxyurea Therapy for Pediatric Patients with Sickle Cell Disease: Using a Physician and

Family Panel to Inform Patients and Caregivers

sion to choose HU, and their experience with HU. The audience was able to ask questions at the end of the presentation. Upon surveying the audience we found that most respondents reported they learned something new about HU

and that they would ask their SCD medi-cal providers more about the benefits of this medication. Most respondents also reported that the panel presentation was very helpful in allowing them to gain a better understanding of this drug.


SICKLE CELL PROJECT PROFILE: REGION V-CLEVELAND

Every Wednesday SICKLE CELL EDUCATION AND TESTING

8-11:30 a.m.John Glenn Smith Health CenterLocation of event: Immunization Clinic (1st Floor)11100 St. Clair AvenueCleveland, OH 44108

1-3:30 p.m. (except the 3rd and 5th Wednesday)Miles-Broadway Health CenterLocation of event: Immunization Clinic (1st Floor)9127 Miles RoadCleveland, OH 44104

Audience: Families and individuals at-risk for sickle cell disease, sickle cell

trait and other hemoglobin variants.Cost: FREEDescription: Sickle cell and hemoglobin variant education and sickle cell testing provided by the American Sickle Cell Anemia Association (ASCAA). Appointments are preferred. Organizers: ASCAA and City of Cleveland Health DepartmentContact: Leslie Carter-ASCAA, (216) 229-8600, Ext. 227

Every ThursdaySICKLE CELL EDUCATION AND TESTING

1-4:30 p.m.Thomas F. McCafferty Health CenterLocation of event: Reproductive Clinic

4242 Lorain AvenueCleveland. OH 44113

Audience: Families and individuals at-risk for sickle cell disease, sickle cell trait and other hemoglobin variants.Cost: FREEDescription: Sickle cell and hemoglobin variant education and sickle cell testing provided by the ASCAA. Organizers: ASCAA and City of Cleveland Health DepartmentContact: Gil Pena-ASCAA, (216) 229-8600, Ext. 231

September 13S.O.S. STRIKING OUT SICKLE CELL BOWL-A-THON2:30-5:30 p.m.Wickliffe Lanes30315 Euclid Avenue

Cleveland, OH 44092

Audience: Open to the publicCost: $10 per bowler (shoes and 3 hours of bowling included)Description: Benefit event for the public and patients/families in the Region V area affected by sickle cell disease. Contact: Leslie Carter, (216) 229-8600, Ext. 227

September 16SICKLE CELL EDUCATIONAL PRESENTATION

1-3 p.m.Hispanic Urban Minority Alcoholism and Drug Abuse Outreach Program (UMADAOP)2202 Prame AvenueCleveland, OH 44109

Audience: Summer camp program for youth ages 15-20Cost: FREEDescription: The ASCAA will be on-site to provide sickle cell testing and an oral presentation on sickle cell and hemoglobin variants.Organizer: UMADAOPContact: Gil Pena-ASCAA, (216) 229-8600, Ext. 231

September 27COMMUNITY HEALTH FAIR

8-11 a.m.La Sagrada Familia Hispanic Church7719 Detroit AvenueCleveland, OH 44102Audience: Open to the public; focused on families in the community.Cost: FREEDescription: The ASCAA will be on-site to provide sickle

cell and hemoglobin variant education and sickle cell testing.Organizers: ASCAA and La Sagrada Familia Hispanic ChurchContact: Gil Pena-ASCAA, (216) 229-8600, Ext. 231

September 27TAKE CHARGE OF YOUR HEALTH DAY: BRING SOMEONE YOU LOVE TO THE DOCTOR

11:00 a.m.-4:00 p.m.Stephanie Tubbs Jones Health Center13944 Euclid AvenueEast Cleveland, OH 44112

Contact: Jerry Sims, (216) 767-4114


10900 Carnegie AvenueSuite DD1-201Cleveland, OH 44106(216) 229-8600http://www.ascaa.org

Region V counties:Cuyahoga, Geauga, Lake, Lorain, Medina

Standard services available:• Newborn screening follow-up and diagnostic testing• Hemoglobinopathy counseling and education (additional on-site counseling locations at the Cleveland Clinic, MetroHealth Hospital, McCafferty Health Center, J. Glenn Health Center, Miles/Broadway Health Center, Lorain City Health Center, Lake County Health Department and Medina County Health Department)• Resource center for hemoglobinopathy education materials• Sickle Cell Sabbath/Sickle Cell Month (September) activities

Expanded services and programs:• Hispanic community direct services and outreach

• Global/international education and referral initiative• School/home intervention program• Supportive services/crisis intervention/community referrals• Collaborative relationships with Region V hospitals • CBS Cares public service announcement for sickle cell disease (local and national airing)• Website (in over 70 pull down languages)• Facebook and Twitter

Non-grant supported services and programs (provided through the American Sickle Cell Anemia Association):• On-site diagnostic hemoglobin testing (in association with the Cleveland Clinic)• Summer residential camp for youth with sickle cell disease (one-week)• Choosing Health Awareness, Mobility, Personal Power and Success (C.H.A.M.P.P.S.) Youth Transition Program• Cleveland Clinic resident physician rotation program

Project Director: Ira Bragg-GrantMedical Advisor: Lisa Hackney, MD (Cleveland Clinic)

American Sickle Cell Anemia AssociationWhile the vast majority of Sickle Cell

patients experience excruciating episodes with this catastrophic disease, a small per-centage has managed to beat the odds. Dr. Duncan Shepherd who has Sickle C Disease, (a disease variant of sickle cell anemia) ex-periences the same complications as a sickle cell anemia patient. Duncan discovered his illness after a frightening “crisis” that sent him to the emergency room. At the age of 13, Duncan became very active in his physi-cal fitness. He loved to go swimming but as a result he would experience joint pain. It didn’t take long for him to discover that exercising reduced some painful episodes after swimming.

Duncan had a younger brother who also suffered from Sickle Cell Anemia. Un-fortunately, after many complications, he lost his battle with this disease at a young age. Though this loss was tough for Dun-can, it inspired him to fight despite being told that he would not live to see adulthood.

At 52, Duncan vows not to let Sickle Cell Disease defeat him. He is a living ex-ample that you can live a prosperous and healthy life. He currently works as a Physi-cal Therapist where he helps many patients, even those who have Sickle Cell Disease. He, also, has worked as a Personal Trainer and he serves on the American Sickle Cell Anemia Association Board of Trustees.

Overtime, Duncan would like patients to strongly embrace self-awareness. “The

lack of understanding could really make your life harder” he explains, which is why he strongly recommends pursuing addi-tional resources to support their quality and quantity of life. Duncan attributes manage-ment to his daily regimen of exercise, folic acid, hydration, and medication as needed. “If exercising helped me it could maybe help somebody else.” Duncan said.

Another Side of Sickle Cell Disease…Delimar Virella is a young mother from

Puerto Rico whose life changed forever af-ter discovering her daughter was born with Sickle Beta Zero Thalassemia at 2 month of age. “I was confused and shocked because I didn’t know anything about this disease,” Delimar explained. While in Puerto Rico, Delimar was having difficulties commu-nicating with doctors about this disease. Two months after her diagnosis, Delimar’s mother convinced her to move to the Cleve-land, OH to seek better care for her daugh-ter. Ultimately Delimar was able to connect with American Sickle Cell Anemia Associa-tion, where she was able to learn more about Sickle Cell Disease and seek help from ex-perienced doctors. In her daughter’s 5 years of life, Delimar was able to make the best of it, and had her involved in many activities including dance. Everything seemed to be well until her daughter lost her battle to this disease unexpectedly in 2009.

Presently, Delimar spends most of her time taking care of her 2 year old son who


Living with Sickle Cell from Two Perspective’s

was diagnosed with Beta Thalassemia Trait. Through it all, Delimar still finds peace in the moments she was able to share with her daughter and knows that her guardian an-

gel is watching over her family. Delimar still remains in close connection with the agency, and continues to share her experience with others.


SICKLE CELL AND HEALTH AWARENESS EVENT LISTINGSSeptember 2011TH ANNUAL MYCHAL CLAYTON SICKLE CELL AWARENESS WALK

8 a.m. (Registration)9 a.m. (Opening Ceremony)10 a.m. (Walk and Motorcycle Ride Begins)Lock 3 Park (Downtown Akron)

200 South Main StreetAkron, OH 44308

Audience: The event is targeted to everyone!Cost: $10 early registration/$15 late registrationRegistration Deadline: Deadline for early

registration is August 30, 2014. Early registration guarantees the participant a walk t-shirt. Late registration (after August 30, 2014) does not guarantee the participant a walk t-shirt.Description: Walk along the Lock 3 trail to raise

awareness about sickle cell disease with a motorcycle ride. Food will be available on a first come, first serve basis. There will be vendors, a DJ and performances from local artists. The Ohio Region VI Sickle Cell Program will on on-site to distribute information about sickle cell disorders and

regional program services.Organizer: Ohio Region VI Sickle Cell Program at Akron Children’s HospitalContact: LaTonya Lewis-Ohio Region VI Sickle Cell Program, (330) 543-3521 or Toka Clayton, (330) 283-5066Note: The times, dates and locations of the 2014

Sickle Cell and Health Awareness Event Listings are subject to change. The Praise Reporter does not assume responsibility for the accuracy or cancellation of any event. We suggest that you verify all event listings prior to attendance.


SICKLE CELL PROJECT PROFILE: REGION VI-AKRON

Akron Children’s HospitalOne Perkins SquareAkron, OH 44306(330) 543-3521 or (800) 262-0333, Ext. 8730https://www.akronchildrens.org/cms/sickle_cell_program/index.html

Region VI counties:Ashland, Ashtabula, Carroll, Columbiana, Crawford, Holmes, Portage, Mahoning, Richland, Stark, Summit, Trumbull, Tuscarawas, Wayne

Standard services available:• Newborn screening coordination and follow-up• Patient and family advocacy• Hemoglobinopathy counseling and patient/family education• Resource center for audiovisual and print materials regarding hemoglobinopathies• Communication with physicians on newborn screening and follow-up standards and practices• Hemoglobinopathy education, outreach and awareness activities for health care professionals/providers, consumers and the public• Sickle Cell Sabbath/Sickle Cell Month (September) activities

Expanded services and programs:• School intervention services• Quarterly newsletter• Patient and family disease education

• Adolescent transition program• Holiday events for patients and their families• Monthly parent/patient support group meetings• Support services, including personal, career/vocational counseling and group activities• Psychosocial assessments and interventions• Annual sickle cell awareness walk • Annual weekend summer camp, Camp Ed Bear, for patients age 6-16 and Counselor in Training (CIT) Program for patients age 16-21

Non-grant supported services and programs (provided through the Showers Family Center for Childhood Cancer and Blood Disorders):• Specialized medical care for pediatric and adolescent patients affected with sickle cell disease• Monthly comprehensive clinics for sickle cell disease patients (with incorporated genetic, psychosocial counseling, nutrition, physical therapy and radiology services)• Confirmatory testing for abnormal newborn screening hemoglobin results • Individual hematological consultation and diagnostic testing• Computers available for patients and families to perform sickle cell related information searches• Apheresis Program (Red Blood Cell Exchange)

Project Director: LaTonya Lewis

Medical Director: Prasad Bodas, MD

Ohio Region VI Sickle Cell Program

Courtney and Cayla Sales

Although she’s just a year older than her sister Courtney, Cayla Sales has always been very nurturing and motherly to her baby sister. It could be because Cayla has witnessed first-hand the painful episodes and fre-quent hospitalizations that Courtney has endured due to sickle cell disease. Now 5 years old, Courtney no longer suffers any serious complications from her disease, thanks to a successful bone marrow transplant in September 2011 at Akron Children’s Hospital. Big sister Cayla, who does not have the inherited

disorder, was the bone marrow donor. The girls’ parents, Kimberly and Charles, called Cayla “Super Cayla” for the role she has played in her sister’s recovery. Akron Children’s is one of just a hand-ful of hospitals nationwide that offers the procedure as a potential cure for sickle cell disease. According to Prasad Bodas, MD, Courtney’s hematologist, there’s a 25 per-cent chance that a sibling will be a match. Because red sickle cells are hard, sticky and sickle shaped, they clog the flow of blood and oxygen in the body and cause severe pain, damage to the organs and central nervous system, blindness, infections and stroke. Since

Sickle Cell Patient Finds Sister is a Perfect Match as a Bone Marrow Donor

being infused with Cayla’s marrow, Courtney is able to produce healthy red blood cells without sickle hemoglobin. Now a kindergartener at Voris El-ementary School in Akron, she is learn-ing to read and loves to play Barbies with Cayla. She also loves music and to dance. “Courtney is now able to be much more active without tiring eas-ily,” said Kimberly. “She’s also better able to tolerate changes in weather.” Prior to the transplant, the Sales family relocated to Georgia in the hopes that the milder temperatures would help lessen Courtney’s symptoms. When her condi-tion didn’t improve and doctors in Atlan-

ta suggested a bone marrow transplant, the family returned to Akron, where they were comfortable with the Akron Children’s staff and had family support. Even before Courtney started having problems, the staff at Children’s had en-couraged the Sales to have Cayla tested to determine if she was a match, so they would have the option of a bone mar-row transplant if Courtney needed it. Now just a little over a year since the procedure, Courtney has settled into a normal life of school and playtime. “She no longer has to make frequent visits to see the doctor. She’s just like any other 5-year-old little girl,” said Kimberly.

Cayla Sales and her sister Courtney



WALK/RUN/GOLF EVENTS SEPTEMBER 2014

September 6 1ST ANNUAL NATIONAL SICKLE CELL WALK WITH THE STARS n Location: Lake Montebello (Baltimore), MD n For more information: http://www.sicklecellnationalwalk.com/

September 6 9TH ANNUAL BIKE/WALK FOR SICKLE CELL n Location: Seward Park, Seattle, WA n For more information: http://mssctf.org/events-thewalk.html

September 6 3RD ANNUAL SICKLE CELL STROLL n Location: Hope Plaza (on the campus of Washington University School of Medicine), St. Louis, MOn For more information: https://www.face-book.com/events/718462111545529/?ref=22

September 6 “STROLLING FOR SICKLE CELL” 5K FUN WALK n Location: KCK Community College, Kansas City, KSn For more information: http://new.sick-lecellkck.org/index.php?option=com_content&view=article&id=13&Itemid=15

September 7 4TH ANNUAL SICKLE CELL WALK/RUN n Location: Louisville, KYn For more information: http://www.louisvilleky.gov/events/Calendar/4th+Annual+Sickle+Cell+Walk.htm?eventmode=latest&range=month

September 7 QUEENS SICKLE CELL ADVOCACY NETWORK (QSCAN), INC. ANNUAL 5K/RUN WALK-A-THON n Location: Queens Village, NYn For more information: http://www.qscan.org/qscan-annual-walk-a-thon/

September 13 6TH ANNUAL HINA PATEL FOUNDATION SICKLE CELL 5K/10K RUN/WALK n Location: Riverwalk Park, Bakersfield, CAn For more information: http://www.shop.hinapatelfoundation.com/main.sc

September 13 SICKLE CELL WALK 2014 n Location: Columbia, SCn For more information: http://james-rclark.publishpath.com/contact-us

September 13 SICKLE CELL ANNUAL WALKATHON n Location: Jacksonville, FLn For more information: http://jack-sonville.eventful.com/events/sickle-cell-annual-walkathon-/E0-001-071438854-1

September 13 12TH ANNUAL GOLF OUTING n Location: Frankfort, Illn For more information: http://www.sicklecelldisease-illinois.org/#!events/c17s6

September 13 2014 5K & SICKLE CELL FAMILY DAY n Location: Bachman Lake-Lakefield Park, Dallas, TXn For more information: http://theotisfoundation.org/news.html

September 13 3RD ANNUAL JAMES FAUCETT III SICKLE CELL AWARENESS 5K & 1 MILE WALK/RUN n Location: Brandywine Park, Wilmington, DEn For more information: http://www.races2run.com/events/sickle-cell-5k/

September 14 31ST ANNUAL 5K RUN/WALK FOR SICKLE CELL n Location: Jake Gaither Recreation Center and Golf Course, Tallahassee, FL n For more information: http://sick-lecellfoundation.org/5k-runwalk/

September 20 8TH ANNUAL STOMP OUT SICKLE CELL 5K WALK n Location: National Mall, Washington, DC n For more informtion: http://www.soswalk.org

September 20 4TH ANNUAL SICKLE CELL AWARENESS 2K WALK n Location: Gainesville, FL n For more information: Angela Howard, 352-317-0984

September 20 “LET’S WALK ABOUT IT 2014” ANNUAL WALK FOR SICKLE CELL n Location: Weequahic Park (Elizabeth Avenue), Newark, NJ n For more information: https://www.facebook.com/events/341808799227115

September 22 WALK FOR SICKLE CELL EDUCATION AND AWARENESS n Location: Central Park (Mineral Springs Building), New York, NY n For more information: http://newy-ork.onebrick.org/event/?eventid=11730

September 27 17TH WALTER E. BRANDON SICKLE CELL 5K WALK/RUN n Location: Fairmount Park, Philadelphia, PA n For more information: http://sickl-ecelldisorder.com/index.php/events.html

OCTOBER 2014

October 11EAST ALABAMA SICKLE CELL WALK n Location: Anniston, AL n For more information: http://www.sickl-ecellbham.org

MEETING/CONFERENCE EVENTS SEPTEMBER 2014

September 11-125TH MEETING OF THE DISCRETIONARY ADVISORY COMMITTEE ON HERITABLE DISORDERS IN NEWBORNS AND CHILDRENn Location: Rockville, MDn For more information: http://www.hrsa.gov/advisorycommittees/mchbadvisory/heri-tabledisorders/meetings/index.html

September 153RD ANNUAL SICKLE CELL DISEASE THERAPEUTICS CONFERENCEn Location: The Four Seasons Hotel-Cosmo-politan Suite, New York, NYn For more information: http://scdconfer-ence.com

September 15-168TH ANNUAL SICKLE CELL IN FOCUS MEETING n Location: The Natcher Conference Center (NIH Campus), Bethesda, MD

n For more informa-tion: http://www.ststn.co.uk

September 17-18NHLBI ANNUAL SICKLE CELL DISEASE CLINICAL RESEARCH MEETINGS n Location: The Natcher Conference Center (NIH Campus), Bethesda, MDn For more information: Har-vey Luksenburg, MD at [email protected] or 301-435-0050

September 2715TH ANNUAL SICKLE CELL EDUCATION DAY n Location: Courtyard by Marriott, Decatur, GAn For more information: http://www.choa.org/SCED

OCTOBER 2014

October 1-4SICKLE CELL DISEASE ASSOCIATION OF AMERICA, INC.-42ND ANNUAL CONVENTION n Location: Hyatt Regency Baltimore Inner Harbor, Baltimore, MDn For more information: http://www.sicklecelldisease.org/in-dex.cfm?page=annual-convention

DECEMBER 2014

December 6-956TH AMERICAN SOCIETY OF HEMATOLOGY (ASH) ANNUAL MEETING AND EXPOSITIONn Location: Moscone Center, San Francisco, CAn For more information: http://www.hema-tology.org/Meetings/Annual-Meeting/

APRIL 2015

April 10-132015 ANNUAL SICKLE CELL DISEASE RESEARCH MEETINGn Location: Westin Diplomat, Miami, FLn For more information: http://fscdr.org/

Note: The times, dates and locations of 2014 Sickle Cell National Event Listings are subject to change. The Praise Reporter does not assume responsibility for the accuracy or cancel

SICKLE CELL NATIONAL EVENT LISTINGS


MEMBERSThe Ohio Sickle Cell Advisory Committee (OHSAC) was formed in 2009 to ‘Increase Awareness Of, Advocacy For and Advance-

ment in Services Concerning Sickle Cell Dis-ease in Ohio.’ OHSAC strives toward the goals of awareness and advocacy through the collab-oration of health education, faith-based com-munity, primary care, education, behavioral

health, and government fields. The Ohio Sickle Cell Advisory Committee is recruiting new

members to serve on the Committee. Members are being sought as representatives from agen-cies, organizations, programs, departments, as well as persons affected by sickle cell disease.

Application information can be obtained by calling

614-228-0157 or via email at [email protected].

.

What is a Medical Home?A medical home is a network of care that helps you manage your sickle cell disease

Adults with sickle cell disease have many different health care needs. Each doctor you see will provide a piece of the puzzle, but you may need some help seeing the “big picture.”

An on-going relationship with one doctor can help create a “home base” to make sure your care fits your needs, beliefs, and is within your comfort zone.

Use this checklist to either start a conversation with your current doctor or to find a new doctor.


Be Comprehensiveo Help you manage pain.o Talk to you about stress prevention and

tips to stay healthy.o Remain supportive and help you stick to

your treatment plan and medications (like hydroxyurea).

Your Medical Home Should:

Be Coordinatedo Communicate with the other specialists

you see, like your ophthalmologist (eye doctor), pulmonologist (lung doctor), or other healthcare providers.

o Help you find services you need like MRIs and blood transfusions.

o Support your financial needs and help you find ways to pay for your care.

Be Accessibleo Easy to travel to.o Return your phone calls when you

leave a message.o Accept your health insurance or

medical plan.o Have someone you can speak with in

an emergency, 24 hours a day, 7 days a week.

Be Attentiveo Spend enough time with you during

your appointment.o Llisten to you when you explain your

pain and other SCD symptoms.o Explain everything in a way that you

understand.

Be Familiaro Know who you are.o Recognize your health care needs

and understand your treatment plan.o Maintain up-to-date records.

Be Respectfulo Make you feel like you are a part of

the health care team.o Include you in decisions about your

treatment.o Respect your beliefs, religion, and

health care preferences.


COLUMBUS, OH — On Saturday, October 4 & Sunday, October 5, 2014, the Kingdom Image Awards will make its mark on the city of Columbus. The pur-pose of the Kingdom Image Awards is to recognize the work and musical contri-bution to artists contributes to their lo-cal community and churches within the Christian industry. The intent of the King-dom Image Awards is not a competition - - -but to only promote the awareness of the work and ministry which takes place on the local level. It is also intentional to eliminate any denominational barriers, myths, or traditions amongst churches and individuals. The birth of the King-dom Image Awards is a result of a con-versation which led to a dream the event planner had in 2013. The ultimate goal is to provide a platform for Christian art-ist and the overall Christian community alike and represent the Kingdom of God with pride and commitment to carry the mantle for unbelievers and believers alike to follow.

This year’s event promises to be a definite show stopper and a must attend event. On Saturday, October 4th, national comedian Jonathan Slocumb will host the awards event, to be held at the King Arts Complex (867 Mt. Vernon Avenue) beginning at 6:00 p.m. VIP red carpet and reception will take place at 4:00 p.m. The comedian will also provide a Kingdom night of comedy on Sunday, October 5th at New Covenant Believers’ Church (3400 Kohr Blvd.), beginning at 5:00 p.m. No need to decide which event you would like to attend, the nominal ticket price in-cludes both events. The ticket price is only $20.00 (for the entire weekend). Seating is limited and tickets are selling fast. Tickets can be purchased at New Covenant Be-lievers’ Church (3400 Kohr Blvd.). Tickets will be pre-sale only!

This year, the Kingdom Image Awards will honor a total of 11 categories. The categories include:

Best Female Vocalists, Best Male Vo-calists, Female Vocalist of the Year, Male Vocalist of the Year, Best Large Group/Choir, Large Choir of the Year, Instrumen-talist of the Year, Small Group of the Year, Best New Artist, Artist of the Year, and Song of the Year. All award recipients will be announced during the evening of the awards event on Saturday, October 4th. A small except and information of each

category finalists can be viewed in this publication and also online at www.king-domworksinc.org. Voting for all artists and categories will end on September 1st.

The Kingdom Image Awards will also recognize choir director extraordi-naire, Thommy Adams as this year’s

Legacy Award Recipient. Mr. Thommy Adams is most known for this work and contribution to the gospel industry for his direction, musical arrangements and song writer with T.E.T.R.E.C. (The End Time Revival Evangelistic Crusade) Choir. He has also served as musical director and

leader to many local churches in the city of Columbus. Mr. Thommy currently re-sides and providing ministry in Rivers-dale, California. Mr. Thommy Adams will be attending this year’s Kingdom Image Awards to receive this prestigious award.

The skeleton of the event is planned in similar fashion to that of the Stellar Awards™, but much better. This event is the opportunity to celebrate and support those who provide us anointed ministry on a consistent basis. This event is not only a Columbus, Ohio event – but will expand to other cities and artists who pro-vide ministry in their local communities.

We will be partnering with Columbus City Schools for our philanthropic event, November 18, 2014 to promote art and music education and pay our next genera-tion of artist forward. We encourage you to stay connected to the Kingdom Image Awards, through our various means of social media; Facebook – Kingdom Image Awards; Twitter @kiawards and our web-site, www.kingdomworksinc.org.

Category finalists for the 2014 Kingdom Image Awards include:

n Nia Allen (Female Vocalist of the Year): her music ministry is described as the sound of pure, passionate worship. She has completed her bachelor’s de-gree at Berklee and has travled as a back-ground vocalist to various national artists. She currently resides in Nashville, TN.

n Sylvia Benson (Best Female Vo-calist): is the co-pastor of Keys to the Kingdom Ministries in Columbus, Ohio. She has the gift of playing keyboard, per-cussion, and bass guitar, but her first love is ministry. She established a ministry called Charisma Women.

Gerri Brown (Female Vocalist of the Year & Song of the Year): has ministered on various national recording projects and has over 25 years in the gospel indus-try as a praise and worship leader.

n Lisa Brunson (Best Female Vo-calist): currently serves as the director of Music & Arts at the World Harvest Church under the leadership of Pastor Rod Parsley. She had original songs sung by the Brooklyn Tabernacle Choir.

n Joel Buckner (Male Vocalist of the Year): originally from Columbus, Ohio, Joel has had many musical stints across the world. He currently is the worship

Kingdom Image Awards to Recognize the Work and Musical Contribution Artists Contributes to their Local Community and Churches

See AWARDS, on page 24

Comedian Jonathan Slocumb to Host Columbus Kingdom Image Awards

Comedian Jonathan Slocumb


SEPT15

leader in Washington, D.C. at National Community Church.

n Timothy Carpenter (Instrumen-talist of the Year): has won critical ac-claim as a Musical Director for several theathres. Currently Timothy Carpenter serves as the Pastor of God’s Way Minis-tries International and as a member of the faculty of the Music Department of Deni-son University.

n Jackie Dade (Best Female Vocalist & Song of the Year): is a native of St. Louis and is an active praise and worship leader in Columbus, Ohio. She inspires and ig-nites a fire in the hearts of her audience by such powerful, unique and impelling display of God’s Word through song.

n Tanesha Holland Davis (Best New Artist): is an accomplished registered nurse and recently promoted to Director of Nursing. She is now coined as “The Singing Nurse”. She will also debut her CD Nurse’s Scrubline.

n Cedric Easton (Instrumentalist of the Year): resides in Columbus, Ohio and tours with national recording artist Chris-tian Howes while serving as the Fine Arts Director of New Covenant Believers’ Church. He also serves as a faculty mem-bers of the Jazz Academy.

Dr. Sharon Francis (Female Vocalist of the Year): serves the Minister of Music at the Living Faith Apostolic Church. She has written and arranged national and noteworthy songs recorded and released by T.E.T.R.E.C. as well as several projects with the P.A.W. national choir.

n Tana Glover (Best Female Vocalist & Best New Artist)

n Jerod Grant (Best Male Vocalist): currently serves as the worship leader for Hope City House of Prayer. He travels to many churches and recently completed his first live recording.

n Hamilton Hardin (Instrumen-talist of the Year & Artist of the Year): is a Columbus, Ohio native becoming

a emerging force in today’s music. As a multi instrumental list, producer, and composer Hamilton combines vast musi-cal influences in efforts to produce fresh and relevant sounds.

n Quan Howell (Male Vocalist of the Year & Artist of the Year)

n Nichole Humphrey (Female Vo-calist of the Year, Artist of the Year, & Song of the Year): Is the first lady of Mt. Zion Missionary Baptist Church and is apart of the ministerial staff and serves as the Minister of Music. She has recorded and released her first live CD entitled Lifesaver.

n Schuyler Johnson (Best New Art-ist & Song of the Year): has lent his back-ground vocals for many national artists and has released his first album entitled The Best is Yet to Come.

n Amante Lacey (Male Vocalist of the Year & Song of the Year): has written many songs for several national artists. He lives in Beavercreek, Ohio and travels frequently to lead worship.

n Robbie Lyles (Best Male Vocalist): he has produced a song for Keith Won-derboy Johnson and is a songwriter, sing-er, producer, and guitarist. He is currently working on an upcoming debut album with his new group Covenant.

n Ron Lyles (Male Vocalist of the Year): has been the lead singer with the Lyles Family and is the founding member of the male quartet group Men of God’s Heart. He is a musician, songwriter, pro-ducer, and composer.

n Areignia Ryles (Best Female Vo-calist)

n Eddie Sands (Best Male Vocalist): is originally from Cleveland, Ohio but now calls Columbus, Ohio home. Eddie was involved in the motion picture Black Nativity starring Angela Bassett, Forest Whitaker.

n LaMarr Scales (Male Vocalist of the Year): has previously been nominat-

ed for three stellar awards. He currently pastors Restored by the Word Ministries Church¸ birthed in the summer of 2010.

n Kevin Turner (Instrumentalist of the Year & Artist of the Year): is a trained guitarist but plays bass, arranges, and writes music. His solo project has gar-nered him a stellar award nomination. Currently Kevin tours and teaches music education and jazz studies at the Ohio State University.

n Shawn Wallace (Instrumentalist of the Year): is a talented performer, re-cording artist, composer, clinician, and educator skilled in jazz music and equally comfortable with classical, contemporary Christian and gospel music. Thunder is a Associate Professor of Jazz Studies at the Ohio State University and also serves as the creative director at Vineyard Colum-bus.

Camille Betton Williams (Female Vo-calist of the Year): was a top 20 finalists for season 2 of BET’s show Sunday Best. She has published her first multi-track offer-ing entitled The Arrival: First Destination, released under her publishing house, Song in a Strange Land Music.

Groups/Choirsn 4th Day (formerly known as

Agape) (Small Group of the Year & Best New Artist)

n African American Voices of OSU (Best Large Group/Choir)

n Anointed Voices of Higher Ground (Best Large Group/Choir)

n Willie Barthel & I.P. (Large Choir of the Year & Artist of the Year)

n T.J. Dooley & Testimony (Small Group of the Year)

Higher Ground Agape (Best Large Group/Choir)

n Living Faith Mass Choir (Large Choir of the Year)

n Men of God’s Heart (Small Group of the Year & Song of the Year)

n New Salem Mass Choir (Large Choir of the Year & Song of the Year)

n OSU Gospel Choir (Best Large

Group)n The Potters House (Best Large

Group/Choir, Large Choir of the Year, & Song of the Year)

n Isaac Simpson & D.P. (Small Group of the Year)

n Triedstone Baptist Church (Large Choir of the Year)

About Kingdom WorksKingdom Works, Inc. is a non-profit

organization who presents empower-ment, change, and Wholistic lifestyles for the Central Ohio community. Kingdom Works helps to ignite a group of people in efforts to collaborate with other phil-anthropic individuals to cultivate change. These efforts are demonstrated through hosting events and providing services that promote change and unity to engage a united community. We are invested to create change.

Kingdom works has deliberate intent to change what is considered “the norm”. The established programming and out-reach service eliminates division and socioeconomic acceptance that has been replaced as the new normal.

Kingdom Works creates an environ-ment to change what is current and wel-come a better tomorrow. Services and resources offered by Kingdom Works are for all; the organization adapts and changes the better for all demographics – age, gender, social, and economic status.

Established in 2010, Kingdom Works was created as a changing agent and men-toring organization that promotes art and educational development to improve Ho-listic individual improvement. We enjoy seeing change and improvement happen not just temporarily but for a LIFETIME.

Kingdom Works envisions a com-munity where individuals have power-ful and influential voices becoming ac-tive leaders who are passionate changing agents; impacting not only their personal sphere of influence but their civic, politi-cal, and cultural communities.

awards from page 23

Special Kindom image awardS

ONLINE EDITONn Read about the 2014 Kingdom Image Award finalistsn Listen to their music and up coming projects n Sign up FREE at www.praiserepoter.com

Sponsored By:

Of






[email protected]



Gospel Music & EntertainmentTOP 10 GOSPELAll I Need Is YouLecrae Anomaly

NuthinLecraeAnomaly

Every PraiseHezekiah WalkerAzusa: The Next Generation

6

7

8

9

10

Beautiful DayJamie GraceReady to Fly

Say YesMichelle Williams Featuring Beyonce And Kelly Rowland

I Can Only ImagineTamela MannBest Days

AmazingRicky Dillard & New GAmazing

FearLecraeAnomaly

No Greater LoveSmokie NorfulForever Yours

We Are VictoriousDonnie McClurkin Featuring Tye Tribbett

COLUMBUS, OH —The 30th An-nual Family Event the Columbus Gos-pelFest, begins at 12:30 at Franklin Park 1755 East Broad Street in Columbus Ohio. The Columbus GospelFest is a free all-day, family event that features local talent in the Gospel Arts along with a Wellness Expo & recreational ac-tivities. Highlights include

•Wellness Fair-Expo participants include: CareSource, Nationwide Chil-dren’s Hospital, Columbus Health De-partment, Epilepsy Foundation, UP-FAD, Big Brothers-Big Sister, Central Ohio Diabetes Association, Advance Se-nior Support Home, New Salem ACTs HIV/AIDS ministry, Autism Awareness and more!

•Chidren’s Edu-Fun Fest! Games,

Clowns, Face painting and education!

•GospelFest Artists include New Salem Baptist Church Choir, New Cov-

enant Believer’s Church Choir, Called Chosen Messengers of Christ, Epic Church Choir, Vessels of Christ, Pastor Niki Hampton, New Hope Commnity Choir, Lady Nikki Humphrey, Bishop Roger Hairston and the Voices of Deliv-erance, Marvin Miller Jr, Jelani Perform-ers, Living Faith Apostlic Church Choir & Nicole “Lady Xtreme” Carter and TJ Dooley & Testament!

•Special Guest: Grammy Award Winner & Gospel Music Legend - Twinkie Clark!

•Gospel Line Dance!

•Guest MC’s include Comedian Michelle Solomon & other Media Per-sonalites.

For additional information: 614-401-6178, email [email protected] or visit our website at www.columbusgospelfest.org.

Grammy Award Winner & Gospel Music Legend

Twinkie Clark Special Guest at 30th Annual Columbus GospelFest

Twinkie Clark


Highly anticipated motion picture to release on 1800 screens through Stoney Lake Entertainment

Movie based on New York Times bestselling “Left Behind” book series, co-authored by Jerry B. Jenkins and Tim La-Haye is based on the Bible and published in 32 different languages, with more than 65 million copies sold and one of the best-selling fiction series of all time

(LOS ANGELES, Calif.) March 28, 2014 – Among the most highly antici-pated films to be released in 2014, Stoney Lake Entertainment announces the full-length action-adventure motion picture LEFT BEHIND. The movie stars Acad-emy Award winner Nicolas Cage (NA-TIONAL TREASURE, CITY OF ANGELS, THE CROODS) as Rayford Steele, as well as Chad Michael Murray, Cassi Thomson, Nicky Whelan, Lea Thompson and Jor-din Sparks. The movie is directed by vet-eran filmmaker, Vic Armstrong (THOR, AMAZING SPIDER-MAN, WAR OF THE WORLDS), widely renowned for di-recting action sequences. LEFT BEHIND is produced and distributed by Stoney Lake Entertainment, with the national re-

lease slated for October 3, 2014.LEFT BEHIND follows Rayford

Steele (Nicolas Cage) who is piloting a commercial airliner just hours after the Rapture when millions of people around the globe simply vanish. Thirty thousand feet over the Atlantic, Rayford is faced with a damaged plane, terrified passen-gers, and a desperate desire to get back to his family. On the ground, his daughter, Chloe Steele (Cassi Thomson) is among those left behind, forced to navigate a world of madness as she searches for her lost mother and brother. Shot mostly in and around Baton Rouge, LA., LEFT BE-HIND was produced by Paul Lalonde and Michael Walker and co-written by Paul Lalonde and John Patus.

“We’re seeing a number of big, bib-lical movies on the calendar this year, particularly SON OF GOD, NOAH, and EXODUS. What makes LEFT BEHIND different is that it is a contemporary story that could actually happen at any mo-ment,” says Paul Lalonde, LEFT BEHIND producer and CEO of Stoney Lake Enter-tainment. “It’s also a historical account in a sense, because it’s based on a true

story, it just hasn’t happened yet. So it’s very important to us that the core story not be changed. We had offers from three of the major studios in Hollywood to dis-tribute this movie, but none would allow final control of the story to be left in our hands.”

“My greatest hope for this movie is that people will be entertained and thrilled by it, but also that they’ll go home and have conversations with their family, and ask ‘do you think this could happen, or couldn’t happen?’ and it’ll inspire dis-cussion and closeness,” says leading actor Nicolas Cage.

The movie is based on the New York Times bestselling book series of the same name, co-authored by Jerry B. Jenkins and Tim LaHaye. Based on the Bible and pub-lished in 32 different languages, the series has sold more than 65 million copies and is one of the best-selling fiction series of all time.

“I believe it does justice to the novel and will renew interest in the entire se-ries,” author Jerry Jenkins said. “It is the best movie I have ever seen on the rap-ture,” added Tim LaHaye.

Behind the scenes, LEFT BEHIND features an award-winning team includ-ing Oscar and BAFTA nominated Director of Photography, Jack N. Green (UNFOR-GIVEN), Oscar, BAFTA and EMMY nom-inated Production Designer, Stephen Alt-man (GOSFORD PARK, CHRONICLE), Editor Michael J. Duthie and Costume Designer Abby O’Sullivan. The music was composed by Jack Lenz (THE PAS-SION OF THE CHRIST).

Entertainment One has acquired the domestic home video rights. For the lat-est news and updates regarding LEFT BEHIND, please visit: www.leftbehind-movie.com.

About Stoney Lake EntertainmentStoneyLake-1920x1080Stoney Lake

Entertainment (SLE) is a film production company created in 2012 by CEO Paul Lalonde, co-founder of Cloud Ten Pic-tures. SLE is focused on producing big budget faith-themed films for a wider au-dience. LEFT BEHIND will be SLE’s first feature film.

Left Behind, Upcoming Apocalyptic Action-Adventure Feature Film Starring Nicolas Cage To Open In Theaters Nationwide, October 3, 2014


EventsALBUM RELEASES (BY DATE)

n October 2014: Gospel USA Magazine will release its next Gospel music compi-lation CD entitled, “Artist Favorites, Vol-ume 17” -- coming in our October - No-vember 2014 issue. All Gospel groups and artists (all genres) can have their favorite original Gospel song(s) included on this popular CD series for just $350 per song. For details, call Cecil Brown at 305-234-8689 or visit www.gospelusa-

magazine.com.

ANNIVERSARY CELEBRATIONS (listed by state, date)

Illinois

n October 10th, 2014: The Chicago Gos-pel Announcers Guild - GMWA presents their 19th Year Anniversary Celebration & Quartet Jam. Guests include George Dean & G4, Bishop Darrell McFadden & The Disciples, Maurice Yancey & One

Accord, Holy Vision, First Creation, The Douglas Singers, The Stars of Heaven and God’s Posse. Hosted by Evelyn Turrentine-Agee. To be held at Greater Harvest M.B. Church, 5122 South State Street, Chicago, IL. Tickets $10 adv. / $15 at door. 7 p.m.. For details, call MaMa Curtis, Chairman, at 773-814-5673 or vis-it www.chicagogag.com.

AWARD PRESENTATIONS (by major organizations)

GOSPEL MUSIC ASSOCIATION (GMA) DOVE AWARDS

n October 7th, 2014: The 45th Annual Gospel Music Association (GMA) Dove Awards will be held at Lipscomb Univer-sity’s Allen Arena in Nashville, TN. For the 2014 nominees and more informa-tion, visit www.doveawards.com.

GRAMMY AWARDS

n February 2015: The 57th Annual Grammy Awards will be presented at the Staples Center in Los Angeles, CA. This popular annual event covers all genres of music, including Gospel and Christian. For details as they become available, visit www.grammy.com.


• Your pre-recorded 30 or 60 minute spot aired at least 4 times daily.• You can change you spot after the event is over or the advertising

campaign has ended.• A banner ad with link on the 247 Praise Radio website.• Praise E-blast at a reduced rate.

That’s Right! You can get one full year of advertising on 247praiseradio.com at one affordable price, $247.00 Here is what the package include:

In today’s economy, who can afford big budget advertising campaigns? This is perfect for businesses, churches, organizations and non-profits with a limited budget and need to advertise. 247 Praise Radio Online has thou-sands of listeners daily and we’re still growing. 247 is the perfect platform to advertise your events, products, goods and services not only to a local audience but to a global audience as well.

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Soulfunny: adj \sl -f-n\ the qual-ity that arouses emotion and sentiment, seeking or intended to amuse the central or integral part of a human being; the vital core.

The Soulfunny Radio Show is a radio show that airs on Rejoice Musical Soul Food to approxi-mately a half million listeners weekly through approximately 50 radio stations around the country. With nationally recognized Comedian Steffon Vann hosting and Spoken Word Artist Vicky Clark and Pastor Sharon Riley as co-hosts, The Soulfunny Radio Show enlightens, encourages and entertains its listeners through music, shared testimonies, guest interviews and listener interaction all done with a twist of comedy to keep it fun, fresh and exciting.www.soulfunnyradio.com

The Soulfunny Comedy Cruise is a cruise that combines the Soul-funny Comedy Show and a Royal Caribbean Cruise to provide an affordable way to Refresh, Relax and Rejuvenate your Soul! Traveling to tropical places like Cozumel and The Bahamas and sharing in fellowship and activi-ties such as a night of comedy and a morning worship service The Soulfunny Comedy Cruise is a way to have fun in the sun with other Christians from around the country and plenty of opportu-nities for witnessing to those outside the body of Christ.www.soulfunnycruise.com

What Is Soulfunny

The Soulfunny Radio Show

The Soulfunny Comedy Cruise

We’re Impacting the Globe With Praise!


EventsRHYTHM OF GOSPEL AWARDS

n July 2015: The 7th Annual Rhythm Of Gospel Awards 2015 will be held at the Sheraton Birmingham Hotel in Birming-ham, Alabama. The event recognizes churches, pastors, choirs and indepen-dent gospel artists nationwide for their outstanding contributions to Gospel. For the 2015 nominees and more information as it becomes available, visit www.ther-hythmofgospelawards.com or call Mark Rogers at 210-745-5858 ext. 109.

STELLAR AWARDS

n January 2015: The 29th Annual Stel-lar Gospel Music Awards will be held. Tickets will be available exclusively from TicketMaster (1-800-733-6779 or www.TicketMaster.com). For more details as they become available, visit www.thestellarawards.com.

AWARD PRESENTATIONS by others in the USA (listed by state, date)

Florida

n November 7th - 8th, 2014: The 8th An-nual South Florida Gospel Music Awards 2014 will be held at Covenant Centre In-ternational, 9153 Roan Lane, Palm Beach Gardens, FL 33403. The event will fea-ture networking, showcases, vendors, an awards presentation and much more. For more details, visit www.sfgma.com or call Peppi Hendrix at 561-853-8300.

Georgia

n September 20th, 2014: Season 5 of the The Prayzefactor People’s Choice Awards Trophy Presentations will be held at The Globe, 2178 Highway 138, Stockbridge, GA. For a list of the per-formers, presenters and more, visit www.prayzefactorawards.com or call Pastor T, President & Founder, at 678-383-0019.

Ohio

n December 2014: My brothers and sis-ters in Christ, please come out to the 1st Annual Gospel Starlight Awards 2014 to be held in Columbus, Ohio. The pur-pose of this event is to praise God and to support many gospel artists worldwide, including Derrick Monk, Kay Morris,

GMEG and many more. World, these four nights are nights of excitement and fellowship! For more information and to purchase tickets, visit http://tggme-dia2014.wix.com/denoke#!gospel-star-light-awards/c1v4q or email Pastor Den-nis Tillman at [email protected]. And always remember that God Makes Everything Great.

CONCERT TOURS (listed by date)

September 19th - October 18th, 2014

n ALW Entertainment presents the Fes-tival of Praise Tour featuring Fred Ham-mond, Donnie McClurkin and others. The current schedule is: 9-19-14 / Kansas City, MO / Music Hall; 9-28-14 / Mat-teson, IL (near Chicago) / New Faith Baptist Church Int’l; 10-5-15 / Baltimore, MD / Modell Performing Arts Center at the Lyric; 10-9-14 / Salisbury, MD / Wic-omico Youth & Civic Center; 10-10-14 / Hampton, VA / Hampton Coliseum; 10-18-14 / Miami, FL / James L. Knight Center. Schedule subject to change. For more information, visit www.alwe.com.

CONCERTS (listed by state, date)

Alabama

n August 16th, 2014: Mark your calen-dar! T.O. Brown Gospel presents the 54th Anniversary of Joe Ligon & The Mighty Clouds of Joy at the J. Craig Communi-ty Center, 2 West 8th Street, Sylacauga, Alabama. Special guest groups include The Dixie Hummingbirds, The Pilgrim Jubilees, The Southern Sons, The Boyz of Triumph, Mr. Roy Brown & Company, The Soul Wonders, Ruth Black & Har-monettes and The Golden Humming Birds. Doors open at 3 p.m.. For more information and advance tickets, call Sis. Susie Bradley at 256-249-6997.

Illinois

n August 30th, 2014: The City of The Lord Church presents Heritage Gospel Festival 2014 to be held at House Of Hope, 752 East 114th Street, Chicago, IL 60628. Featured artists include Uche Agwu of South Africa, Chicago’s own Shekinah Glory Mass Choir and Todd Dulaney, plus many others. Begins at 4 p.m.. Tickets are $20 and available at www.TicketMaster.com. For more infor-mation, call 77-443-6074. (Photo: Uche Agwu and Todd Dulaney). view flyer

n More Event flyers on Online at www.247praiseradio.com or www.

The producer, song writer, and musician Jonathan Baker to release EP ‘Live’ on 8/19/2014

As a producer he has worked with the Christon Gray (School of Roses). As a musician he has traveled with Eddie James in the states and out of the country as far as Italy. As an artist he is next up to be a voice from the Sling Shot Movement. Jonathan Bak-er is a rare find. Few artist can write, sing, produce, play multiple instru-ments, and be authentically hip-hop as well. The project showcases the

many pieces that make up Jonathan Baker. The listener is sure to be taken on a journey, one that will make you truly want to ‘Live’. Be on the look-out for the new EP ‘Live’ to release 8-19-2014, with an iTunes pre-sale starting 8-7-2014. In the meantime check out the current single ‘Right Here’. www.SlingShotMovement.com

Our mailing address is: Fresh Laundry Marketing165 South Hamilton RoadColumbus, OH 43213

BAKER SET TO RELEASE EP ‘LIVE’

JONATHAN


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